Still waiting...increasing pain

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Still waiting...increasing pain

Postby reanne2489 on October 16th, 2014, 8:45 pm

Hi all,

Still awaiting a neurologist's accurate translation of my EMG from over a week ago...frustrated is not the word!

I just wanted to ask, in the mean time, that whilst I know BFS can be accompanied by pain...I don't really know how to describe the pain I am experiencing.

Like I said, my left calf is a 24/7 hotspot- from the moment I wake to being asleep it is twitching. Now I keep finding that the sole of my left foot, the tendon at the heel of my foot and left calf is v painful. It sometimes gets a sense of a stabbing pain, but mostly it is a aching/ strained pain.

I haven't done anything to have caused it. I went to my physio to discuss these sensations. Like I said before, this left leg is a little thinner than my right [noticeable if pointed out] and the knee feels under strain. The physio looked at my pelvis and decided it is out of alignment- not just lower on one side but also out of rotation on the left. So she gave me some stretches to do, so I will try that and see if that helps anything...but would this lead to hurting right down to my sole?

Also, my twitching has increased- like I said, I get worried cause the twitching in my left leg is constant. But I do get some twitches in my right leg too. But I have found that I am getting many more twitches/ spasms in my left abdomen, left bicep and my chest and shoulders [perhaps also neck]

Should I be worried that the twitches are more prevalent in one area and one side of my body? Also is the pain I'm experiencing typical of BFS?

Thanks
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Re: Still waiting...increasing pain

Postby Yuliasir on October 17th, 2014, 12:37 am

no you should not worry about this, as BFS is often more tended to have unilateral manifestations or at least with the prevalence of one side.
Look, your issues seem to be clearly of kinematic/postural nature, as you describe them. There are some studies saying that conditions of dentofascial musculature are in correspondence with the foot position and posture, so how do you chewing might affect your gaiT and vice versa (due to kinematic connection between head posture, spine, neck, and then downward to the lower legs and feet. Surely pelvic distortion and rotation will lead to pains in the sole, as this affects the whole leg system, tendons and muscles. Pain that you describe definitely indicates muscle strain, and without neurological reasons like hypertonus due to motor cortex lesions (whch you seem not to have according to previous tests) it could be only due to muscle kinematics, whihc is affected by improper shoes, excessive load (including worlouts), circulation issues, anxiety tension etc. etc. Those problems usually develop slowly but after a certain threshold pain becomes continous and thisngs are getting worse and worse until corrective solution would be found.
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Re: Still waiting...increasing pain

Postby reanne2489 on October 17th, 2014, 3:22 am

Thank you.

I think you deserve an award for your dedication to this board and allaying people's fears.

It's just with days like today when my foot and leg feels pain that I get anxious...I know in a way I should be grateful as I know pain typically points away from ALS.

I'm just frustrated as yet again my doctor email to say he and the neurologist he is consulting cannot seem to work out my EMG results...I really don't know what the problem could be...I am trying to be positive and presume that if it's hard to read it may rule out more serious things, as clear indications of denervation, fibs or MUPS would be indication of a form of MND.

If it's slightly smaller abnormalities I hope that's just fasciculations, or perhaps Isaac's syndrome. I don't know...The hospital I went to that did the Chinese report and the shoddy english report does have ALS specialists, so I'm hoping despite their lack in language skills, they would have been able to indicate somewhere that there was a problem with motor neurons or whatever.

My physio suggested I see an osteopath to see if they can figure out what might be causing the pain in my foot and knee. Fingers crossed it is just postural/ alignment issues building up over time that has caused the size difference, and that the twitching just happens to be focused on the left side, and it is not, infact, atrophy.
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Re: Still waiting...increasing pain

Postby reanne2489 on October 19th, 2014, 3:59 am

Finally got my EMG results after a different neurologist in Hong Kong translated the Chinese report. It has come back normal/clean which is obviously great and has been a big sense of relief. I think now I either just need to accept that the pain in my leg where the muscle twitching is most focal is that it's either a BFS symptom or it's down to the pelvis misalignment problem I have.

Below is my doctor's email:

I sent the report and the whole EMG to another neurologist that we work with in Hong Kong. He says that the EMG is normal. This is what he writes:

The abnormality referred to abnormal spinal cord conduction by SSEP because of the reporting doctor considering low responses amplitude.
From the diagrams in the report, I would not conclude as such. Amplitudes was on low side for left peroneal sensory (p3), left posterior tibial sensory (p4) because of baseline artefact. On p10 the low cortical amplitude (top tracing) was comparable to the lower 2 tracings, indicating just a suboptimal display sensitivity issue.
I think the NCS and SSEP response was normal.


So in conclusion: everything normal. I hope you’re reassured now. As we have discussed neither Michael Couturie nor myself could find any abnormalities on physical examinations. We have done extensive work ups (neurological examination, MRI, EMG) that were all normal. I think that it’s time now to stop worrying about it. Do you think you can? Is there anything I can do for you now? Do you have any remaining questions?


Does anyone know what the sensitivity issue may mean if they have had multiple EMG's in the past?
Also after 5 weeks of solid twitching this EMG should be a good standard to go by for a lack of denervation as in ALS.

Are there any other conditions where twitching, muscle wasting and pain are symptoms?

Thank you!
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Re: Still waiting...increasing pain

Postby Yuliasir on October 19th, 2014, 4:11 am

Good to hear that finally your EMG report appeared to be normal :)
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Re: Still waiting...increasing pain

Postby RIno468 on October 19th, 2014, 11:47 am

congrats on the normal EMG. I would do my best to not worry anymore and see if the symptoms get better on their own.
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Re: Still waiting...increasing pain

Postby Nytviolet on June 4th, 2015, 4:35 pm

My name is also Ree Ann (diff spelling). I'm so happy that your EMG was normal... I've never had one before. Hope that you'll be worry free
2 Timothy 1:7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.
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