Twitching and Herpes 1

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Twitching and Herpes 1

Postby Xina535 on December 21st, 2014, 2:24 pm

Hi All,

I wanted to share a story and then ask some questions.

Wed. night, I had bad twitching in my right cheek. It was actually going on as a hot spot for a good month and was making me very nervous. Well, in the night, I literally felt the twitching migrate from my jaw/cheek over to my lips. BIG TIME. Not just like a little twitch, but it was full blown twitch and very tingly, like as if I had pop rocks going off ON my lips. I also kept biting my tongue, wiping excess saliva....slept like 2 hours that night...worried about the worst.

When I got out of bed, BAM, a fat herpe spot on my lower lip - right side. AND the twitching in that cheek, that I had ongoing persistently for 1 month prior, was much less and by now is gone. I get the random one or two a day, and even that tingly pop-rock feeling on my lips every now and then, but since this thing appeared on my lip, that whole right side of my face died way down.

I have not had one of these things break out in like 10 years.

I searched online to see what kind of creams and maybe home remedies I could use, then I also googled "lip tingling and twitching he"rpes, and all SORTS of information came up! I found a whole Support Group on people with herpes and so many on there have body wide muscle twitching. I learned that it lives and travels in your nervous system, then I also saw that on here (BFS Website), herpes was brought up many times in the past, but I could only find posts where it was briefly mentioned, so I thought I would share my story about that Wed. night.

It was almost as like the Herpes Virus was in my face, searching for a place to break out, then it moved to my lips and was able to settle there.

So my questions:

Does this sound familiar to anyone? Anyone with similar expierence?
Does anyone have more information on this virus and how it can cause twitching? I wonder if it's been traveling through my body, being active, twitching my muscles, and I just didn't know it. Can it even "live" that long or be "active" that long?

Of course I don't know if this is what is causing my twitching, but that experience that night was very convincing. I am going to bring this up to my neuro when I see him in February, but I thought I would ask for opinions and experiences on here also.
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Re: Twitching and Herpes 1

Postby Xina535 on December 21st, 2014, 2:27 pm

Oh, I wanted to mention that some information that I found also mentioned it can cause excess saliva and swollen glands. So .....maybe me wiping the corners of my mouth for the last 2 months (severity differs and even has stopped at times), and the swollen feeling in my throat could be due to swollen glands, caused by this Virus....hmmmm?
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Re: Twitching and Herpes 1

Postby leaflea on December 21st, 2014, 3:25 pm

This is interesting, really interesting. I have nothing to add except that Herpes is for life :-( It goes into dormant phases, but otherwise is here to stay.
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Twitching and Herpes 1

Postby Xina535 on December 21st, 2014, 3:34 pm

Thanks leaflea....yea, I know it's permanent, very unfortunate...but I do wonder, if it can be dormant for a long time (as it was with me), can it also have long active phases, where you may not get an outbreak on the lips, but may experience its "activity" through the twitching?
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Re: Twitching and Herpes 1

Postby leaflea on December 21st, 2014, 5:41 pm

I don't know if we will ever know that answer in our lifetime but we sure can put it in the pile of good possibilities!
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Twitching and Herpes 1

Postby Yuliasir on December 22nd, 2014, 12:48 am

I personally had lip variantonly once in my life (other outbreaks were way too painful becasue they were settled in the throat), but practically tingling in the skin is a common symptom before having a papula. It is due to inflammation caused by virus.
I do not think your hypersalivation 2 months ago and your swollen throat feeling were due to herpes 1. In your case excess saliva was most probably due to smoking and gastritis (so called "water brush" effect, and throat thightness again due to gastritis and autonomous system disfunction causing some reflectory spasms and mucosa swelling. In case of herpers 1, if it resides in the mouth instead of the skin, it is hypersalivation and swollen gland and a hell of pain plus. Definitely almost could not swallow and pain was incredible for a day or two.
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Re: Twitching and Herpes 1

Postby Xina535 on December 22nd, 2014, 11:53 am

Hi Yuliasir,
OMG in the throat! I am sorry :(
Yes this one my lip is so painful. It feels like I got bit or stung by a bad insect. Just when I think it's healing or going down a bit, it will start "leaking" again....*shiver*

The tingling happened only on my lips, once the twitching moved from my cheek to my lip flesh. I had some tiny lip twitches also. Since the break out, that all almost went away completely.

Also, about my gastro stuff:

The endoscopy and colonoscopy were totally clear. He said he saw mild to normal signs of Reflux and Gastritis, but like how most People have...and in the Report said "the findings do not explain the symptoms" - which I listed as mainly excess saliva, throat discomfort/feeling swollen/sometimes things getting stuck, strong hiccups randomly throughout the day, gurgling noises in the back of my throat. He wants to do a couple of breath tests to see if I have an intolerance to fruit sugar and other things. Those are in Feb. He said the medicine I was taking for these mild symptoms like Nexium were too strong for what he saw. So I still don't have any real reason for the symptoms I listed above. I am going to try to see a ear/nose/throat doctor in the new year. I can say possibly Smoking caused the saliva issue- but even after I stopped for a few weeks now, I still have it. So that's why I thought that it could be due to Herpes...and wondered how Long before or after an outbreak on the lip could the saliva be an issue. Could it happen even if the Virus is active in the Body, without an outbreak, like twitching?

I am not sure what you meant by "autonomous system disfunction causing some reflectory spasms and mucosa swelling" - sounds interesting. Is this related to gastro Problems?
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Re: Twitching and Herpes 1

Postby Yuliasir on December 22nd, 2014, 12:10 pm

probably the picture your doctor saw was so mild due to long term taken Nexium :)))
by the way mine endoscopy was 'as clean as child's one" according to the specialist. while I had and have quite severe esophagal spasms for most of my adult years :) which are deinitely going easier with antacides :) probably we react more intensely or, as I said, long term antacides protect you from barret's esophagus but do not protect from other symptomes related to vagal nerve hyperactivity.
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Re: Twitching and Herpes 1

Postby Xina535 on December 22nd, 2014, 12:13 pm

Yuliasir wrote:probably the picture your doctor saw was so mild due to long term taken Nexium :)))



AHHH! good point - never thought of that! I thought that the nexiums and omeprazols only help the symptoms and do not really "heal" the damage.
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Re: Twitching and Herpes 1

Postby Yuliasir on December 22nd, 2014, 1:03 pm

if you use them in suspension form - they definitely assist healing by forming an alkaline film in the esophagus for a while. and even if you just swallow a pill - they decrease acidity and make the damage much much milder but probably enough to cause reflectory swelling and spasms (as those spasms are related to autonomous system hyperactivity).
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Re: Twitching and Herpes 1

Postby Xina535 on December 23rd, 2014, 1:47 am

Yuliasir wrote:if you use them in suspension form - they definitely assist healing by forming an alkaline film in the esophagus for a while. and even if you just swallow a pill - they decrease acidity and make the damage much much milder but probably enough to cause reflectory swelling and spasms (as those spasms are related to autonomous system hyperactivity).

Makes good sense! And I tried googling "autonomous system hyperactivity" (I let myself do this) but did not find anything. So you mean like when the sympathic and parasympathetic systems don't balance out anymore (like a dystonia)?
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Re: Twitching and Herpes 1

Postby Yuliasir on December 23rd, 2014, 3:10 am

Practically yes. Stress first affects pituiarty-adrenal hormonal axis, and this makes our autonomous system crazy. And first of all it strikes our vascular system and guts :)
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Re: Twitching and Herpes 1

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