Question.....

Information about how to manage or reduce the severity of BFS symptoms

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Question.....

Postby Florian on December 5th, 2003, 8:46 am

Benign Fasciculation Syndrome

• 70% of healthy people report occasional fasciculations


• symptoms begin in 30’s


– muscle twitching 85%, cramps/spasms 43%


– migratory paresthesias 40%, myalgias 33%


• normal neuro exam by definition


– no ALS after 7 year follow up

– 50% improve spontaneously

----

Does that mean afte 7 years without more symptoms, you have not ALS?
Can it be that you have ALS for that long time without more than fasciculations?

Florian
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Postby dwl on December 5th, 2003, 9:23 am

Florian,

First of all: normal neuro exam and normal emg means no als - no matter how short a time you have had twitching! If you haven't had these tests, then 6.7% of als presents as twitching only - NB this does NOT mean that 6.7% of twitchers have als. If you have not had onset of clinical weakness 13.4 months after your twitching started then you will not develop als with 99.99% certainty.

David
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Postby Florian on December 7th, 2003, 5:07 am

Thank you David.
Hope you feel good,

Florian
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Postby osbormd on December 7th, 2003, 10:19 am

I'm not sure where you got the information, but it looks like they used 7 years as the minimum time for follow up to get a good study group. Did the study you refer to say how many people were examined?...or was that all the information you had?

I find it comforting. I fit the group to a "T" except for the pain and muscle fatigue. Maybe that's part of the migratory paresthesias, because I have had patchy numbness sensation that has come and gone 3 times over the last 2 years.

• symptoms begin in 30’s
– muscle twitching 85%, cramps/spasms 43%
– migratory paresthesias 40%, myalgias 33%
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Postby osbormd on December 7th, 2003, 10:34 am

Florian,

I looked at Aaron's old post again last night:

http://nextination.com/aboutbfs/forums/ ... .php?t=201

I found it more comforting now than I did when I first started researching "twitches and cramps" and sending myself in a fear spiral 13 months ago.... It's like he's telling us a good synopsis of the condition and many of the things that can be associated with it down the road; I notice you and I have feet pain, which might by fibromyalgia or plantar fasciitis.

Also the Mayo study (Mayo ranked #1 in the US for Neurology):

http://nextination.com/aboutbfs/artmayo.htm

Mike
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Postby Florian on December 7th, 2003, 11:36 am

osbormd wrote:I'm not sure where you got the information, but it looks like they used 7 years as the minimum time for follow up to get a good study group.

-Maybe thats the point Mike....i understand it sometimes not perfectly.

Did the study you refer to say how many people were examined?...or was that all the information you had?

-Here is the link: http://www.wfubmc.edu/neurology/departm ... cument.htm

I find it comforting. I fit the group to a "T" except for the pain and muscle fatigue. Maybe that's part of the migratory paresthesias, because I have had patchy numbness sensation that has come and gone 3 times over the last 2 years.

-"My way": Numbness feeling for 3 weeks at one side of the face.
Then i use a vitB-complex and it gone away....but two days later i get parsthesias with skinburning on different parts of my body, like from to much sun.....i got this 2 month and than it go away from one day to the other. I was very Happy BUT than (since 2 1/2 month) the twitching starts like a machinegun in the calves....and now i have them sometimes on all pasts of my body most calves.

• symptoms begin in 30’s
– muscle twitching 85%, cramps/spasms 43%
– migratory paresthesias 40%, myalgias 33%
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Postby Florian on December 7th, 2003, 11:40 am

osbormd wrote:Florian,

I looked at Aaron's old post again last night:

http://nextination.com/aboutbfs/forums/ ... .php?t=201

I found it more comforting now than I did when I first started researching "twitches and cramps" and sending myself in a fear spiral 13 months ago.... It's like he's telling us a good synopsis of the condition and many of the things that can be associated with it down the road; I notice you and I have feet pain, which might by fibromyalgia or plantar fasciitis.

Also the Mayo study (Mayo ranked #1 in the US for Neurology):

http://nextination.com/aboutbfs/artmayo.htm

Mike


Thanks for the links Mike.
Yes the feet pain...i read that can also be Polyneuropathie or fibromyalgia.

Maybe we will laugh about all in 25 jears :roll:

Write again if you like, it feels good to compare notes...

Florian
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