My Story (Very long, but meant to help)

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My Story (Very long, but meant to help)

Postby kevintwister on August 3rd, 2007, 2:46 am

I don't have a theory about this condition. I have a real life story and I have learned a LOT over this last year. If by posting this I help one person overcome this "condition" I feel it is worth it.

I started with this muscle twitching stuff about a year ago. Of course I started Googling and found this site. While this site has been helpful for those that fear ALS, MS, etc., it had the opposite effect on me. I knew I didn't have those diseases. After reading up on these sites I was convinced that I had a disease or syndrome called BFS or PNHE that wouldn't go away (BTW, I am not blaming anyone but myself, it is how I personally interpreted what I was reading). At the time I just had some twitching in my calves and legs, the more I read about this and read others experiences I started having twitching everywhere, and then soon after that I started with the cramping and burning. At this point I went on a downward spiral. I couldn't exercise or do much physical activity anymore, some days it bothered me just to walk. Because of this I became obsessed with the internet, searching for hours at a time trying to find relief. The more I searched for reassurance the worse I got.

I went to several doctors and even a neuro. At first I was convinced that I had this due to a bad drug reaction I had. However every doctor that I spoke with that was familiar with the drug in question told me that it wasn't the case and it was likely being caused by anxiety. My primary wanted to put me on long term anxiety meds. I asked the neuro about "BFS". He laughed at me and said "BFS is just a term for fascilations that are benign, meaning they are not caused by a disease or anything serious. Normally benign fascilations are caused by stress and anxiety and everyone gets muscle twitching now and then. Some have it for days, some months, some years". That only made me worse and wasn't reassuring because I all I heard was "years". I also was getting upset because I felt I wasn't crazy. I felt when they were telling me it was anxiety that they were just blowing me off or telling me it was all in my head. A couple of doctors recommended that I seek counseling so out of desperation I visited a couple of psycologists and they were both clueless and just cost me more money.

I kept getting worse. Not only was I having all the classic symptoms mentioned here, I started having backaches, odd pains here and there all over. I even had carpal tunnel like pains in my hands and forearms, severe sleep issues (some nights I couldn't sleep at all, most I wake up every 2 hours or so). I really started feeling like I was going out of my mind. I was driving my wife crazy.

One night while doing my obsessive "muscle twitching" searching I got lucky and found a website that I now honestly feel saved my life and explained to me what was going on with my body. It was a site about anxiety and it had muscle twitching as one of the possible symptoms of GAD (General Anxiety Disorder). Well, I felt I didn't have "GAD" but the site had some good info. This site thoroughly explained biologically how an overstimulated nervous system causes muscle twitching and some of the other symptoms I was having. I was telling myself, I don't have GAD but maybe my nervous system is overstimulated for some reason. The author of the site had GAD for 12 years and he had all the same "BFS" symptoms many mention here and then some. After reading his experience I felt like this guy might know what he was talking about. The site had some real good information on the outside but you had to pay to get all the information. At this point I was skeptical but paid the $20 to read everything. It was the best $20 I ever paid.

This site taught me things that doctors either don't know or don't have time to explain. This site also offered personal counseling by the author, his wife and some of their staff. I was so impressed with what I was reading I wanted to give their counseling a try. Why not, I was still searching for answers and it cost half of what counselers around here were charging.

My wife was skeptical about me having counseling over the phone by some people I found on the internet but she was getting desperate herself. We decided to have my first session on speaker phone so she could listen in. My counseler ended up being the wife of the author of the site. To make a long story short, after the hour session my wife was shocked that this lady knew everything that was going on with me. I didn't even have to tell her the half of it. By her questions we both knew she knew what was going on with me.

