Back after quite a while

[Englishtwitcher]

Hello I've been absent from this forum for a few years now but recently have had my anxieties flare up. Still twitching and have been for nearly 4 years. Had all the tests at the beginning and all fine and have just accepted it all

However since the summer I've admittedly had a lot of stress but I started noticing that my post nasal drip was back with a vengeance. It calmed down but recently has come back and I've now got a situation where I've scared myself stupid. Everyone I drink or swallow my nose feels like its cleared because I've put nadal spray up it. It's the left nostril and I know I have a bad deviated septum on this side. I then did the stupid thing of drinking saffron coloured water and shoving tissues up my nose to see if I have nasal regurgitation and there was a tiny dot of yellow on the tissue. I'm beside myself as I'm now convinced this is it and I've got the dreaded. Everything I read says that nasal regurgitation is only caused by neurological issues. Is thus true? I've had post nasal drip and allergies all my life and I know that my nose is very sensitive at the moment. Could I have had this all my life but I'm just sensitive to it at the moment. Please....can anyone give me some reassurances. Thanks

[Englishtwitcher]

Can anyone relate? Please I'm going out my mind with worry.

[Josmo]

Hi
You should join the Facebook group BFS recovery support group. This forum seems dead not much people here anymore. I'm 100 % it's nothing neurological!

[Englishtwitcher]

I am a member there but was hoping others may reply on here. Yes the forum seems to have died down quite a bit.

[Arkansan]

Yeah sadly this forum is a ghost town.

As to the tissue test you did, where did you hear of that? Is that even an acknowledged way of testing for nasal regurgitation?

[Englishtwitcher]

Well I figure if liquid is coming back up and reaching my nose the dye will show up. Out of may ties it's only possiby shown up as a micro dot once or twice. GP thinks I'm mad and said he gets water up his nose sometimes. I just want some reassurance but obviously as it is a proper flag for neurological problems no one has had it which means I'm really screwed.....

[Englishtwitcher]

Well I figure if liquid is coming back up and reaching my nose the dye will show up. Out of may ties it's only possiby shown up as a micro dot once or twice. GP thinks I'm mad and said he gets water up his nose sometimes. I just want some reassurance but obviously as it is a proper flag for neurological problems no one has had it which means I'm really screwed.....

[Arkansan]

[Englishtwitcher]

Bless you! Thanks for doing that. What colour is the juice? I thought it was red! I've gone so mad this week. I even put blue food colouring into water to see but no dye came through. I'm trying to stop doing it as it is properly driving me crazy. When I asked my husband to try it he refuses as he thinks he's just encouraging me. I wish he would as then I can compare.

I read on here a post by Litter Lost who used to do this and she always had dots which were worse when she had inflammation. It's the thing that's keeping me going.

[Englishtwitcher]

Still not calming down. If anything its getting worse and my testing is too. Have trawled this site for answers and it appears some have experienced this before. I've messaged little lost and twitchy doc but neither have responded. Feeling very lost and alone.

[Arkansan]

[Englishtwitcher]

Arkasan you are keeping me sane. I've been twitching 4 years and have ups and downs but I feel like I'm about to disappear down a rabbit hole. I've been drinking so much and testing it's laughable. Sometimes it's wetter but still really hard to know whether it's mucous or the liquid coming back up. I'm hoping we all have a certain amount that we DON'T notice but I do get because I'm sensitive and actually it's normal but I goigle it and nowhere does it say it's normal.

[Arkansan]

[TwitchyDoc]

Interesting, I have the same issue.

Two things:

1) There is a condition called gustatory rhinitis, which might be triggered even by drinks.
2) Dye test is a reliable one when you see a lot of coloured mucus on the tissue. You have to realize that when you drink, the mucosa in your throat is covered by residual material. If you blow your nose forcefully, the material is simpy sucked up in the nasal cavity in tiny amounts - and can appear on the tissue.

While true nasal regurgitation is usually neurogenic (if not caused by morphological cause), patients often have liquids actually dripping out of their noses. Blowing nose in those cases results in striking amount of liquid mixed with mucous on the tissue.

[Englishtwitcher]

Hi TwitchyDoc thanks so much for the reply. I never have anything come through except that one time when I saw the dot of saffron but to be fair I'd been blowing and snorting lots before then. The feeling seems to come and go and I've never had water dripping out my nose. My soft palate looks normal according to the GP

I think it's more sinus related as my sinuses keep clearing and unclearing and I can feel them clicking. My speech is normal and my voice is too. I've stuffed so many tissues up my nose that my nostrils now do sting so I've started using a sterile seawater wash to calm it down.

I'm trying not to think about it too much. What a mess....