Facebook Group for BFS Sufferers

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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Facebook Group for BFS Sufferers

Postby monr905 on June 14th, 2009, 10:34 pm

I hope this is OK with John,

Now that Facebook is being used as such a took for communication, I wanted to use it to reach out to MORE people possoble suffering from this affliction.

I created a group on Facebook and here is the link:

Anthony invited you to join the Facebook group "BFS - Benign Fasciculation Syndrome".

To see more details and confirm this group invitation, follow the link below:
http://www.facebook.com/p.php?i=1053837 ... B65TRWZUP1

I figure the more exposure this disability gets the better people will understand.

God bless all..!
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Re: Facebook Group for BFS Sufferers

Postby ed73 on June 15th, 2009, 2:10 am

Hi everybody, specially you dear monr905,


Well , haven't really posted in quite a while b/c seriously,its kind of hard talking about something that you don't really care any more. Thats BFS for me right now, a ZERO, NO, 0% ISSUE. It doesn't even exist in my mind.

News flash for you monr905 :

1.
monr905 wrote:I created a group on Facebook and here is the link:


Well , there is one already :

http://www.facebook.com/home.php#/group ... 4362369233

2.
monr905 wrote:I figure the more exposure this disability gets the better people will understand.


"DISABILITY" WTF!!!!!!!!!!!!!!!!!!!!!!!

BFS a disability, my balls!!!! who the hell said that? where's the proof about it? Honestly I wanna read it!
Word of advise, be careful when choosing words, people here, particularly the new ones are kind of anxious and panicky, so don't get them on "disability mode" for no reason!!.

Finally , even if BFS is a Disability, which it is not, I really love my disability because :

1. Im a disabled 35 yrs old man that runs 5 kms daily.
2. My disablity made me lift weights even better and harder than when I was 21! love my BFS!
3. Thanks to my disability I was able to conquer my anxiety issues that linger for so long in life. Im experiencing the best mental shape of my life, I apply everything that BFS teached me into every aspect of my existence. The mental tragedies are over, I self-indulge into healthy thought patterns only.Worry? What the hell does that word means?????

Good luck and don't worry, some time soon you'll be glad you have JUST BFS!


And remember, there's nothing that a Heineken plus a bong cant cure!!!


Eduardo,
PROUD AMBASSADOR OF THE BFS COMMUNITY IN COLOMBIA
TWITCH PRO SINCE JUL-08
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 8:55 am

ed73 wrote:And remember, there's nothing that a Heineken plus a bong cant cure!!!
Eduardo,


Or Tequila? :D

Hi Ed!! **waves**
WTF!?! Invite me to a naked hot tub party then leave? Where did you learn your hosting skills? :lol: :lol:
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
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Re: Facebook Group for BFS Sufferers

Postby ed73 on June 15th, 2009, 9:50 am

Well High, let me be honest :

mmmmm...........Hot, blonde and twitchy women like you make me a little ..... shy!!!!!!

You said tequila?????? Have you heard about tequisprite? Tequila + Sprite, sounds crazy but try it you wont be disappointed.



P.S : Twin2 I know you'll PM me with your usual jealousy stuff.... again... you are my ONLY true BFS crush!!!.Some flirting here and there couldn't hurt.Maybe we could talk with some of the new BFS chicks into the threeway we are planning!!!. Id be awesome!!!

Relax ,

Ed
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 10:37 am

ed73 wrote:Well High, let me be honest :

mmmmm...........Hot, blonde and twitchy women like you make me a little ..... shy!!!!!!

Yeah...right...you shy?!! **falls outta my chair laughin**

ed73 wrote:You said tequila?????? Have you heard about tequisprite? Tequila + Sprite, sounds crazy but try it you wont be disappointed.

Noooooo I've never heard of it...sounds yummy!! I'll have to try it...


ed73 wrote:P.S : Twin2 I know you'll PM me with your usual jealousy stuff.... again... you are my ONLY true BFS crush!!!.Some flirting here and there couldn't hurt.Maybe we could talk with some of the new BFS chicks into the threeway we are planning!!!. Id be awesome!!!

Relax ,

Ed


Ut oh...

Threesome? Hmmmm...... **thinks about this** :wink:
Last edited by highpriority4 on June 15th, 2009, 10:38 am, edited 1 time in total.
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
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Re: Facebook Group for BFS Sufferers

Postby MarioMangler on June 15th, 2009, 10:38 am

Dibs.
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 10:41 am

MarioMangler wrote:Dibs.


Dibs?

LOLOL Is this some sort of secret language you boys are not sharing? I'm lost.... :lol:
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
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Re: Facebook Group for BFS Sufferers

Postby MarioMangler on June 15th, 2009, 10:45 am

8)
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 10:51 am

Oh my...hes wearing the sunglasses........am I in trouble? :D
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
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Re: Facebook Group for BFS Sufferers

Postby twin2 on June 15th, 2009, 10:58 am

Oh my dearest Ed. You would definitely need some tequila and sprite to deal with the smoldering hotness that is highpriority and twin2.

Make sure you do some waxing first.

kiss kiss
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 11:35 am

twin2 wrote:Oh my dearest Ed. You would definitely need some tequila and sprite to deal with the smoldering hotness that is highpriority and twin2.

Make sure you do some waxing first.

kiss kiss


**licks my finger and touches twin2's shoulder** Hear the SIZZZZLLEEEEEEE!!!! :lol:
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
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Re: Facebook Group for BFS Sufferers

Postby twin2 on June 15th, 2009, 11:47 am

I think Ed is enjoying some free internet *beep* right now :lol:
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 12:58 pm

twin2 wrote:I think Ed is enjoying some free internet *beep* right now :lol:


:lol: :lol:

When is it our turn? :twisted: :twisted:
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
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Re: Facebook Group for BFS Sufferers

Postby ed73 on June 15th, 2009, 1:26 pm

Well.... this threeway stuff is getting better by the hour, thats the way I like my chicks ....bad and nasty!!!

Im a fair guy , Ill tell you what, Ill split my 12" tool, 7" for you Becky (yes youre my fave!) and 5" for you High, sounds fair enough????

But the only questions is ¿ whos gonna be first at the spanking sessions?


Kiss goodbye to your husbands and dildos, actually Im a hybrid : I can love you like your husbands and vibrate and buzz like your dildos, all in one!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


Am I gonna get banned..... Again??????


Adios amigas,

Eduardo
PROUD AMBASSADOR OF THE BFS COMMUNITY IN COLOMBIA
TWITCH PRO SINCE JUL-08
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Re: Facebook Group for BFS Sufferers

Postby highpriority4 on June 15th, 2009, 1:45 pm

ed73 wrote:Well.... this threeway stuff is getting better by the hour, thats the way I like my chicks ....bad and nasty!!!

Im a fair guy , Ill tell you what, Ill split my 12" tool, 7" for you Becky (yes youre my fave!) and 5" for you High, sounds fair enough????

But the only questions is ¿ whos gonna be first at the spanking sessions?


Kiss goodbye to your husbands and dildos, actually Im a hybrid : I can love you like your husbands and vibrate and buzz like your dildos, all in one!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


Am I gonna get banned..... Again??????


Adios amigas,

Eduardo


5"? **laughs**

BTW...I now know what "dibs" means...and I'm sticking with that. :wink:
Aint no, rhyme or reason, no complicated meanin'
Aint no, need to overthink it, let go laughin'
Life dont go, quite like we planned it, we try so hard to understand it
Irrefutable, indisputable, absoluteable, totally beautiful fact is, Psssh
It happens...
User avatar
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Re: Facebook Group for BFS Sufferers

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