I told her about all the "BFS" symptoms and she said something like "yep, I hear that all the time, and several times a day in some cases." She said those are typical anxiety symptoms. However I wasn't convinced I had anxiety. She assured me I did. She asked me "are you concerned or worried about your muscle twitching symptoms? Do you think about them often and fear they won't go away? Are you concerned that you are somehow damaged?". Of course my answer was yes to all of the above. She replied "That is anxiety. Worry and concern is anxiety that produces stress hormones. This is not in your head and you are not crazy. This is a real physical condition. Stress hormones produced by worry and concern stimulate the nervous system which start causing physical symptoms. When we keep worrying, we overstimulate our nervous system causes more symptoms which in turn generally causes more worry, which entrenches our symptoms. This becomes a vicious cycle and when a person gets to this point the worry and anxiety becomes entrenched and that is when we call it GAD.".

She also told me that the initial stress doesn't have to be from "worry and concern". It could come from a physical source like an illness, virus, exhaustion, over exercise, etc. This was interesting to me because when this all started I had just started working out a lot. I was pushing my body more than I ever had before and I had just lost about 30 pounds. I also remembered many people on this site saying that this all started after an illness like a virus.

Her husband has on his site an example of someone who reacts anxiously and develops and anxiety condtion opposed to someone who acts in a "healthy" way. It went something like this. Let's say 2 people get a virus which stresses their body, or they have a lot going on at their job which stresses them. Both people start getting some physical symptoms of stress, let's say muscle twitching in the eye lids. Both go to their doctor to find out what is wrong. The doctor tells both of them that it is due to stress, is nothing to worry about and they should go home and rest for a few days. The first patient reacts "healhty" and fully accepts what the doctor says. That patient goes home, does some relaxing things, gets some rest and never gives it a second thought however while still having symptoms. The symptoms eventually do fade since it takes time for the nervous system to calm down. On the other hand, the second patient reacts "anxiously". Instead of accepting the doctors diagnosis, that patient goes home and starts searching the internet because the doctor surely missed something. This patient has now started the worry & concern cycle. This creates more stress causing more stress hormone releases and increases the symptoms (muscle twitching now getting worse and spreading to the whole body). Because of the increase in symptoms this patient has even become more worried and concerned and is now obsessed, fueling the vicious cycle. This patient now has an entrenched anxiety condition.

Now be honest with yourself. When your twitching started, who did you more resemble, the first patient or the second? I was for sure the second. Have you also noticed that most that say they had twitching but it went away also say that they just stopped thinking about it?

It took me months (almost a year) to accept my symptoms were being sustained by worry, stress, and anxiety. For a good while I was getting frustrated because I thought I was accepting but now I know I wasn't. When my muscles would fire up I would still react and think about it. I still had my doubts also. It took me months of counseling with the lady I mentioned above. She was a lifesaver and I feel I owe my life to those guys. Her husband (Jim) was aweome too. It was always reassuring talking to someone that had been there. He had all of this and then some for 12 years. My life was hell for 1 year, I can't even imagine having this for 12. One thing is for sure, unless you have had this you can't understand this. That is what makes those guys so helpful.

What I have learned from them is how our nervous system works. I won't go into much more detail but one thing that helped me was know that the nervous system has a setting or a memory. When we start stressing it by worry and concern or any other form of stress, it starts operating at a higher level than normal (this is when symptoms start occuring). When we keep up this pattern it goes to it's highest level and the body perceives that this is now normal (normally when we are here we can have all sorts of problems, problems sleeping, pain in joints, back aches, head aches, severe muscle twitching, cramps, tons more, etc.). Once it is there is stays that way until we take action to bring it back down. This is where the work comes in because it normally doesn't do it by itself. Besides changing behaviors, diet comes into play also.

Today, I have very little muscle twitching. The first thing that faded after I stopped the worry cycle was the cramps, burning, and pain. The twitching started decreasing a little while after that. I now will get a minor jump here but rarely anything I would call a twitch. All my other symptoms are gone except some lingering sleep issues. I understand that it can take up to 2 years for the body to return to normal if you were really overstimulated.

