mark one year

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Postby eric on March 23rd, 2005, 9:13 pm

you need an igenex test, it is the only accurate test,let me know and i will send you the test kit...
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Re:

Postby edado69 on April 1st, 2008, 9:12 am

Slavin Balen wrote:Due to all tests, lab exams, several Neuros and other doctors I am almost 100% sure in LD etiology. Nobody believe me except you Eric, Stephanie... I have an appointment 3/24 in Slovenia with one of their most prominent LD specialist.
My eyelids twitch a lot, tingling & pins and needles on my face, 24/7 twitching in legs. No weakness; I think so.
I heard that is impossible to cure patient after 3 years of tick's byte!?

Slavin

It seems to me that you have been under excellent (and reassuring) medical care and that everybody did agree on the fact that you're essentially ok...Well, ok as you are when you get twitches and sporadic cramps.
Fasciculating from the 25/03/2007 (as accurately as I can recall!...)
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Re: mark one year

Postby Slavin Balen on April 1st, 2008, 9:38 am

My post is three years old! It is 4 years mark in 2008. I am alright now. I spent a huge sum of money trying to convince myself I am fine. O.K.; I did it.
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oops

Postby TattooedMommy on April 1st, 2008, 10:32 am

delete*
Last edited by TattooedMommy on April 1st, 2008, 10:34 am, edited 1 time in total.
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Re: mark one year

Postby TattooedMommy on April 1st, 2008, 10:33 am

Slavin,
Congrats...I wish I could say I am at this 4 years. If you count the last time I went through this it was 18 months ago!!! This go around, 4 months ago in a week. I am still a bit nervous- but I am pushing through. I have the random little thumpers that hit here and there. No hotspots. Just annoying hit n runs that I cant even show any body b/c they happen so fast.. So yeah a lot of people think I am delusional.
I just pray Im ok. Im having a rough day today...Very rough. :(
"I've been spending way too long checking my tongue in the mirror
And bending over backwards just to try to see it clearer
But my breath fogged up the glass
And so I drew a new face and laughed".
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Re: mark one year

Postby triplem on June 16th, 2008, 5:04 pm

Hello,

I've just completed one year mark last week, still with no weakness and no atrophy. I see this in the positive and negative sides. Bad news first, this is probably staying for good and I have to learn how to live with it. Good news, if something nasty was behind all this, I should be way worse than I am now.
I went to one of the best doctors in the country for neuro-motor diseases, I had EMG, nerve conduction tests and even a muscle biopsy and it's diagnosed with mild muscular dystrophy that most likely won't impair me neither kill me. So I'm learning how to live with this, and it doesn't stress me as much it did when it first happen.
I have calf, feet and arm twitches every day, but not all the time. I'm getting bored to them no, I think. Life is a wonderful thing and I felt bad to have wasted some precious moments worrying too much about all this. I believe I'll be posting two , 4, 8 years marks here, but with a positive attitude and beautiful and complete life.
I hope my store can be of encouragement to more people as disturbing this all can be, this is BENIGN. If your case is similar to mine (no weakness, no atrophy, only twitches) you fall in that category of SCIENTIFFICALLY PROVEN people who have this BENIGN condition. Bothersome at times, but BENIGN. This are facts, not opinions.
Live your life, be happy, be useful, enjoy the day !
As the turtle master said in the "Kung Fu Panda" movie, or something like that:
"Yesterday is gone, tomorrow is just an idea, the today is a gift ! That why it's called the "present" !
Bye !
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Re: mark one year

Postby Chris_uk on August 31st, 2009, 6:24 am

well its been a year today since this all kicked off for me !!!! and i have some more tests next week but i am over my fear of A*S !!!

i still twitch all the time in my calfs about 200 a minute but still walking, cycling etc !!

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Re: mark one year

Postby MarioMangler on August 31st, 2009, 11:16 am

Way to go, Chris! We're happy for you.
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: mark one year

Postby raindog on May 4th, 2010, 6:30 pm

Chris_uk wrote:well its been a year today since this all kicked off for me !!!! and i have some more tests next week but i am over my fear of A*S !!!

i still twitch all the time in my calfs about 200 a minute but still walking, cycling etc !!

Chris


I told you so Chris ....what tests are you having, and what is your specialist leaning towards regarding a diagnosis?
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Re: mark one year

Postby 6t5frlane on April 27th, 2012, 9:00 am

I would get on Doxycycline asap. For at least 2 months. See id there is any improvement. I live in a very high Lyme area. Not only Lyme but other tick bourne stuff. Take a look at the movie, Under our Skin...Yikes
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