twitching, cramping, fasciculation , new here, any ideeas

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twitching, cramping, fasciculation , new here, any ideeas

Postby Vladro66 on October 23rd, 2014, 10:05 am

hi everybody,

i'm Vlad 36 years old from Bucharest and this is my story,

present symptoms:

lower eye lid twitch non stop for the past 3 months, ear drum twitch or spasm any other day, nose twitch internal for several moths but recently has started also to twitch external nostril left, lover mouth- lip tremble-twitch and sometimes cramp , tongue twitch but has started also to cramp ?????, hyper-salivation, neck stiffness and some times jerk or cramp, lump in through but i have GERD, para-spinal muscle spasm or constant contraction and burn , but fasciculation non stop when i m sitting down, hand fasciculation biceps, triceps but the problem is the palms witch they twitch, the muscle of palm hurts or burn, the fingers are also tremble,abdominal twitching frontal or lateral inside????, muscle on legs: twitching everywhere, calf muscle twitch non stop for 7 months , cramps,burning, lower legs pain cramp burn, heel cramp pain.
When i wake-up i find my hands clenched like an claw , my base of the fingers started to burn 7 months ago and now it seems to me that i have atrophy , also when i im very stressed my feets are also stiff and clenched .

Mainly stiffness in all my muscles and i have a constant postural tremor and an internal tremor.
Two months ago i have started to pop, snap all my joints:palm,wrist,shoulder,hip, knee, ankle, bottom foot


the beginning:
three years ago i have started to feel some kind of week and also the acid reflux come and i have it with no control even if i changed all my life around it, i mean small meals, no acidic food, sleep on the back lifted and so on .... at this point i was prescribed zoloft and clonazepam aka rivotril 1 mg and from the first day i put m
in February i was on zoloft 50 mg, and free of any benzo for two years with no twitch or tremor
all of this started 7 months ago poor sleep for one month, after that i have taken Clonazepam for 4 days and did not help me sleep so i stopped, after this i have developed, burning skin on my arms, back, palms, foot and also i have started have spasm in my thumb finger and also jerking movement of foot, only at rest or at night.
no sleep so i was prescribed seroquel 50 mg for sleep, after 4 days i have started to twitch in my calf's and upper hands.
from this point things get interesting: i go Inpatient for insomnia, anxiety, depression and the muscular problem that was new to me.
Tons of medicine : gabapentin 1800mg, lamotrigine 150 mg, and the cherry of the cake phenobarbital 200mg. i m currently on them
presumed bipolar and i know i am but i was ok without the medicine, but in all my life i was only taken zoloft on occasion for depression.
in hospital they believed i have polymiositis done an emg clean, this was 5 months ago.

second emg last week find fasciculation on calf muscle and rare fibrillation on paraspinals , i have done anti potassium channel antibodies and anti Gad1, so no isaac or Neuromyotonia at least that is the conclusion. from neurological point of view they said is nothing, no name for what i have and said is all for the psychiatry .

the main problem is that i have all the sign for *** and the 4 psychiatrist doctors dont know what to do and i saw like 5 neurologist all-ready and also no answer.

im heavily medicated and im going down really fast and all my symptoms are becoming worst , and think that all i take are also so-posed to help but they dont.

i m only sleeping 5 hours for the past 6 months so im burned out, all day i just struggle to pass to the next hell next day.
i have closed all my businesses and also i have divorced in February prior of all this hell, now i just stay home and im desperate, no job, no money, nothing.
**by the way i had like 4 casinos and i was married for the past 10 years, so a big fall.


all the drugs that i take regardless of my bipolarity ?? it should helped ease tease symptoms not make them worst and provoke them in my opinion.