Another side story is that I visited my doctor a little while back for a check up. I told her all I had learned about anxiety and how it works on the body. She was impressed and told me that everything I have been taught was 100% accurate. I then asked her why she wanted to put me on anxiety meds when the real cure is stopping the worry cycle with knowledge of what's going on with our bodies. (BTW, anxiety meds are ok as a stop gap but should never be viewed as a cure and should not be used long term). She told me that most people want a quick fix and she doesn't have time to spend with patients explaining all of "that stuff". She did however ask for the website address and told me that she would refer patients there if they didn't want pills. I was kinda peaved that she was so quick to give me anxiety pills before but was now admitting that they can be dangerous and that the way I was curing myself was the only real way.

In conclusion I want to say this to everyone. I don't know what was the initial cause of most of your muscle twitching symptoms (could have been an illness, virus, over exercise, exhaustion, food allergy, depression, having a baby, problems in your life, etc., all of those things cause stress which kick starts this). I think mine was over exercise and general stress. However I think I have a good idea what is keeping most of you going, anxiety. Chances are your initial cause isn't what is keeping you going today. It's your worry and concern, and before you deny that I will say this, if you weren't worried or concerned about your symptoms you would not be on the internet reading about it or discussing it. Worry and concern IS anxiety. Anxiety in turn fuels symptoms of stress, which includes and in some cases only consist of muscle twitching.

The website I have been talking about is http://www.anxietycentre.com . Believe me this is in no way an ad for those guys. I am for real and owe a lot of gratitude to them. I am posting this to help others that are suffering like I was. Here is a list of common anxiety symptoms http://www.anxietycentre.com/anxiety-symptoms.shtml . Do yourself a favor and head on over there and see if you can relate. I hope some of you can, because if you can you will be able to get over this thing.
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Postby Mommyto3 on August 3rd, 2007, 9:38 am

Wow...very interesting.

When I first started googling my symptoms I had the huge A** fear that so many of us on this site have. But I also ran across quite a few sites that stated that anxiety and an "overloaded" system can cause twitching as well. There are many sites that state this, but usually in a blurb or two.

My own GP stated that my twitching was probably due to anxiousness. My neuro disagreed.

I'm on the fence about what "caused" my twitching. In all honesty, I really do think that being stressed beyond belief by my own personal issues had a LOT to do with it. I wasn't anxious about A** when I started twitching.... that didn't come on until I googled...but I was a ball of stress.

I don't think anyone completely understands why some of us twitch more than others. I guess that's why I had conflicted statements from my GP and Neuro.

But this is what I do know... when I calmed down a little after my EMG, my twitching got better. I still have good days and bad days...but the bad days almost always correlate to stress and other emotions in my life. When I went on several vacations this summer I hardly twitched at all. When I came home, the twitching started.

After being off of work all summer, I report back today (I'm a teacher)... and guess what? I'm twitching. Probably because I know I have SOOO much to do.

Anyway...thanks for the post. I'm sure that there will be people that do not completely agree with you. But I think you make a lot of great points!

:D
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Postby kit on August 3rd, 2007, 2:50 pm

I think that in some cases stress and anxiety and how we choose to deal with stress and anxiety can cause all kinds of issues. I also believe that there are some individuals on this site that do have anxiety as their prime disorder and this condition certainly doesn't help that. I am glad that you have found something that has worked for you. However there are many people on this site who have done what they can for anxiety and still have many to most of the symptoms of this condition. I think it is important to note that although anxiety causes a great deal it is not necessarily the cause of everything. Anxiety can cause heart attacks however there are other medical reasons for heart attacks. BFS/BFCS/PNH seems to have some other underlying physiological reasons that may in fact not be able to be explained away by stress reactions.

Please understand that I am in no way attempting to censure you or take away from your excellent recovery but please be sensitive to the fact that not everything is cut and dry.
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Postby smali on August 4th, 2007, 2:49 pm

kit wrote:I think it is important to note that although anxiety causes a great deal it is not necessarily the cause of everything.


Don't know about you folks, but my twitches even went on when I was under anesthesia. Mind is seperated from body then, so for me anxiety was not the cause.
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Postby kevintwister on August 6th, 2007, 5:06 pm

smali wrote:
kit wrote:I think it is important to note that although anxiety causes a great deal it is not necessarily the cause of everything.


