Comments about my revised symptoms?

Information about how to manage or reduce the severity of BFS symptoms

Moderators: JohnV, Arron, garym

Comments about my revised symptoms?

Postby misterjuanperalta on March 9th, 2015, 3:49 pm

Hi,

Please comment, and opine.

viewtopic.php?f=5&t=20814&p=156544#p156544

Thanks
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby Buzznerd123 on March 11th, 2015, 1:06 pm

.
Last edited by Buzznerd123 on May 1st, 2016, 12:06 pm, edited 1 time in total.
User avatar
Buzznerd123
Selfless giver of time
Selfless giver of time
 
Posts: 114
Joined: January 5th, 2014, 2:37 pm

Re: Comments about my revised symptoms?

Postby misterjuanperalta on March 11th, 2015, 4:37 pm

DX by doctor. The myotonic dystrophy was an impression by doctor, not a firm diagnosis.
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby Buzznerd123 on March 12th, 2015, 4:58 am

.
Last edited by Buzznerd123 on May 1st, 2016, 12:06 pm, edited 1 time in total.
User avatar
Buzznerd123
Selfless giver of time
Selfless giver of time
 
Posts: 114
Joined: January 5th, 2014, 2:37 pm

Re: Comments about my revised symptoms?

Postby misterjuanperalta on March 12th, 2015, 5:58 am

Yes. USA. Going to Mayo Clinic soon.
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby BFSBurger on March 16th, 2015, 9:21 pm

Buzznerd123 wrote:this is extremely severe stuff, are you for real with these diagnoses?


There's a couple people here (i forget the guys name now) who had stuff so severe that he was sleeping on his wood floor with his arms and head pinned down with weights just so he could sleep.

So I guess BFS comes in quite a spectrum of severities.

I wont tell you what changes he made that helped his symptoms. I dont want you to roll your eyes. But he did post that he was making progress. Never saw such a bad set of symptoms in my time on here.

-B-
How I resolved my BFS within 1 year of onset:

viewtopic.php?f=3&t=19128
User avatar
BFSBurger
Saint
Saint
 
Posts: 852
Joined: October 3rd, 2012, 10:19 am

Re: Comments about my revised symptoms?

Postby Buzznerd123 on March 17th, 2015, 5:14 am

.
Last edited by Buzznerd123 on May 1st, 2016, 12:06 pm, edited 1 time in total.
User avatar
Buzznerd123
Selfless giver of time
Selfless giver of time
 
Posts: 114
Joined: January 5th, 2014, 2:37 pm

Re: Comments about my revised symptoms?

Postby misterjuanperalta on March 17th, 2015, 6:52 pm

The myotonic dystrophy DX has to be evaluated because it was a clinical impression. It was not a firm, definitive DX.
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby Buzznerd123 on March 18th, 2015, 5:56 am

.
Last edited by Buzznerd123 on May 1st, 2016, 12:06 pm, edited 1 time in total.
User avatar
Buzznerd123
Selfless giver of time
Selfless giver of time
 
Posts: 114
Joined: January 5th, 2014, 2:37 pm

Re: Comments about my revised symptoms?

Postby misterjuanperalta on March 18th, 2015, 10:48 am

Affirmative, in the Temporal area, positive sharp waves.
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby Buzznerd123 on March 18th, 2015, 11:26 am

.
Last edited by Buzznerd123 on May 1st, 2016, 12:06 pm, edited 1 time in total.
User avatar
Buzznerd123
Selfless giver of time
Selfless giver of time
 
Posts: 114
Joined: January 5th, 2014, 2:37 pm

Re: Comments about my revised symptoms?

Postby misterjuanperalta on March 18th, 2015, 11:58 am

This site seems to hint to it.

"We reviewed the notes of patients seen between January 2010 and February 2012 in two hospitals in Greater Manchester, England, who had been tested for the presence of VGKC Abs, following presentation with ‘unexplained adult onset epilepsy.’ This was defined as focal or unclassified epilepsy, with onset in adult life in patients with no history of cerebral insults and no epileptogenic lesions identified on MRI scanning using appropriate imaging protocols."

Source: http://www.sciencedirect.com/science/ar ... 1113001830

Regards
misterjuanperalta
Saint
Saint
 
Posts: 515
Joined: August 21st, 2014, 7:27 am

Re: Comments about my revised symptoms?

Postby BFSBurger on March 18th, 2015, 9:55 pm

Buzznerd123 wrote:I think the most dramatic improvement was suziq, she was messed up with suspicion of MS and now she's symptom free.

Yup. Who do you think I got 50% of my direction from on how to recover from BFS? Surprise. Not kidding dude. Partially because my entire symptom-set was MS-esque as well. Almost to the "T". I can't quite remember, but that may very well be why I contacted her in the first place. Even my doctors told me I probably had MS.

Remember when I told you that I don't know one person here who is symptom-free and "doesn't know why" ? She was one of the main people I had in mind. She knows exactly what she credits her recovery with. She took some major steps. And I took her advice to heart, and it worked. Chrissy is another who has come a million miles from her worst days, and I believe she is virtually symptom free, if not 100% symptom free at this point. She has the most brilliant advice of anyone on here. She now helps others to recovery. And has had significant success doing so.

What I've noticed overall is that people that improve dramatically do so in the first year or two after symptom onset, you included, but that might be just my impression.


I think that's true. There is definitely an initial worsening, along with a severe period for most, which is followed by a lesser severity. I truly feel that it's what you do during that acute phase, and the months following it, that can play a role in where you end up at the 2-4 year mark.

-B-
How I resolved my BFS within 1 year of onset:

viewtopic.php?f=3&t=19128
User avatar
BFSBurger
Saint
Saint
 
Posts: 852
Joined: October 3rd, 2012, 10:19 am

Re: Comments about my revised symptoms?

Postby pbohan on June 23rd, 2015, 7:32 pm

pbohan
Selfless giver of time
Selfless giver of time
 
Posts: 172
Joined: April 14th, 2011, 5:39 pm

Re: Comments about my revised symptoms?

Sponsor

Sponsor
 


Return to Symptom Management

Who is online

Users browsing this forum: Bing [Bot] and 5 guests