by bobajojo on November 17th, 2014, 3:34 pm
They tested 7 muscles this time. Left calf, left shin, left thigh, left deltoid, left thenar, my back just to the side of my spine, and my tongue through my chin (which wasn't that bad actually).
When I was leaving I asked them if they saw my fasciculations and they replied with "Oh yeah, we saw them." Then I asked "Everything OK?" and they said "Your muscles looked great. Strong and healthy."
I haven't seen the full report, I just spoke to my neuro. But I'm dying to find out if they captured the fascics in my tongue. During my follow up on Dec. 10th, we are going to discuss genetic testing to see if they can find the gene responsible for BFS (now PNH for me). My neuro is very excited about this.
Matt
Over 10 billion twitches since May 2011.