Don't know about you folks, but my twitches even went on when I was under anesthesia. Mind is seperated from body then, so for me anxiety was not the cause.


You may not understand how anxiety works. Most seem to think having an anxiety problem means that you have to be being anxious or nervous at that moment for anxiety symptoms to hit you. This is not true. Maybe it would be more understandable for me to say "overstimulated nervous system" than anxiety. Once your NS becomes overstimulated it stays that way, even when you are sleeping. It basically runs on high at all times and it takes a lot of work (both cognitively and diet) to get it down to normal.

People involuntarily train their nervous system to run on high and get erractic by numerous things. Daily stress, simple worry and concern, unhealthy behaviors, etc. Most people stress their nervous system and don't even know it. It can be subtle and take years before it becomes a problem. People that tend to worry about their health or think the worst when they get an unfamiliar senstation are very prone to developing this (I mention this because this board is full of that type of person, I was one too).

I have seen countless posts on this forum where someone admits they generally worry about their health, have "health anxiety", or even go as far as labeling themselves a "hypochondriac". Then I see them describe how their twitching started, how it got worse, and how they are anxious now. Most of these people sound just like I did and are textbook cases. Some even tend to admit that they somehow feel that this is all anxiety related and most are correct. When some of you chime in that "no, this isn't anxiety, it is an autoimmune disorder", you are doing those people a big disservice because you are creating in them more worry and fear which leads to more anxiety which is only going to make them worse because it is the worry that is stirring up their nervous system which in turn is causing the twitching, burning, tingling, vibrating, etc symptoms.

I am not suggesting that there is no such thing as a autoimmune disorder that causes these types of symptoms, maybe there is. However I KNOW there is such thing as an overstimulated nervous system that causes almost everything ever mentioned here. I know this because I have lived it and have come through it. I wasn't convinced until I was shown how this biologically works via a specialist that specializes in this, and having 2 doctors agree with everything I was being taught and doing.

The first step in the process of recovery (bringing back down an erratic nervous system) is knowledge of how the NS effects the body and causes symptoms. The reason is if you aren't convinced that this is causing your problem it will block your recovery because you have to first stop the worry and concern of your condition (since this stimulates the NS). If you think you have some disease or "this will never go away", it probably won't go away (barring your condition is being fueled by that worry).

Here is a sample of some of the material provided to me from my specialist that helped me through my recovery in reference to muscle twitching.
_________

The Symptom: Muscle Twitching, uncontrollable or persistent twitching

A certain muscle, group, or groups of muscles twitch (jerk) involuntarily. Even if you try to relax the muscle or group of muscles the twitching continues.

Twitching may appear for a few brief moments, last for minutes, or hours, or persist for days and weeks off and on. It may also persist even when trying to go to sleep, while sleeping, or when waking up.

The Reason: When the body (nervous system) becomes overstimulated, it can act more erratically and involuntarily than when normal. For example, stress hormone overstimulation causes the electrical activity to the brain to increase. This increase in activity can involuntarily cause nerve cells to signal muscles to contract, tense, spasm, (muscles respond to electrical impulses in the brain that causes actions to occur in the muscle cells). These involuntary messages can cause the effected muscle or groups of muscles to contract sporadically or in rapid and persistent succession.

While annoying and disturbing, these symptoms are harmless. You should, however, heed your body's warning that it is overstimulated and needs attention. Once your body's overstimulation is addressed and eliminated, these symptoms will disappear.
_____________


Keep in mind that NS overstimulation can cause a lot more than twitching. Besides that I had burning, weird vibrations in my muscles, tingling, numbness, pain, cramping, tightness in my legs, fatigue, and a few more that I probably don't care to remember. I did notice when I got stressed at work or started thinking about my condition (like Googling symptoms) it got worse, which now makes sense. Also, my mother in law recently passed away and I noticed my wife started having twitching and burning real bad. Fortunately, because of me she knew it was due to stress and grief and she didn't let it bother her. It went away after a couple of months.

