by Dale on November 28th, 2003, 9:05 am
Good morning,
Perhaps you misunderstood my post.
The original "Subject" of this thread was "My BFS diagnosed as Autoimmune Disorder (Isaacs Disease)." In the actual message, Solarisle mentions that his Doctor is "fairly certain" and that "only time will tell" if he has this condition. I am rightly/wrongly interpreting that to mean that he has not been given an official diagnosis.
It's only my opinion, but I don't believe people should post this kinda stuff without an official diagnosis. For some of us here, it just stirs the pot. Some people start looking up more stuff on the internet & well, we all know what happens then - it only makes your BFS symptoms worse. My understanding is that this site is to support individuals with BFS.
If he does get an official diagnosis then fine, post that but remember, this is a site for people with BFS. There are lots of auto immune disorders: FM, diabetes, arthritis, etc. Again, this is a site for people with BFS.
One other thing "Sahti" - and I'm not trying to stir the pot here, BUT I find your comment "If BFS can be diagnosed by a Neurologist, then it is indeed just as real as those you've mentioned with REAL illnesses" hilarious. If you've ONLY been diagnosed with BFS, you should count your blessings. That's what the "B" in BFS stands for: BENIGN. Do you have any friends with diabetes? What about cancer? Take some time and visit a hospital. That's where you'll see REAL illnesses.
Sincerely,
Dale