I had one of those "crazy days" where you doubt everything in regards to our symptoms. I made the big mistake of looking at other websites....hummmm, ALS came up (gee, some surprise) and one thing led to the other to the other and by the time I was ready to go to bed last night I was sure I was seriously ill with an undiagnosed neurological disease. I DID NOT practice what I preach....TMF ....too much information, in all the wrong places.
My mind was racing all day about my impending death, as I was sure I suddenly didn't fit the BFS description. We had relatives from out of town all day and tonight, so I had to be "on" all day. God, I hate the worry that creeps up with the fasciculations. And guess what, I twitched like crazy all day.
Just venting, I can't share this with others, they all think I'm fine and say I worry too much, which I do.
Do any of you get this nutty feeling at times that shakes the foundation you've been working so hard to build?
Just feeling a bit unsure. Thanks for listening. I love all of your posts, they are so helpful to me.
Sue
Other than the fact that we all twitch, some are more often than others. I for one, almost never get twitches in my calves but they are non-stop somewhere else on my body at any given time. It may be my thumb, my thigh, my lips, inside my stomach, my temples, behind my ear, inside my elbow, my butt cheek or anywhere. Eithe rone at a time or 3 or 4 places all at once. You just never know. The twitches most everyone gets are all different in caliber, such as some are so small and fine that at times you might happen to look at your arm (or finger or where ever) and see it slightly rippling, but not feel it. Other times they are really fast and cause a "buzzing" feeling while other times you might feel one big thump and then it's gone. Sometimes you may get the finger that moves - holds in place - and then releases and with BFS fingers can wiggle, jump, vibrate and do all sorts of things for less than a second to lasting for weeks and even months. It all just depends, so please don't worry about your fingers moving. It will pass sooner or later and remember, this is BENIGN and has NOTHING to do with ALS, nor is that even a sign or the same kind of twitching that goes along with ALS. I can look at my fingers at any given time and one or more of them are either slightly wiggling or moving pretty good with a wiggle here and a thump there... that's the only "norm" to this stuff.... there is no norm.