Once I stuck to the plan provided by my specialist these things started to fade. It took a LOT of work, faith, and discipline. It takes a lot more than just "not be anxious or nervous". It also took a long time and patience (about a year)

If you feel you have an autoimmune disorder (and I am not saying you don't), hopefully there will be a way to overcome that also. However, don't try to convince someone else that anxiety and stress (which results in an overstimulated NS) isn't their cause and there must be something more sinister. This will only make the person that has the NS overstimulation issue worse because it is going to cause them more fear and wory (the fuel that keeps the NS overstimulated).

Guys, I am living proof that stress and anxiety can cause this condition and keep it going. I am also proof that with the right knowledge and tools this condition can be eliminated.

P.S. Kit, I am in no way trying to undermine those of you that have another situation going on. I am really just trying to help whom I strongly feel are the majority here. I apologize if I came off in a bad way in my post. I communicate better in person than on the internet ; ). BTW, having this condition due to NS overstimulation is very far from cut and dry. I am just trying to explain it as simply as I can.
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Postby kevintwister on November 13th, 2007, 2:25 pm

I don't have a need to come to this site anymore, however I want to thank everyone that has PM'ed me about my initial post here. I am thrilled that it has helped many of you and glad to hear that some of you are doing a lot better because of it. That was the purpose of my post. I am doing great and am getting better everyday. Most of you can be free from the condition too if you put forth the effort.
Former BFSer, here to help. BFSymptoms (not a syndrome) are symptoms of nervous system overstimulation. Got my life back thanks to those fine folks at anxietycentre.com whom taught everything I know about this condition.
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Postby whataprettyworld on November 13th, 2007, 3:10 pm

A very interesting read....as soon as I read about the $20 suscription my heart sank and thought it was spam, reading further and I can see that was not the case. A huge thanks for taking the time to post that.

I thought that I was an expert in anxiety having been researching everything for the last 4 months but you expressed it so well.

Even though I have only visited here for a few days I have noticed that there seems to be some debate over the issue of anxiety and BFS. When I first read about BFS it fit the majority of my symptoms perfectly and hance me joining here, having said that I can also see that an anxiety framework fits perfectly for me as well....I'm just wondering that as I am finding it so hard to accept an anxiety dx that I just want something to define my sensations and have latched onto BFS :?

People on here have said that they have been told that sensations such as buzzing, muscle aches, twitching and jerking do not present as anxiety symptoms....now, I have been told by 2 CBT therapists and 4 GP's that they are classic anxiety sensations for many many people. Further, classic somatic disorders such as conversion disorder frequently present as neurological sensations in western culture....this is common and is a result of the mind 'converting' stress overload into physical sensations.

I can totally understand that BFS, PNE and Fibromyalga sufferers want to view the condition as a seperate entity from anxiety but I imagine that the truth is that there are so many cross overs between all these conditions that it may take years for the full story to be known.

A crucial thing I take from your post and some of the other posts in this thread is the explanation that the body can be anxious without you feeling anxious in the traditional sense...the idea that anxiety is best seen as nervous system burnout is far more useful. When I fist saw a GP and had the anxiety explanation I scoffed. I wasn't anxious, just 'worried' about these sensations and I wasn't having palpitations, I wasn't having panic attacks, I am buzzing, twitching, tingling and aching all over...this is ain't anxiety this is a serious progressive neurological condition!!

As anyone who has read my posts on here can see, I'm still struggling with anxiety and therefore don't know if I 'fit' on this forum or not. Having said that it has put my mind at rest and is full of people all trying to find some solace at a mad time in their life and that fits me like a glove.
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Postby kevintwister on November 13th, 2007, 3:42 pm

whataprettyworld wrote:People on here have said that they have been told that sensations such as buzzing, muscle aches, twitching and jerking do not present as anxiety symptoms....now, I have been told by 2 CBT therapists and 4 GP's that they are classic anxiety sensations for many many people.


