12-years and counting…

BFS Online Support Group

Moderators: JohnV, Arron, garym

12-years and counting…

Postby zenseo on August 30th, 2016, 10:04 pm

I think it's been over four years since I have logged in, so I decided to come say "hello." Life is great - much has changed. The one thing that hasn't is my constant fasciculations. I had a decent year with few hot spots and facial twitches that ended last November and I have been twitching incessantly ever since. I am still only bothered by the facial ones, and lately there are many. This forum saved me in 2004. BFS sucks and can be exhausting, but you will survive.

Take good care friends,
Sean
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Re: 12-years and counting…

Postby johnnythejet on August 30th, 2016, 10:30 pm

Good to hear from you, Sean. Thanks for checking in.
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Re: 12-years and counting…

Postby garym on August 30th, 2016, 10:32 pm

man, good to hear from you Sean....so glad to hear that you are doing well, sorry about the recent up tick in sxs. it's a cycle, and will change again. Just an fyi, this site is dead. JohnV stopped approving new members a year or so ago, and the place has been slowly dying ever since with no new members. I stop by every few days just to check in and wish things were different. Thankfully there have been some other sites pop up and I think a facebook page, so unlike when we started there are at least a few options for newbs.

great to hear from a really "old timer". Thanks for the update!

Gary
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Re: 12-years and counting…

Postby zenseo on August 30th, 2016, 10:37 pm

Great seeing two familiar faces again! Hard to believe it's been over a decade, eh?

I am also somewhat active on the FB groups, but AboutBFS will always be the trailblazer.
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Re: 12-years and counting…

Postby Strive on August 31st, 2016, 7:32 pm

Awesome to hear from a 12 year veteran. Big thanks Zenseo!
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Re: 12-years and counting…

Postby seanrblock on December 12th, 2016, 10:51 pm

Hey Sean. I also am around 12 years now and lots of members here joined the BFS recovery Facebook group. Anyone who wants to continue helping others or just wants to talk is more than welcome to join. Hope to see some people over there!
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Re: 12-years and counting…

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