Making it worse in my head?

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Re: Making it worse in my head?

Postby dolphin8808 on December 2nd, 2014, 12:42 pm

Thank you! I am going to need it LOL.... Hope to get some rest tonight, how long before you received your results?
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Re: Making it worse in my head?

Postby LKP1231 on December 2nd, 2014, 1:03 pm

Mine were given that day, but i had to have the ncv tests separately for upper and lower, then the needle test. So I had two weeks of testing but them got all results there. It was supposedly some insurance thing
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Re: Making it worse in my head?

Postby dolphin8808 on December 2nd, 2014, 2:21 pm

What is the NCV?
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Re: Making it worse in my head?

Postby LKP1231 on December 2nd, 2014, 2:25 pm

Nerve conduction. It's usually part of the emg. It tests the nerves and the needle emg tests the muscles.
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Re: Making it worse in my head?

Postby dolphin8808 on December 2nd, 2014, 2:59 pm

Oh gotcha! Will keep everyone posted after tomorrow :) Fingers crossed and praying for good results.
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Re: Making it worse in my head?

Postby LKP1231 on December 2nd, 2014, 3:12 pm

You'll be fine :)
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Re: Making it worse in my head?

Postby LKP1231 on December 2nd, 2014, 5:05 pm

Hope you got my pm, mine's not working right
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RESULTS!

Postby dolphin8808 on December 3rd, 2014, 10:11 am

Great results! EMG and NCS shows Absolutely NO sign of ALS. Doctor is not concerned with it at all and she is the ALS specialist. She said that even she gets concerns when her twitching begins and thinks to herself "this is the end!" More so once we are on the internet and google. Twitching can be a normal phenomenon in people but most do not pay attention to it and go about their lives, those that dwell can make it worse on themselves.

She said it can be very normal for people especially who have anxiety anyway to worry about such things. That you truly have to learn to ignore the twitching. Same with hyper-reflexes, that its normal in those with high anxiety.

BFS is very real and very benign physically but if we allow it, mentally it will be a disaster.

I do show some nerve irritation in the calf and hamstring from the L5-S1 and S2 compression as well as a bit of atrophy in my calf due to the initial disc herniation. She said as long as I am progressing though and not regressing, I am doing the right thing by waiting it out and seeing what happens. If I regress, I will need to have surgery to decompress the nerve.

Thank you all for your support, you have all been a Godsend!
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Re: Making it worse in my head?

Postby buddyroxy on December 3rd, 2014, 10:58 am

That's great news! Hold on to that good feeling and don't let it go!
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Re: Making it worse in my head?

Postby dolphin8808 on December 3rd, 2014, 11:24 am

Thanks so much, I am holding onto it tightly! Being thankful for great results :)
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Re: Making it worse in my head?

Postby Cobber on December 3rd, 2014, 10:21 pm

Hi Dolphin

Great result!

As we both discussed earlier our symptoms are very similar. My EMG showed nerve issues in the left leg and some in the left arm. MRI showed the stenosis and herniated disc at L5-S1. Atrophy in the left calf is very notiecable for me but the muscle I have maintained works well enough that I can continue working out. i doubt I will ever stop twitching but after 2 years of this I don't care. As long as the weakened left foot and calf can maintain the strength they currently have then it's all good.

They also mentioned spine surgery to me if the muscles weakened further. I really don't want to go down that path though. My issue now is trying to understand how much exercise I can do without causing more problems but enough to maintain the muscles I have in my leg. The doc/neuro encouraged me to exercise but I go beyond what they recommend. Hopefully after 2 years of this though I'm on the right track.

Look after yourself and don't bother doubting your results down the track if minor issues pop up. The kind of tests you did are accurate and it sounds like you have good docs/neuro's.
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Re: Making it worse in my head?

Postby dolphin8808 on December 4th, 2014, 3:05 pm

Thank you and I agree! I work my left leg pretty hard to get it back on track, I can't have it going all weak on me LOL. I am noticing strength coming back, slowly but surely. I can do more calf raises now than 2 months ago but nowhere near before injury. Am very happy with the results, so thrilled.

Still twitching away lol. I actually am on a spine forum where it was mentioned how those people twitch and a lot.... once the nerves are aggrevated, they react. I wish you much continued success as well!
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Re: Making it worse in my head?

Postby Cobber on December 4th, 2014, 9:19 pm

Can you let me know the spine forum please? Do you know if people with spinal stenosis are contributors to that forum?
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Re: Making it worse in my head?

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