leg was "offline" - they keep me in hospital..

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leg was "offline" - they keep me in hospital..

Postby German2 on January 30th, 2015, 8:00 am

Hi there,

today I experienced my biggest fear: Suddenly I could not feel my right leg anymore. I tried to get it on the floor...foot plashed on the floor. I could not even raise my toes...this lasted for a few minutes and then went away...

Furthermore:
I sent in my pictures of wholes in my hand to a center for rare desease. They told me it looks like fat and/or muscle atrophy and it could be neurological or autoimmune related and I should send in my reports.
Every night my hands (4th and 5th finger mostly) went numb completely. I have strong neuropathic pain in arms meanwhile.
Twitching since 19 month (but mainly in feet), symptoms since 2,5 years...

What is accompanied with temporary paralysis? I am for a lumbar MRI at hospital this afternoon, because of tingling in my left foot. By I suspect this is due to my lymphedema. I will visit the ER for a Neuro....It was so scary. I don't want anyone to experience this....

Any ideas?

German, expecting to facing the worst...
Last edited by German2 on January 30th, 2015, 4:35 pm, edited 1 time in total.
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Re: leg was "offline"

Postby German2 on January 30th, 2015, 3:46 pm

I went to the ER....a d they keep me in hospital. There are some findings not ok...esp. allodyny left hand. Hyperreflex left hand and s.th with my mouth corner...asking for als she said maybe 5% chance. And she would find it exciting....i feel like *beep*!!

Is spontanous paralys happening in MND, lasting for several minutes and then go away? Doesn't neuropathic pain not pointing into another direction...? And my mouth? It is true, that I have facial twitching sometime. But not my tongue...This was by far the worst day of the last month. I started to read the "Healing Codes" though I do not belive in spontanous healing of Loug Gehring Syndrom which is described there...but what do I have to loose...
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Re: leg was "offline" - they keep me in hospital..

Postby Yuliasir on January 31st, 2015, 1:38 am

we had here a fellow with spontaneous paresis of the leg miscles lasting for several minutes but it ws during the running on hard surface, which appeared to be known consequences of improper running styles/shoes and had no consequences.

Sorry to read you have such a bad days.

With one side problems from top to bottom (from face to leg) I would rather think about something like mini-stroke (which is possible even in young people least to say on our age).
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on January 31st, 2015, 4:01 am

Dear Yuliasir,

thank you! Yes, a friend of mine hat a severe stroke at the end of her twentieth....I don't know. Maybe then it was not my first stroke, for I had thes speech paralysis for one and a half year for more than an hour..But in context with my other problems (chronic nerve pain, hands falling asleep as soon as they lay down somewhere for longer time) I think it is s.th. with my nerve system. The young neuro saw also my Raynaud (thumbs went white) and was with me, that it could also be autoimmune related.

But she knocked me out with the sentence that she would be very interested in having an als patient on board...I should come on Sunday to check in. I would not go, if I wouldn't know that in this hospital there is a really good EMG specialist and he would check me from head to toe...

And I will finnish my application for the center of rare deseases to get an appt. from them...

I really hope that I am not your next fellow who was haunted down....

Is there any other desease connected with temporary paralysis? (I was laying down on a couch and had a osteopathic treatment while this happened. And the leg did not feel numb or so. It did feel like nothing...It was soo scary....Something similar happened to me with left arm in one night some month ago. I woke up and could not move the arm further than a certain point. But it did not happen again...

I will proceed with my "healing codes"...
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on January 31st, 2015, 4:24 am

I am astonnished....I received an email from the center for rare desease today, on a Saturday. They made a first brainstorming and had the strong idea of Multiple Sklerosis! Wow...I have no emotion regarding this diagnosis..
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Re: leg was "offline" - they keep me in hospital..

Postby Yuliasir on January 31st, 2015, 7:36 am

well, MS fits for the temporary paralyses by the way. But usually those paralyses last for few days, not minutes. however, on my point of view, it is still possible.
This diagnosis still needs confirmation which takes weeks and months due to need to see lesions on MRI. But good is that it is treatable for now and each year brings new possibilities.
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on January 31st, 2015, 3:35 pm

In September 14 I had just one lesion...I think they will make a further MRI and Lumbar puncture to check...As long as they do not find mnd I will not be shocked...I know this hospital has diagnosed one of Germanies most famous als patient, who was a painter. So they might be experienced. But of course I don't want to fit into that pattern.
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Re: leg was "offline" - they keep me in hospital..

