Feeling really bad lately ... is it normal what I am saying?

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Feeling really bad lately ... is it normal what I am saying?

Postby will97 on January 8th, 2016, 1:31 pm

Hi everyone, I hope that you are all well. Happy New Years to you guys.

I post here mostly when I need reassurance and when I have some new symptoms arising. Sorry for posting again ...but I am sure that we all have our moments where we need to reach out.

I have a question, do you guys think it’s normal for people like us (BFS’ers) or as my neurologist calls my condition «peripheral nerve hyperexcitability» to twitch in multiple locations all at the same time (not instantly but like one second it’s the thigh, the next second the deltoid, then the eyelid, back to the thigh, back to the deltoid, then the shin, etc.) … and to add to that, I have been having intense buzzing and burning sensations in my thigh … and too add to that, my toes are getting numb and I am having severe pain when I am walking and I feel them numb when I am sitting down or even walking. I also have them simultaniously as well (2 areas or more twitching at the exact time). Are these normal? I read on this forum that in ALS twitches, you cannot twitch at 2 places at the same time ... the muscle twitching will twitch until the muscle dies and then it will move to another area. Is this true? Is it a fact or just a myth?

I want to point out that all of the above have now been lasting for about a week and it is getting worse (more symptoms) each day and ALL OF THE TWITCHES, NUMBNESS, TINGLING, ETC ARE ON THE LEFT SIDE ONLY

Thanks for your responses .. I am feeling very worried and my «moral» is on the low and getting worse by the day.

Will
Last edited by will97 on January 8th, 2016, 1:39 pm, edited 1 time in total.
will97
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Re: Feeling really bad lately ... is it normal what I am say

Postby Dutchess on January 8th, 2016, 1:36 pm

I can twitch in so many places at once it is unbelievable. If it lasts long enough ( like days or weeks ) it can make the area very tired also . Like now my hand , my left shoulder and both calves just or are twitching
BFS since 1972 age 10 : Twitching every single day somewhere ever since.
Appear to have inherited it from my father and have now learned that 3 of my 6 kids have it . It drives them nuts TOO!!
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Re: Feeling really bad lately ... is it normal what I am say

Postby Scaredlin on January 8th, 2016, 8:13 pm

YES....
And remember tingling, numbing not part of *LS
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Re: Feeling really bad lately ... is it normal what I am say

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