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Postby Angie on June 30th, 2007, 9:22 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
Yes. Pain, cramping and burning in my left foot periodically for a few months. Bouts of intense, but intermittent, fatigue.
2. Did you have an illness prior to the first event?
Yes. Was sick continuously before twitching intensified from infrequent to uncontrollable.
3. Had you had any recent surgery?
No.
4. Had you over used the muscles in the affected area prior to the twitching?
No.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
No
6. If so, do you take any medication for the above?
No
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
Orthotricyclen. Have low progesterone.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
Haven't noticed.
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
No.
10. Do you suffer from allergies or any other minor autoimmune disorder?
No.
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Postby pacovega26 on June 30th, 2007, 9:34 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
- I don´t remember very well, but now that you mention it, I might have fel some pain.
2. Did you have an illness prior to the first event?
- No
3. Had you had any recent surgery?
- No
4. Had you over used the muscles in the affected area prior to the twitching?
- No
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
- No
6. If so, do you take any medication for the above?
- No
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
- I, my mother, father and brother suffer from dust, cats and dog allergies. My father is allergic to Aspirin, and I am to penicilin.

10. Do you suffer from allergies or any other minor autoimmune disorder?
- Allergies to dust, cats and dog, as well as asthma.

Cheers

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"No"
"Why?"
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Survey

Postby Mommyto3 on July 1st, 2007, 5:17 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching? No

2. Did you have an illness prior to the first event? Yes...horrible head and chest cold

3. Had you had any recent surgery? No

4. Had you over used the muscles in the affected area prior to the twitching? No

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? No

6. If so, do you take any medication for the above? N/A

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. - oral contraceptives...yes. Am on Seasonale...only get a period once every three months

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? No

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) No

10. Do you suffer from allergies or any other minor autoimmune disorder? I have had allergies my entire life....mainly to dust, grasses/trees, animals.....but am also allergic to some tree nuts (especially walnuts) and about 7 years ago I developed Cold Urticaria (an "allergy" to the cold...I get horribly hot, itchy, hives from the cold)
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Postby WhichTwitch on July 7th, 2007, 11:35 am

1. Did you notice "muscular" pain or fatigue prior to the twitching? Yes
2. Did you have an illness prior to the first event? Had fatigue, aching and dizziness two weeks prior to explosion of all over body twitching.
3. Had you had any recent surgery? No
4. Had you over used the muscles in the affected area prior to the twitching? This occurs when I overuse any muscle currently.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Reflux, silent GERD
6. If so, do you take any medication for the above? No
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. No
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? Worst at ovulation, and three to four days prior to menses.
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Severe allergies
10. Do you suffer from allergies or any other minor autoimmune disorder? Severe allergies, chronic neutrophilia (but no inflammatory indicators or processes)
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Postby aussiekate on August 27th, 2007, 6:07 am

1. Did you notice "muscular" pain or fatigue prior to the twitching?
No. I seem to have heaps now though!

2. Did you have an illness prior to the first event?
Suspect Meneire's Disease (reoccuring vestibular neuritis hasn't been ruled out yet).

3. Had you had any recent surgery?
Had surgery approx. 2 years ago.

4. Had you over used the muscles in the affected area prior to the twitching?
No.

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
Relux and Heartburn.

6. If so, do you take any medication for the above?
Pariet 20mg daily.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
10+ years on the pill. One of those years I was on depo. injections.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
Yes, I feel they are more pronounced prior.

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Nope.

10. Do you suffer from allergies or any other minor autoimmune disorder?
Hayfever.
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Postby twitchyntn on August 28th, 2007, 5:33 pm

1. No

2. Not that I know of.

3. No.

4. No.

5. No.

6. N/A

7. I was on the pill for about 15 years. Started at 17 because of severe ovarian cysts and continued until recently, when I read something that prolonged use could contribute to muscle twitching....

8. Yes, MUCH more pronounced in the week or so before starting.

9. Allergies and asthma.

10. See above.
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Postby paulzeee on August 28th, 2007, 10:19 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching? Yes
2. Did you have an illness prior to the first event? no
3. Had you had any recent surgery? no
4. Had you over used the muscles in the affected area prior to the twitching? no
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Yes I have Crohns since 1996
6. If so, do you take any medication for the above? no
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. N/A
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? N/A
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) no
10. Do you suffer from allergies or any other minor autoimmune disorder? no
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Re: Survey

Postby Jasonn on August 30th, 2007, 11:53 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
No
2. Did you have an illness prior to the first event?
No
3. Had you had any recent surgery?
No
4. Had you over used the muscles in the affected area prior to the
twitching?
Quite possibly because i ran a mile that day. Then again i exercise almost everyday...
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
reflux, heartburn
6. If so, do you take any medication for the above?
tums
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Not that i know of.
10. Do you suffer from allergies or any other minor autoimmune disorder?
No
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Postby lotsoftwitch on August 31st, 2007, 4:01 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
Yes, a week or so before. And definitely now.

2. Did you have an illness prior to the first event?
Yes, started flu like. Went away. Then dissyness. Fasics came and dissyness lingered for a few months.

3. Had you had any recent surgery?
No

4. Had you over used the muscles in the affected area prior to the twitching?
Yes, had been running a lot prior. Ironically had just gotten into decent shape.

