Ubelievable story

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Ubelievable story

Postby Pole on July 11th, 2003, 7:32 am

For those who have never visited braintalk forum:

There is a guy AndreJ, he's 44 and has symptomps similar to ours ones.
His 1st EMG (only one limb) showed denervation. His second EMG showed denervation in all 4 limbs. All other test (like blood etc) were normal so docs ruled out other dideases.
He almost got an ALS dx, but (like always) has been told to take second opinion in ALS department of another clinic.
And what? Neuro exam clear - ALS specialist confused and decided to do 3rd EMG. What a surprice - clean from denervation - he found only fasciculations. Diagnosis - BFS!

AndreJ was born again.

I think there are two possibilities:
1. 1st and 2nd EMG was screwed up (the same neuro did both)
2. In very rare cases people recover from ALS (or another way: ALS rethrets). Maybe it's that case?

regards
Marcin
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Re: Ubelievable story

Postby KERRI on July 11th, 2003, 7:46 am

Pole wrote:For those who have never visited braintalk forum:

There is a guy AndreJ, he's 44 and has symptomps similar to ours ones.
His 1st EMG (only one limb) showed denervation. His second EMG showed denervation in all 4 limbs. All other test (like blood etc) were normal so docs ruled out other dideases.
He almost got an ALS dx, but (like always) has been told to take second opinion in ALS department of another clinic.
And what? Neuro exam clear - ALS specialist confused and decided to do 3rd EMG. What a surprice - clean from denervation - he found only fasciculations. Diagnosis - BFS!

AndreJ was born again.

I think there are two possibilities:


My opinion, the first set of emgs, were not entirely accurate, and the last one was, you should never get all of your emgs with the same individual.

Kerri
1. 1st and 2nd EMG was screwed up (the same neuro did both)
2. In very rare cases people recover from ALS (or another way: ALS rethrets). Maybe it's that case?

regards
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Postby Arron on July 11th, 2003, 2:11 pm

Pole, didn't you see the post where someone showed a study taken with patients presenting with documented neurological problems and over half of them recovered or never went-on to develop any worse symptoms? The general outlook was that some people just get strange neurological things sometimes that are unexplained but don't nesessarily progress onto anything bad or mean ther eis any "disease" present.

I have also been saying the same thing about EMG's, like in carols' case and several other's. Doctors are human, they can misread an EMG or the equipment might not be up to par or calibrated or the doctor just wasn't paying attention or was in a hurry or whatever, and many other circumstances that "could" explain why this happens sometimes, AND there have been cases where people that were thought to have all out ALS, simply recovered.

The fact of the matter is, all of the data still points in our direction that as long as we don't show any REAL weakness or any other nasty signs, what we have is about 99.999% benign.

I can't think of anything better that could point in our direction than that, other than not having twitches in the first place, and even then, your chances are still 1 in 100,000 if you're over 50... You have a bettr chance of dropping dead from a heart attach than that :-)
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Postby tlotoxl on July 11th, 2003, 3:23 pm

what's with the censoring of words containing c*u*m. no documents? no cumulative evidence? some program's a bit trigger happy.
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