Challenged again - 8 years later...

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Challenged again - 8 years later...

Postby chrisdvt on October 9th, 2014, 12:54 pm

My story started over eight years ago at the age of 35. I had been having a very stressful time both at work and in my personal life and had a myriad of symptoms including muscle twitches all over my body. After conferring with Dr. Google I was certain that I was destined for the inevitable diagnosis of ***. So, after 4 months of complete fear, numerous doctor visits and sheer panic I happened upon this forum and quickly realized that many of you shared my symptoms and experiences as well. It was a complete blessing to me at that time. Almost immediately I started to feel better and either my symptoms ceased or I simply ignored them as I was no longer hyper-sensitive to everything my body did.

Fast forward to June of this year. I woke up in the middle of the night with what felt like a rapid heartbeat. I put my hand to my chest and felt the normal rhythm of my heart. It wasn’t a rapid heartbeat but some type of intense upper body vibration / buzzing sensation. After repositioning my arms and head the sensation waned and then ceased completely a few minutes thereafter. The next morning I foolishly jumped back on the search engines – yes apparently I am a slow learner – and find myself being routed to several MS sites.

And so it begins again – this time with a number of similar symptoms but many new ones as well. Twitching, pins & needles, vibrations, rather persistent stiff muscles / joints, icy cold feet, sinus issues, creepy crawlies, itchy skin particularly in the hands / face, shivers / tingling and popping joints.

Most of the symptoms are random and fleeting. For instance I will feel pins and needles in my hands or feet for a few seconds and then it will disappear. To date no symptom has persisted for days (other than the eye twitching) but then again none of them have completely dissipated either. I can invoke symptoms pretty easily by:
• Clasping hands behind my head giving me pins & needles in hands
• Doing a deep hamstring stretches or by applying pressure to the bottom of my foot will give me pins & needles
• Making eyelids twitch by sneezing or blinking hard
• Lying in bed will almost always follow with the ‘all over twitches’ – legs, shoulders, arms, buttocks etc.

I have been to my GP, a neurologist and a jaw specialist thus far. My GP and neurologist gave me thorough in office exams and both shared the same opinion which is I am healthy but likely struggling with stress and anxiety. The neurologist was very confident with her opinion and felt there was no reason to do any type of diagnostic testing at that time. The jaw specialist found definitive evidence of TMJ Disorder. She stated that I am an obvious clencher and grinder but she was unable to state definitively which of these physical symptoms could be specific to the jaw issues.

To be honest I am not sure what I am looking for here other than perhaps some reassurance that my symptoms are not unique or specific to a nasty diagnosis. I am feeling fairly confident that this is BFS and / or anxiety based but unlike 8 years ago I am not able to pull away from the symptoms this time. Thus there is always that twinge of doubt in my mind. Thanks for listening!
Posts: 11
Joined: December 28th, 2006, 10:42 am

Re: Challenged again - 8 years later...

Postby RIno468 on October 9th, 2014, 7:12 pm

you basically answered your own question.

What answers could any of us give you that a trained professional whose job it is to diagnose problems already has?

Pins in Needles arent associated to ALS--so that should get you off that trail.

MS -- maybe, but take a look at your life lately and see whats been stressing you more than usual.

Sounds like anxiety to me.
Selfless giver of time
Selfless giver of time
Posts: 145
Joined: September 3rd, 2014, 9:47 am

Re: Challenged again - 8 years later...



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