by German2 on February 6th, 2015, 12:58 pm
final update: I left the hospital.
I had the final talk with the chief neurologist who lead all my investigations. He said, neither als nor ms would be the case. All of my nerve checks were ok, apart from the sulcus ulnaris left side. No need to worry. Nothing to be found on the neurological side (though no EMG was made). So if I would have pain, it must be something else. f.ex rheumatic.My paralysis would have been due to the ostheopathic treatment. It was a kind of functional black out and happen from time to time. The neuro also told me, he has himself such twitches under his feet, the same like me. Especially after a run. And many bodybuilders do have those twitches...Nothing to worry about. He also told me persons with als would have a special habitus. And I don't have that habitus. That's what many neuros mean by saying...they can recognize an als when it walks through door... I know he is an excellent neuro, very intellectual, 40 years of experience and he diagnosed one of Germanies' famous painters with als many years ago...So I really think I can trust him.
Ok, I am not in a party mood now. That was one of the hardest weeks in my life. It was not me who mentioned the als/ms suspect. It was on my patient folder, underlined. My fear lasted until the very last day...and know I feel stress falling from me, but I also feel very very exausted. And all the fear is still in my brain...
But I have to learn taht, whatever it is causing my pain. It seems that it is nothing from which I will die in the next years....But I felt very close to this during this week.
I really hope my neuro journey has come to an end...I have to look for some other reasons for my pain which of course is still there..
Thanks to all of you, who shared some thoughts with me, especially during this very hard week. Hope none of you have to go through this..It was the first time, a (young and maybe not so experienced) neuro in the ER suspected me to really have als ...and I hope it was the last one. It felt like a really big show down in the end.
I think I will stay apart from this forum now for a while...though not knowing forever....My special thanks to yuliasir !!!! and also Xina, buzznerd, nrwtwitcher and a lot of others who supported me.This is a grea forum!!