twitching, buzzing, cramping, aching, WORRYING

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twitching, buzzing, cramping, aching, WORRYING

Postby sanje77 on October 14th, 2014, 8:08 am

Dear emmebr,

I am new to this forum as I desperately need to know that what I'm going through could actually all be benign.. But to be honest I am really going out of my mind, major anxiety, so I would really appreciate some input.
My main problem is the twitching, but I also have some other symptoms which freak me out. The twitching tarted in the inside of my left foot, sometimes even moving the big or second toe. Then a few days later it moved on to my right, and both feet have now been twitching NON-STOP for 3-4 weeks! Then came the cramps, both feet are constantly cramped up, more on the right, but also the left. This really scares me. On top of all that I can feel a buzzing sensation in both calfs, also on my back and upper arms. I get small twitches all over everywhere else, arms, knees, thighs, stomach, shoulder etc...
Prior to the twitching my right shoulder, arm and hand were giving me trouble, after just 10 minutes work my arm and hand hurts and feels sore. My left fingers have also started hurting from time to time. The twitching I've not had in my hands though. SO as you can imagine, I'm very worried and fearful.
I have gone through several tests, blood, MRT (head and spine), testing for Vitamin B12 deficiency, lyme decease etc, all clean. The thing coming up now is my EMG on 31st of october and I just don't know how to get through the next 2 1/2 weeks I'm so scared. I keep hoping all this could be psychosomatic, I really have been driving myself crazy, but the symptoms are THERE and they are CONSTANT, so it's hard to imagine that there could be no underlying cause.
My questions to anyone who can relate to some of my symptoms is:
1. Have you experienced this kind of buzzing, trembling feeling under your skin?
2. Has anyone had CONSTANT twitches in their feet AND cramps?
The problems with my arm I could put down to repetitive strain injury perhaps as I work a lot on the computer, but the rest is just so spooky :-(

Thanks so much in advance for your input. I'm driving everyone around my crazy and I really want to stop doing that....
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby Yuliasir on October 14th, 2014, 8:51 am

hi sanjie,
in general your symptomes do not differ essentially from typical set reported on this board.
The answer is defintely yes, people with the symptomes like yours could live good productive life for years and decades.
Let's see what EMG would result in, but practically (based on the own experience and experience of the other fellows) it may show several signs of denervation, especially in the legs, due to back compression issues, and if you are over 25-30, it should be really rather expected. This does not mean degenerative neurological disease at all and should be considered in combination with all other medical data (including clinical exam result and analyses).
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby nervoususer on October 14th, 2014, 2:48 pm

Hey - I'm waiting on an EMG too (next week) and I just wanted to let you know you're not alone in your symptoms - mine are pretty similar. And be reassured that twitching all over is really a hallmark BFS symptom with almost everyone here complaining of it - don't let the diversity of twitch locations freak you out. Also, if you read more on this forum you'll see lots of people with the buzzing feeling (and just about every other type of strange twitchy feeling you could imagine). I worry too - but try to find lots of fun/distracting things to do for the next two weeks (and stay off Google no matter how badly you want to keep researching!!! :)).
Just keep swimming, just keep swimming
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby sanje77 on October 15th, 2014, 12:29 am

Hey, thanks you for your kind words. Yes, it does help to now there are people with similar symptoms and fears out there. It's so hard to find fun things to do during the long wait until my EMG as I just can't seem to get my mind from circling around all the horrible things. Just now I've woken up from a terrible nightmare and this is happening every single say at the moment. I'm hoping a lot of my issues are psychosomatic, in which case my diagnosis will be that I'm slightly crazy. But I can live with that :D
I hope everything goes well for you at the EMG appointment next week, I'm sure it will! Let me know how you got on.
x Sandra
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby Yuliasir on October 15th, 2014, 1:11 am

