I'm 39 year old female and this all started in early September 2014. I had some numbness in my big toes and also my hands had days where they ached/felt arthritic but not swollen or anything. This would last a couple days and go away.
Then the symptom that really sent me over the edge was I had sudden skin burning sensation /felt similar to how a sunburn would feel but there was nothing that anyone could physically see on my skin. The burning was hell, it was my entire face, down my arms, chest, back, and even buttocks. About a week after these symptoms started, the left side of my face went numb. Thought I was having a stroke so went to ER, CAT scan on my head was normal, released me and said to see a neurologist.
I eventually got in to see a neurologist at a practice that's is both a neurological center and also has an MS center. The neuro examined me (all the standard stuff, walk on toes, reflexes, etc) and said my exam was normal. He did say I had some slightly brisk reflexes. He was somewhat perplexed as he said all my symptoms are sensory and it sounded more systemic (like perhaps lupus). Did some blood work testing for autoimmune disorders, Lyme, etc. All normal. Ordered MRI of head with and without contrast and then later one of the neck without contrast.
MRI of head showed a non enhancing lesion in the left frontal lobe. His nurse called and asked me if I'd ever had a shunt in my head or old brain injury. By this time I was hysterical. I told her no. The lesion was in the shape similar to if i has a shunt In my head i guess that would have left a scar. When I went in to get my official results the neuro told me, we don't know what this is but it's not an old stroke, not MS, and not a tumor but we don't know what it is. It's something he said I could have been born with and he did not think it was the cause of my symptoms because my symptoms are on both sides of my body. He said the lesion was too long to be A Dawsons finger. He said follow up in 3 months and prescribed Gabapentin for the burning.
In the meantime, burning continued, it was miserable and then as the days went on, it would migrate around to just my arms and hands, then my chest, etc. As the days and weeks progressed, the burning seemed to settle into my arms and hands. Doing my job at work was so hard and not knowing what was wrong was driving me crazy. I burned mostly 5 days a week and only got relief when I slept or the occasional day durning the week where I had no burning.
I managed to go sea neurosurgeon oncologist in the meantime that took a look at my MRI CD and also confirmed he didn't know what the lesion is in my head but its not a brain tumor.
In the last month the Gabapentin has really helped (I'm assuming that's the reason) as most days now I don't have much burning or very short lived spurts of burning on occasion. Was also getting cold spots on my legs and feelings like there was water dripping down my leg. There were days i was so cold that no matter how many blankets i had on me, couldnt get warm. i went to see another neurologist for another opinion, clinical exam normal. He did an EEG that he said was Normal except the pack of my head showed activity consistent with migraines even though i dont get migraines.
About 10 days after the last 2nd opinion neurologist, It seems my symptoms are changing to now I recently started twitching everywhere, leg, arm, foot, etc. This started a couple weeks after starting a very low dose of zoloft. One day I actually twitched 24 hours straight on my left butt cheek. I have a strange sensation on right side of face/like a tightness, it's hard to describe. I have many days where my legs are fatigued for no reason or my arms are fatigued or it feels like my leg is about to cramp. I'm afraid to wear heels to work because the last time I did, my leg cramped so bad on the side of my ankle and it took me about a week to recover where I walked with a limp.
Made the biggest mistake ever of going on the ALS forum and started reading about people who presented with cramps, muscle fatigue, twitching. Not to minimize at all what someone with MS goes through, I am no longer afraid of that. I am terrified this is ALS.
Sorry this is so long but the anxiety has taken control of my life as i know many on here are like me, I think of this constantly and feel like I can't talk to anyone about this anymore. Friends and family tell me I'm fine and I'm a hypochondriac, they say the doctors you have been to cant find anything wrong with you. I have also been to a rheumatologist who took a bunch of blood work and ruled out autoimmune diseases. Have had thyroid tested, vitamin levels, etc., everything is normal.
I have an EMG scheduled for Jan 8 with the second neuro. (Upon my suggestion) and am so very nervous.
If you aren still with me and reading this long post, Im just looking for some support and thoughts or similar experiences welcome.

Thank you for taking the time to read this.