Yes, as a matter of fact the anxiety site that I spoke of has a forum with members just like this one. It's full of posts from people with anxiety issues complaining about these types of symptoms.

I even witnessed it with my wife. She went through so much stress dealing with my condition and dealing with the fact her mom was dying from cancer that she started developing "BFS" symptoms. However because of me she recognized it was due to stress and never worried about her symptoms. I am convinced that if she would have started focusing on her twitching, burning, etc that it would have become entrenched like what happened with most of us.

Nervous system burnout is a good way to put it. Good post.
Former BFSer, here to help. BFSymptoms (not a syndrome) are symptoms of nervous system overstimulation. Got my life back thanks to those fine folks at anxietycentre.com whom taught everything I know about this condition.
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Postby lucy on November 13th, 2007, 4:50 pm

nervous system burnout- yes how true! or how about 'stress on steroids' ?? Once it starts it is sort of like a snowball that picks up speed and momentum and grows in size. Once you grasp what is happening to you , you can let that snow ball slow down and begin to melt perhaps. Kevintwister, your story brought me such calm and opened my eyes. Thank you-
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Postby famguyfan on November 13th, 2007, 6:19 pm

I second what Lucy said! I felt from the beginning that my anxiety preceded/ brought on my symptoms, and your story backed up mine and my doctors' thoughts. Thanks again for sharing your story/ advice!
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Postby Angie on November 13th, 2007, 6:41 pm

Trust what Kit says. She's an MD after all. Stress and anxiety can accelerate any medical condition. Do a little pubmed.gov search on cramp fasciculation syndrome. Check out http://www.pnhe.info/ just for kicks.

Maybe some of you don't have a medical condition, but I do, and I'm betting even if the majority of you cut all anxiety out of your life, you would still twitch periodically everyday and maybe for the rest of your life. Just an educated guess. :D Guess we'll see.
Cramp-fasciculation syndrome: a treatable hyperexcitable peripheral nerve disorder.
Neurology. 1991 Jul;41(7):1021-4 Tahmoush AJ, et al.
"muscle aching, cramps, stiffness, exercise intolerance, and peripheral nerve hyper excitability"
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Postby j7m on November 13th, 2007, 7:06 pm

Great Post, I'm sure many people may find this helpful.

First I would like to agree that BFS is just a name for this condition and not the condition itself. I also agree with everyone on this particular post that it has many root causes that range from anxiety to autoimmune.

With that aside, I have always noticed that anxious moments - emotional and physical - tend to produce a couple months of high BFS activity for me. I have also read several times of nervous system memory as forming habits around the output of anxiety. The first GP I saw 3 years ago explained to me that anxious energy does not just dissipate, the body has to release it somehow. It does this in most cases physiologically; either in one giant swoop (panic attack) or gradually (twitching, aches, vibrations). Initially this sounded too mathematical to me (the sum of all my twitches equals the energy produced by my anxiety hormones?) Maybe I shouldn't have taken him so literally, but it does make sense. Only after I had been dealing with this for so long did I start to notice the pattern, and the self-fulfilling prophecy of stress begetting symptoms begetting stress.

Again, I agree that BFS can have many origins. Still, I do think this post can help quite a few people out there cope with the anxiety of their symptoms.
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Postby Angie on November 13th, 2007, 8:43 pm

My good friend has high blood pressure. She always has. Some things we are genetically predisposed to. If she gets under stress, her blood pressure goes up. There is a correlation there with her pre-existing condition and stress.

There is scientific evidence that BCFS has been documented by research for a number of years and has a number of causes. Personally, I did not like either being in pain or having continuous nerve fasciculations throughout the day that could be very intense. They do get worse if I'm tired or under stress or whatever, but I do like having a doctor that knows of my condition and treats me for it. It makes life a whole lot simpler. Maybe someone else will find they feel the same way.

