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monr905 wrote:I am a 37 year old guy that has had the worst two years of my life. About (a month?) ago, I started to notice muscle twitching in my right bicep. I thought it was "cool" and didn't think anything of it. Well, I started to notice that my right eyelid was (getting stuck? twitching?). I did the unthinkable!
I started to do research on the internet. I am used to looking up different medical problems because as I said two years ago, my mother was diagnosed with adenocarcinoma of the right upper lobe of her lung (Lung cancer). She had a lobectemy and she has been in remission ever since. My dad died in Dec 07', I found him in his room a victim of a massive heart attack. Then my mother's shaking started. I don't want to bore you with paragraphs of my differential diagnoses (hahah I am a police officer and not a doctore, i swear!) She was finally diagnosed with Parkinson's Disease along with PolyMyagia Rhumatica. (PMR?) (taking a breath) (ok...) She is doing better. My x-wife and I decided back in June of 08' that were were going to try and get back together and it has been a tumultriuos ride. My point is that I have been under an EXTREME amount of stress. As a cop, I see live, eat and breath stress for lunch. But, over the last two years I have been on overload. Anyway, I looked on the internet for the cause of twitching and found A....L....(you know). I know I am trying to be humorous, but I am scared out of my freakin mind. Aisde from the stress, the only thing that I can think of that would cause anoything like this was the fact that I aggravated my mid to low back again by over exerting and picking up a very heavy bag a month ago that I had no business picking up (back injury? Cause?)....
As of today, fasculations are mostly in my right calf, and thigh, sometimes left, right arm, abdomen, right shoulder and right eyelid and ONCE between my left thumb and index finger(that freaked me out! ). My recent nightly ritual of a glass (or two ) of wine and my 5mg of diazepam seem to slow them down, but they seem to be getting worse and so does my anxiety. I don't have any weakness that I know of or any other signs but am deathly afraid that I am not going to see my kids grow up. My fasculations happen many times a day for about 5 to 15 seconds at a time.
I went to the doctor this Monday and he told me that most people with "Adam Lincoln Samuel" (cop lingo, guys) come in looking like a "ragdoll" and eyelid twitches made him believe that I am not managing my anxiety. (right? ) He told me to schedule an appointment with him in 8 yes... E I G H T weeks and we would evaulate from there. I went home twitched a bit and called him back to have him give me a referral to a neuro appt.
I have never been more nervous in my life!!!! I have always been OCD and a hypochondriac, but the twitching is no omnious! I am doing pushups, running, opening peanut butter jars after tightining as hard as I can, trying to caryy extra loads of plastic grocery bags with one hand, just to keep proving to my self that I am not losing muscle strength.
I don't know why I am rambling, I guess I am just hoping that someone that reads this post will help reassure me this sounds like BFS. I have never been the type of guy to really take day by day and enjoy it. I tell ya! The last two years changed me and this experience, if I live through it has really metamophisied me.The one thing that I noticed on these forums are the lack of successes after these, "Oh my god, I'm dying" posts. I promise that if on 5/26/10 I am healthy, I will repost here (I already set my BlackBerry ) If there is one thing I need righht now is LOGICAL hope.
I arrived at the neuro on Friday and I have to say that the 10 minutes that I waited in the waiting room seemed like years! I went in and the doc interviewed me and went over my history. He did a semi-quick physical exam, push this, pull this, step on the gas, etc. He then told me that before we went any further, I did not have ALS as I would have muscle weakness and wasting that I would not have to look for, it would find me. He did an exam with somthing that looked like a stun gun on idfferent muscles in my right hand and arm and told me that the pins and needles feelings in my right hand were from a mild carpal tunnel syndrome. Then came the EMG, I have to say that it was pretty much painless and he tested my arms and legs were most of my fasciciulations happen. He only saw one fasciculation on my thigh, not during the EMG and none during the EMG. He explained that the fasciculations with MND happen after muscle death. He scheduled me for a followup in one month to do some imaging for my possible back injury and sent me for thyroid bloodwork. He skipped the Lyme test, because I guess ticks in Rochester, NY are Lymeless? He diagnosed me with BFS and told me to get my anxiety under control.
I still have been getting twitching over the last week and even noticed more in my left thumb. I am trying to accept the benign diagnosis, but it is hard to go from twitchless to twitching all the time and accept that it is normal.
Joking aside, these widespread fasculations are ruining my life. Help.
God Bless.
Anthony
mommylondon wrote:I have a question...just been kind of taking my own little personal survey...but do you have or did you ever have any sensory issues or symptoms with your experience with BFS???
Thanks for taking the time, and welcome to the board![]()
Robynn
billydog wrote:mommylondon wrote:I have a question...just been kind of taking my own little personal survey...but do you have or did you ever have any sensory issues or symptoms with your experience with BFS???
Thanks for taking the time, and welcome to the board![]()
Robynn
I wasn't sure if this question was meant for me or not. But if it was, what do you mean by sensory issues? The twithcing started in the sides of my head, above my ears and spread everywhere. And I do mean everywhere! I vaguely remembering going through a lot of stress and not being able to sleep and taking some type of medication. The next day the twitching started and hasn't stopped and that's been years ago. I can't figure it out at all! Very strange! Atleast all my tests were good from the Neurologist and they said it was BFS! Kind of a relief but still sucks! I wish there was a pill or something that would permanetely stop this!
mommylondon wrote:billydog wrote:mommylondon wrote:I have a question...just been kind of taking my own little personal survey...but do you have or did you ever have any sensory issues or symptoms with your experience with BFS???
Thanks for taking the time, and welcome to the board![]()
Robynn
I wasn't sure if this question was meant for me or not. But if it was, what do you mean by sensory issues? The twithcing started in the sides of my head, above my ears and spread everywhere. And I do mean everywhere! I vaguely remembering going through a lot of stress and not being able to sleep and taking some type of medication. The next day the twitching started and hasn't stopped and that's been years ago. I can't figure it out at all! Very strange! Atleast all my tests were good from the Neurologist and they said it was BFS! Kind of a relief but still sucks! I wish there was a pill or something that would permanetely stop this!
Yes billydog, it was directed towards you. Sensory issues, like any buzzing, tingling, numbness, stiffness ect. Like I said just curious if you had any of these or just experienced the twitching. Some of have just the twitches and some of us have both sensory garbage with the twitching.![]()
Thanks for taking the time to answer.
Take care
Robynn
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