I'm hoping a lot of my issues are psychosomatic, in which case my diagnosis will be that I'm slightly crazy. But I can live with that :D


such a healthy approach I would say :) we have here fellows who seem to be not happy with the psychosomatic explanation for various reasons, but my point is that if you got psychosomatic disorder, it means usually two things: there is a real disease in one of your body systems, other that mental, which is disguised and causing you physical symptomes (for example, we may have gastritis with the pain in the chest and believe we have liver or even heart problems) PLUS we have mental problems (usually in terms of information processing and mood control) which are a separate system disease and has to be treated too. Being a little crazy is a bit different - let's say until you do not strongly believe your twitches are because little leprekons are tickling you, you may be not so much crazy.
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby sanje77 on October 15th, 2014, 6:27 am

Haha, thanks Yuliasir. Though the idea of little leprecons tickling me is a far nicer idea than everything else that has been going through my mind.
I can't seem to shake the fear of a terminal desease unfortunately, which is why I have decided to go into hospital tomorrow and get all the testing done there rather than wait 2-3 weeks for my EMG. I feel like my paranoid mind is poisoning my body even more, so the sooner I know what's wrong the better. And if it is a psychosomatic disorder that is causing symptoms or ADDING symptoms to a benign condition, then at least I'll know to treat that problem sooner rather than later.
Feels good to talk about it here anyway. I don't want to start worrying my family, so I've been holding things in a bit...
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby jwb33w on October 16th, 2014, 6:26 pm

Your symptoms sound very familiar to me, Just coming back from the ALS specialist today and from what Vets of this board have said for years...Anxiety can do all of those things. I didn't believe it either, but after having my emg today and it showing absolutely ZERO issues. I can safely say that every symptom you have, your mind has decided to play games with your body, just like it did with me. Oh and im still twitching and foot arch cramping and buzzing/vibrating all over the place as well as weak feeling in all my limbs. I would read about a symptom and BAM, minutes to hours later I was having them
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby nervoususer on October 22nd, 2014, 5:12 pm

jwb33w wrote: Oh and im still twitching and foot arch cramping and buzzing/vibrating all over the place as well as weak feeling in all my limbs.


THIS is exactly what I needed to hear right now. It's not just the twitches that freak me out. I have cramping, pain, and what feels like weakness in my right ankle/leg and sometimes my right wrist. I have an EMG tomorrow and the past 72 hours have felt SO hard. I'm trying to keep busy but then my mind just wanders off and I think "no big deal, I feel fine, it's going to be totally fine" and then the next moment it's, "who are you kidding, you're going to get a scary diagnosis and how will you tell your family/friends/etc/etc". It's awful. I feel like I'm going crazy and I can't decide if I want the time to speed up (to get a good result) or slow down (to delay a bad one).
Just keep swimming, just keep swimming
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby dolphin8808 on October 22nd, 2014, 6:59 pm

Same here! All of a sudden today I was in the store and my tennis shoe caught on the floor and I swear I am now dragging my foot, I also feel like I can't hold a cup of coffee all of a sudden, even though I am doing it just fine. See my Nuero Friday.... Scary stuff!
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby Yuliasir on October 23rd, 2014, 2:58 am

before swearing it is worth to check if you really are dragging the foot.
the check is really simple.
lift the foot and see if you can hold the foot more or less 90 degrees to the shin. Also try to do a few staps on your heels/tiptoes. If you can do it, then you do not ahve a foot drop.

Foot drop is a codition at which the muscles of the lower leg (do not remember their holy names) are not working properly. this prevents us from keeping a foot parallel to the grouns and disable our ability to stand on the tiptoes and heels. If you still can do it, you are Ok.

an overactive runners could experience so called flapping foot (some inability to hold a foot parallel to the ground) but it is really tranisent and is associated with running in the poorly selected shoes on the hard surface (we had such case once here about a year ago).