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
Relux and Heartburn; seems to dissappear when I drop 30lbs. Eating bread without something else seems to lead to reflux.

6. If so, do you take any medication for the above?
Self medicate Prilosec.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.


8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?


9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Diabetes both sets of grandparents - father pre-diabetes.

10. Do you suffer from allergies or any other minor autoimmune disorder?
Mild to moderate asthma
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Postby Nic on October 3rd, 2007, 5:32 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching? NO
2. Did you have an illness prior to the first event? YES. Headache like hell for 2 days, remaining on one side for weeks (-> first MRI). After 1 month: Eyelid starts tickling. Another month: Calve left buzzing. Soon after that is was everywhere; but the headache was gone
3. Had you had any recent surgery? HM... Got a wisdom tooth extraced some weeks before and in deed some little local infection there
4. Had you over used the muscles in the affected area prior to the twitching? NO
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? YES, hiatus hernia -> reflux -> heartburn -> esophagitis
6. If so, do you take any medication for the above? YES, diagnosed ~8 months before by gastroscopy -> take pantozol 20mg (protonpump blocker), sometimes anti acida, too
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.NA
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?NA
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)NO
10. Do you suffer from allergies or any other minor autoimmune disorder? YES. Due to the latest examinations I know now that I am allergic to cat+dog hair and dust mites - Well didn't notice it while having dog + cat for 16 years ;)
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survey reply

Postby jackalgel on October 15th, 2007, 5:21 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
It didn't really occur to me until recently, but I have been running 20 miles a week and lifting light weight weights since Jan. 07 twice a week and always wondered why I was so sore between days. I'm not a powerlifter and I'm in great shape so it didn't make sense. Started twitching July 07.

2. Did you have an illness prior to the first event? No.

3. Had you had any recent surgery? No.

4. Had you over used the muscles in the affected area prior to the twitching? Twitching started in my tongue. Yes, I talk too much. Other than that I now twitch all over and I don't think I overuse muscles.

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? My son was diagnosed with Crohn's Disease 4 years ago.

6. If so, do you take any medication for the above? No.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. No.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? Not applicable.

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Yes - Crohn's Disease - my son.

10. Do you suffer from allergies or any other minor autoimmune disorder? No.
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Postby terry in sf on October 16th, 2007, 2:11 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?

Soles of my feet were sore - thought I had a running injury.

2. Did you have an illness prior to the first event?

No.

3. Had you had any recent surgery?

No.

4. Had you over used the muscles in the affected area prior to the twitching?

I think so - too much running & walking without taking days off and not stretching or cross-training.

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?

IBS which is controlled by a high fiber diet. If I deviate from it I have problems.

6. If so, do you take any medication for the above?

No meds. Was prescribed Bentyl at one time but didn't take for long.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.

No - for 1-1/2 years more than 25 years ago.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?

I can't pinpoint an exact correlation though I also think I am in perimenopause, so don't know what's related to what.

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)

No.

10. Do you suffer from allergies or any other minor autoimmune disorder?

Hay fever, reaction (stomach upset) to erythromycin antibiotic.
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Postby onewaylife4all on October 16th, 2007, 9:12 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?

--Not really prior to it, no. These things do seem more prevalent now however.

2. Did you have an illness prior to the first event?

--Actually not really. I got shots for rabies about a month before and got what seemed to be the flu about a week after that, but then I was pretty healthy for awhile until the twitching started.

3. Had you had any recent surgery?

--No.

4. Had you over used the muscles in the affected area prior to the twitching?

--Not prior to when my twitching in general started, but now, yes when I exercise or use specific muscles it does seem to induce twitching.

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?

--I haven't been diagnosed with these, but I strongly suspect that I may have some form of acid reflux, namely LPR.

6. If so, do you take any medication for the above?

--No

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)

--Nope.

10. Do you suffer from allergies or any other minor autoimmune disorder?

--I guess every now and then I'll sick from allergies, but it isn't anything that I am constantly suffering from.
You don't have ALS.
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Postby mikey35 on December 19th, 2007, 12:33 am

1. Did you notice "muscular" pain or fatigue prior to the twitching? NONE
2. Did you have an illness prior to the first event? Most unusal, but contacted oral Thrush -- very rare as a male adult -- and that freaked me out as it is commonly seen in aids patients.
3. Had you had any recent surgery? no
4. Had you over used the muscles in the affected area prior to the twitching? no
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? NO
6. If so, do you take any medication for the above? NO
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. N/A
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? N/A
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) NO
10. Do you suffer from allergies or any other minor autoimmune disorder? NO
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Postby Kris61 on December 30th, 2007, 5:43 am

1. Did you notice "muscular" pain or fatigue prior to the twitching?
No

2. Did you have an illness prior to the first event?
No

3. Had you had any recent surgery?
Yes - herniated disk L/5-S/1 8 months earlier

4. Had you over used the muscles in the affected area prior to the twitching?
No, but had just started to work out again after a 2 month break

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
No

6. If so, do you take any medication for the above?
-

7. Females - are you on or have you been on any hormone replacement
therapy or oral contraceptives for an extended period of time.
Have taken oestrogen for 6 years due to hysterectomi.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
-

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
No

10. Do you suffer from allergies or any other minor autoimmune disorder?
Hey fever in summer
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