At this point i m convinced that i have *** and also i must withdrawal from the phenobarbital witch is the most dangerous drug to withdrawal from and all my nerves and muscle activity are becoming more alive in the context of my condition that i mention at the beginning .

my hands hurts :(
Last edited by Vladro66 on October 24th, 2014, 2:32 am, edited 1 time in total.
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Re: twitching, cramping, fasciculation , pain in hands, hell

Postby Vladro66 on October 23rd, 2014, 11:35 am

help!!!!! any ideas?
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Re: twitching, cramping, fasciculation , pain in hands, hell

Postby LKP1231 on October 23rd, 2014, 12:29 pm

Fascics on an emg and a randam fib in paraspinal is not als. I agree you have symptoms of something but that emg is not als at all, and all your symptoms including pain are not indicators either
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Re: twitching, cramping, fasciculation , pain in hands, hell

Postby Vladro66 on October 23rd, 2014, 1:41 pm

Thx lkp for the responce, but the pain i feel is myalgia
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on October 29th, 2014, 4:49 am

Any ideeas?
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Pascal35 on November 1st, 2014, 8:59 am

Hi Vlad,

I am from Greece.
OK its quite obvious that there are so many stress related factors with your issues. Divorce, Medication for many years, work etc.
Fascics especially in calves it is very usual finding to all healthy people. Paraspinal fibs could be radiculopathy (you should make an MRI) or just a mistake from the neuro who did the EMG. I was told that paraspinals are very difficult muscles to be examined.
Was the fib in 1 paraspinal or in more?
I am also a mental case fearing ALS so maybe i am not the right person to give you advice but if i were you i would go the following route:
1. MRI in my spine to check every possibility for any of my symptoms
2. Neurological check to take out of mind totally ALS
3. Try to put your life into normality and speak to a psycho to stop the medication

I know its easy to say but very hard to achieve BUT at least we must try
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on November 3rd, 2014, 12:17 pm

Thank Pascal for you support

I had have visit 5 neuro in the past few months but some tell me they don't know whats wrong

And yes i should do an mri of the spine

My fibrillation on paraspinal muscle on emg it is only a confirmation of my constant spasm activity of the back muscle, so i m preaty sure it is als
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Pascal35 on November 3rd, 2014, 1:45 pm

Hi Vlad,

After so many EMGs i can tell you that in many cases Doctors can confuse the fibrillation with a normal motor unit activity. Also they can confuse because maybe the machine catches a fasciculation from distance and it looks like fib. Thats even more possible when you only get rare fibrillation.
But even if there are rare fibs it doesn't mean ALS.
I was told that in ALS the sound of the machine is crazy. Its like rain drops and its not rare. A friend neurologist also told me that you could find rare fibs in many healthy individuals.
You have probably got some kind of radiculopathy in addition to some kind of low arthritis which brings stiffness in your hands and feet.
With regards to your back spasm i also got the same symptom.
I wish and believe that everything is in our mind. We got a fear and a mania and we need to get it out of our heads.
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on November 4th, 2014, 5:02 am

True that Pascal, take care with your emg, i m keeping my fingers cross for u
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on November 10th, 2014, 9:28 am

The most hard symptom is that im waking up with my hands in claw position and during the day tha ligaments from wrist and palms burn, also my ligaments from my ankles burn, pops and snap
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby misterjuanperalta on November 10th, 2014, 9:34 am

I guess Ulnar Nerve entrapment.
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on November 21st, 2014, 8:22 am

Nope no ulnar
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby misterjuanperalta on November 21st, 2014, 9:14 am

I get clawing, hand cramps. ALS specialist said NO ALS. No paraspinal EMGs done on me. My MRIs show spine-wide stenosis with two locations of 50% narrowing. And reduced signal in Cervical spine. Yet NO ALS, per Dr. Face and tongue twitch is present, tongue EMG clean. Try not to worry.
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on November 24th, 2014, 12:17 pm

Thank you for your support, but right now i m also in withdrawal from barbiturates and i m very scared and stiff
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Re: twitching, cramping, fasciculation , new here, any ideea

Postby Vladro66 on June 4th, 2015, 6:31 am

New update. Still twiching everywhere,spasming, jerking still no answer. In february emg still no mnd, change all the medicine i mean gabapentin, lamictal, phenobarbital and i m only taking cymbalta and atarax. But its not working also so the pain i git in all my muscle, weakness, involuntary contraction, cramps, stiffness
I will keep you updayed if ill find a way
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Re: twitching, cramping, fasciculation , new here, any ideea

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