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Cramp-fasciculation syndrome: a treatable hyperexcitable peripheral nerve disorder.
Neurology. 1991 Jul;41(7):1021-4 Tahmoush AJ, et al.
"muscle aching, cramps, stiffness, exercise intolerance, and peripheral nerve hyper excitability"
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Postby lucy on November 13th, 2007, 9:36 pm

Alive and Twitching,

As you said, this syndrome has "a number of causes", soooo perhaps for some here the cause IS anxiety in overdrive. Why are you continuing to pound in the idea that it is autoimmune for all?? Perhaps for you- not for all. Autoimmune diseases are not something to take lightly and casually assume one has.

One) My docs have told me there is absolutely NOTHING wrong medically with me right now.

Two) I have taken a look at my personality, past experiences and pieced together how I react to stress etc, ( I even took into account how I have been sleep deprived for years and years which I feel adds significantly to my stress/anxiety

I have concluded that I have a anxiety related symptoms
Others seem to have concluded this as well- why can't you just take this at face value. We feel for us anxiety is the root here problem most likely and want to deal with it from that point of view/conclusion.

No one is saying you have to accept anxiety as your OWN cause for bfs/bcfs. If meds help you, great! I am truly glad you found a way to deal with it. And I truly wish you the best, as you seem like a really nice person. I just take issue with someone trying to convince evryone here that they have some big autoimmune problem for life, esp. when there is much evidence against that.

Lastly, the sites that you reference are few and far between. Physical abnormalites on tests can be seen in many people with no medical problems. Many factors can affect tests.
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Postby kevintwister on November 13th, 2007, 10:43 pm

alive and twitching wrote:I'm betting even if the majority of you cut all anxiety out of your life, you would still twitch periodically everyday and maybe for the rest of your life. Just an educated guess. :D Guess we'll see.


I would take that bet. However I would not be basing my bet on an educated guess. I have lived this and talked to countless others that are/were just like me. There is a lot to "taking all the anxiety out of your life". It's not as simple as "OK, I am no longer going to be anxious". I had to address a lof of underlying issues I didn't know I had and correct a lot of bad habits I have had my whole life. I also had to adjust my diet and take time out each day for deep relaxation. I also had to eliminate any doubts that I didn't have some sort of disease because those "what ifs" were fueling the fire. I had to do ALL of those things to start the healing process and even after doing all of those things I didn't start seeing any real improvements for months. I can see how someone could easily feel they have addressed their anxiety but yet still have physical issues. It takes a long time for the body to heal from "nervous system burnout" as it was just called.

Also, everything I have read about an autoimmune possibility also states that it is rare. Anxiety is not rare, in our day and age in this fast paced society and so much going on it is at epidemic levels. So with all of that in mind I would tend to believe most people here are like me.

It's posts like this that will make people worse because it instills doubts in them and starts the whole "what if?" trail. I am convinced that most people here do have some sort of underlying anxiety disorder. Them reading that "they will be twitching everyday for the rest of their lives" is only going to fuel it further and make them worse. I went to that PNHE site and scared myself to death. Within days I had almost every symptom mentioned on that site and was convinced I had that. That is how anxiety works.

I feel for anyone that has a autoimmune disorder and I hope I am not coming off as insensitive to that. I am just trying to help those people that are going through the same hell I went through because it doesn't have to turn into that.

Speaking of MDs, my MD tried telling me I had anxiety. My neuro did the same. I have seen countless posts where people have stated that their doctors are all saying the same. The problem with doctors are most have no clue how to address an anxiety condition or explain it. Just telling someone they have anxiety and throwing pills at the problem is going to do little for them.

One of the bad habits I had to eliminate was visiting websites like this. So with that in mind I don't want to fire up any twitching or any other anxiety symptom by debating this. I think I have said everything I can on this subject and hope it has helped some. I best close the chapter on this part of my life and move on. I wish you all the best.
Former BFSer, here to help. BFSymptoms (not a syndrome) are symptoms of nervous system overstimulation. Got my life back thanks to those fine folks at anxietycentre.com whom taught everything I know about this condition.
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