I just wanted to vent my fears...
I had my EMG test on Wednesday...I am still awaiting the results because I live in Beijing and everything needs translating. There were only technicians doing the test so they couldn't say anything about the data they were collecting.
I was so nervous because I had no idea the test would be so painful, and the noises the machine made after the needles were inserted into my calve muscle groups and told to flex sounded like earthquakes.
I think I am most nervous because most people on this forum, whilst many have hotspots, seem to have generalised body wide twitching. As I've begun to control my anxiety, these body wide twitches have calmed down massively, but my left calf is absolutely constant when at rest...my left thigh and foot is also much more constant recently. My right calf, thigh and foot do also twitch a little, but the ratio would be like Left 100 : 20 Right.
Also, even though the physio wasn't worried about the size difference in my left to right leg, it has only been just over a month of consistent twitching, so perhaps its not obvious enough yet to count as muscle wasting.
I know I have no UMN signs of ALS due to fine strength, reflexes, babinski etc...but I know some people start with fasics and take months to show weakness...
I'm just so nervous because most people here have been able to ascribe their twitching to a disc problem in their back, or trapped nerve etc...but my lumbar MRI showed nothing. I had thought it might be Fibromyalgia due to sometimes getting aches and pains radiating down my arms and legs, but that isn't frequent.
Also the pain I was getting in the muscles has stopped since i eased back on exercise when i tightened my left calf muscle, which again makes me nervous, as the pain I had hoped was attributed to BFS...rather than the painless continuous twitching of ALS.
I just hate this, I fear the worst so much because from the moment I awake to the moment I sleep my left leg won't quit. There is no respite. There is no trigger. It is constant...
