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AboutBFS.com • View topic - My Story (Very long, but meant to help)

My Story (Very long, but meant to help)

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Postby whataprettyworld on November 16th, 2007, 8:01 pm

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Postby nickc on November 16th, 2007, 8:38 pm

onset: June 2007;; top complaints: pain/cramps in feet+hands, others;; Trileptal and Cymbalta
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Postby whataprettyworld on November 16th, 2007, 8:52 pm

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Postby Tui on November 17th, 2007, 4:28 am

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Postby Tui on November 17th, 2007, 5:01 am

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Postby smali on November 24th, 2007, 5:00 pm

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Postby Nancy on November 24th, 2007, 7:21 pm

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Postby zekebcfs on November 24th, 2007, 10:58 pm

I am interested in what happens to someone that does not have anxiety issues but leans more towards the cramping side of BCFS. What is there for me who does not have anxiety and has been seen by three psycologists? They have deemed me as having little to no anxiety and my sxs persist.

I am glad that for some it is simple anxiety. Now what about me? After having seen so many MDs, DOs it makes me feel weird for lack of a better word that it is just anxiety. Is it possible some of us have already been down that road. I so much wish it was just anxiety for me but it is not. For me it is not the twitching its the cramping. Now even the psychologist say that there is a major disconnect between twitching and cramping. I have yet to hear anything from anyone that says cramping is anxiety related especially when I have been seen by the specialist to give it the benefit of the doubt long before this thread. Anyone!
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"Keep them busy busy busy, back on the farm with the other animals." We are kept so busy with business (or busyness) that we do not understand or participate in the decisions and events that will crucially affect our future.
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Postby Angie on November 24th, 2007, 11:04 pm

You and me in the same boat, Zeke. We had a great turkey day by the way. Hope you did, too! :wink:
Angie
Cramp-fasciculation syndrome: a treatable hyperexcitable peripheral nerve disorder.
Neurology. 1991 Jul;41(7):1021-4 Tahmoush AJ, et al.
"muscle aching, cramps, stiffness, exercise intolerance, and peripheral nerve hyper excitability"
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Postby zekebcfs on November 24th, 2007, 11:12 pm

We just have to be glad some have found their solution.
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Postby jazzman on November 25th, 2007, 12:16 am

I have been reading this board for awhile and have refrained from chiming in until now. This thread caught my attention because the initial posters story is very similar to mine. I have had twitching, buzzing, cramping, and odd pains on and off for over a year and a half. All 3 neuros I saw agreed I had an anxiety condition and felt they were the source of my problem (after I came out ok on multiple tests). However the third one I saw actually took the time and explained to me how anxiety causes these types of symptoms. That really helped me accept his diagnosis. I also knew that I have always had a little "health anxiety" and other stress factors in my life. Just like so many here I got so much worse by looking up symptoms on the internet. I started taking my mind off my physical symptoms and started working on my anxiety issues with a professional. I too was coached to change my diet up quite a bit and I know that has helped. Anytime I would "cheat" I would get worse. I also joined some anxiety discussion boards and a local support group and was pleasantly surprised to find that so many people that have an anxiety problem have all these same symptoms. It is extremely common. To make my long story short I am doing so much better now and my symptoms have reduced dramatically. I actually have symptom free days now.

I can vouch that there is something to the anxiety cause since it was my cause. It is a shame that others who feel that is not their cause have to get on the defensive against others who are having this due to anxiety. I had to laugh a little when I read someone comment that this is turning into an "anxiety board". This is an anxiety board. So many people that post all over this board are obviously having an anxiety crisis and that is easy to see in their posts.

Thanks kevintwister for having the guts to relate your story. It's great you want to help others and I am sure you have. It has helped me by reinforcing what I already knew. I didn't do so myself because I felt it would get the type of response yours did and I was concerned it could affect my progress. Reading a lot of negative stuff wouldn't have been good for me. However now I feel I am passed that. Though I have a feeling I might regret coming out of "lurker" status.
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Postby smali on November 25th, 2007, 3:40 am

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Postby smali on November 25th, 2007, 4:21 am

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Postby Nancy on November 25th, 2007, 9:25 am

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Postby smali on November 25th, 2007, 9:38 am

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