Postby Yuliasir on February 1st, 2015, 1:30 am

I missed up completely that you were having osteopathic treatment at the moment of losing your leg for a while. Then it has much better explanation: did you todl to your osteopath that you are hypermobile? It is HIGHLY possible that he or she just moved your hypermobile vertebrae in a way so that it compressed the nerve root completely ans you had no further electrlcal transmission so you "lost' your leg. becasue it was temporary and your vertebra just moved back again, your leg was back with you in a few munites.

Highly hypermobile people should be VERY cautious with any manipulations on the joints and vertebrae. Practically any people should be cautious with osteopathic manipulations as they are performend in a blind way... but hypermobile people are a special cathegory.
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on February 1st, 2015, 2:29 am

Hi Yuliasir,

normally my ostheo is not moving me somehow. He is just more pressing somewhere. It is a very energetic work. Ok he moved my throat spine a bit and my throat spine is also hypermobile as I know since a few days from an orthopaedist. Also my shoulders. It "could" be an explanation. Yes...But as my shin splints are painful since a long time, I more believe it is from my nerves...But yes...it is one further option. Thanks a lot!
Thank god, I had a 15 km walk in the nature yesterday without any coincidences. Just my hands are hurting more and more since I have this neuropathic pain...Today I check in in hospital...I see what comes out.
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Re: leg was "offline" - they keep me in hospital..

Postby Yuliasir on February 1st, 2015, 4:45 am

practically it should be a lumbar spine to give you leg paresis. But if your throat spine is hypermobile, same should be your lumbar region, and the age makes the ligaments etc. even more weak so its mobility might even increase. Look, when MS patient experiences paresis due to lesion, the interruption in the neural conduction lasts ususally for several days/weeks, as long as the inflammatory process lasts, and when it stops, with the time certain mobility is restoerd etc. Becasue your paresis was lasting for a few minutes after you raised up from the supine position, one may suppose you have local and very transient damage, consistent with the movement of your vertebra.
I am not a doctor but what I know about nervous system function allows me to speculate in the following way: motor function is mediated by both motor cortex in the brain and by the local nerves coming from the spine. Brain pathologies (lesions, degradation, stroke) are usually accompanied by permanent loss of motility and are painful due to interruption of reflex arc in such a way that tesion becomes predominant (spastisity paralysis). Spine lesions causes also more or less permanent damage, but they are usually painless becasue disruption of the neural conductivity at the spine level causes so called weak paralysis, or paresis, and it is exactly what you felt - no pain, no numbness, just the leg does not exist any more for your brain becasue the brain does not feel signals from the spine. But, becasue your paresis was lasting exactly a few seconds or minutes, harldy it could be a myelin lesion, it should be something very reversible, like momentarily physical interruption, like something to switch out the nerve root, and this could be physical movement of the vertebra, on my point of view. So let's wait and see what doctors may figure out of your next MRI and spinal tap.
And I am happy to read you had 15 km walk (I personally hardly could walk a five in a row due to sedentary way of life).
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on February 1st, 2015, 9:58 am

thank you very much for the explanation...my restrictions are more with my hands actually...lets' see what neuros will tell. I do not want to hear about things which cannot be treated..ohr how exciting it would be to have an als patient in their neuro department. I hope they will do a thorough investigation...
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Re: leg was "offline" - they keep me in hospital..

Postby Yuliasir on February 1st, 2015, 10:24 am

yep for doctors it might be exciting but of course not for patients... I am so sorry you encounter such a 'merry doctor' :(
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Re: leg was "offline" - they keep me in hospital..

Postby German2 on February 1st, 2015, 10:33 am

Well, I know she is just a assistant doc. I will definitely not be treated from her...that's what I hope... :( Actually I don't feel bad/ flulike like my during my last hospital stay. So it is hard to leave..But on the other hand should I have said "no" to the offering to be invesigated thoroughly for a few days again? I couln't. But I am very scared....
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Re: leg was "offline" - they keep me in hospital..

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