by kit on June 6th, 2008, 1:02 pm
Bart,
This was an excellent post! I am glad that your neuologist took such time and care to explain so much and that you took the tie and care to share this with the forum.
I know it has been quite awhile since I have posted (although I speak to quite a few yet via PM) but I thought that it was worth chiming in on this thread. Let me just say that I am very well. My practice is busy and I am teaching as well, my daughters are wonderful, my dad is doing terrific and my husband is most excellent (he will deploy in February). I have started running and working out and I feel fabulous. Now, I still twitch and ache and vibrate although far less except when I have a flare. That can occur when I am stressed, tired, getting ill and sometimes hormonal but all in all it is a year and a half since I first started with this. I saw my neuro for a follow up and he wishes he was as strong as I am:) Of note is that I still have never had an EMG nor will I at this point.
This condition comes with a lot of anxiety and a lot of very strange and inconsistent symptoms but it is most definitely benign. Part of the "healing" process is to accept that although this may never go away, you are not this condition and you are not ill. Once you can accept this it makes even the flares nothing more than a minor speed bump. So please, read this and other posts that give you comfort and take control back over your life and begin to move on. Life is short but far too sweet to waste worrying about something that will likely never occur.
I am available to anyone with questions or concern ANYTIME via PM, but I wish you all to be well and be happy!
Smooches,
Kit
"Life is not always what one wants it to be, but to make the best of it, as it is, is the only way of being happy"