It is also common to be very nervous before the appointment ot test.

hope everything will run smoothlyon Friday!
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby sanje77 on October 27th, 2014, 3:12 pm

Hey, I've finally had my EMG among many other tests at my local hospital, and all is fine. My doctors have assured me that with a normal EMG there is absolutely nothing to worry about. I was kind of hoping that my twitches would just stop once I knew that I wasn't terminally ill, but they are there, stronger than before. Today, a muscle in my left wrist has been twitching extremely for hours, causing my middle finger to jump up and down.. And my foot fasciculations and cramps, as well as problems with my arm and hands are all still there. So I started to worry again, but then remembered what my doctors have said. I spent a week in the neurological unit, which is a prestigious one in Berlin. So there's absolutely no way they would have missed something. I've decided to try my best to ignore all those annoying symptoms and focus on becoming very healthy by eating well and exercising. Both are things that I have been neglecting over the past year, so maybe my body wanted to send me some signs. ANYWAY, I hope a few of you will find it encouraging to hear that I had all the symptoms in the book – fasciculations, cramps, arm and hand weakness, shortness of breath – and there seems to be no underlying cause. Not a nasty one anyway. I think a conscious change of lifestyle is in order (just speaking for myself), as I think new projects will help take the focus away from worrying all the time. I'm not really as wise as I sound now, I was going INSANE with fear for weeks.. Let's see if I can stick to my plan to relax ;-)
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby donnastar on October 27th, 2014, 9:26 pm

Hi Sanje,

Congratulations on the clean bill of health! I share many similar symptoms as you the buzzing, constant foot twitching and foot cramps. My clean EMG and neuro exam was over a year ago and since then the buzzing has subsided, most of the hot spots don't last for days on end anymore except for my feet. When I saw the neurologist I had only experienced one minor cramp. Since that appointment they have picked up and my left foot seems to cramp quiet easily, even when I'm bent down gardening for instance. The fear of something dreadful is gone with the odd bad day. From reading your posts sounds like you already know what to do - focus on life and not the uncomfortable symptoms. I've picked up the exercising and it has helped tremendously. The thigh dent I was freaked out about is replaced by some toned leg muscles, proved myself wrong and completed the 30 day yoga challenge and now trying to run 100 miles in 8 weeks (15 to go and I'm sure not helping my feet but running is my mediation). Hoping your celebrating tonight. Cheers.
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby seanrblock on October 27th, 2014, 9:59 pm

Hi Sanje-

I see that you got your results and were cleared. Congrats. I will tell you that you I feel the same way as you do regarding how these symptoms can't be something not bad. I had my foot arches twitch for about 5 years straight. My left foot was NON stop. No breaks, for all those years. So now after 9 years I get twitches all over, mostly in my legs. You have to be careful and not let the symptoms start making you scared months or years from now. I am 9 years in and having a tough time lately. Hang in there and try to trust the doctors no matter how hard it gets. Congrats and get out and have some fun!
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby dolphin8808 on October 28th, 2014, 8:53 am

I will go for my EMG the end of November, my Nuero wanted to give it time to make sure there are no false negatives... But the waiting game is driving me crazy! I hate the not knowing. I get the majority of my twitches in my legs as well, sometimes through out other areas but the legs get it most. I also have hyper reflexes. Yea leaves one a bit stir crazy.

Congrats on your EMG!
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Re: twitching, buzzing, cramping, aching, WORRYING

Postby sanje77 on October 29th, 2014, 5:28 am

Yes, the waiting really is the worst part. I found I couldn't wait until the end of the month which is when my EMG was scheduled, but I was going so crazy I went into hospital and stayed there for a week. Was perhaps a little dramatic, but I'm glad the waiting is over. But it is encouraging to see that nearly everyone on this site has come home with a clean EMG, so there really are many of us with these BENIGN symptoms.. Oh and I also had some brisk reflexes, but they were pretty equal on both sides, so my doctors weren't concerned with that at all. I wish you luck on your appointment, I'm sure you'll be celebrating soon when all that nasty anxiety disappears...
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Re: twitching, buzzing, cramping, aching, WORRYING

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