Bfs with back issues and denervation

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Bfs with back issues and denervation

Postby LKP1231 on October 6th, 2014, 11:04 am

So my emg results were too vague for me so I HAD to speak to the neuro. I shouldn't have. He confirmed denervation in all limbs BUT tells me it can all be explained by discs and nerves in my back. Said physical therapy will help and to take b12. He just figured since he feels confident that it's a back issue there was no reason up give so much detail. They ran an upper motor neuron test and said there were no signs whatsoever. rNo explanation of twitches and I've got really no other symptoms except muscle soreness. He have me the name of a specialist and I made an appt. I thought this was over I wish I hadn't pushed for info. My twitches are crazy now all over getting worse by the hour
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Re: Bfs with back issues and denervation

Postby MarioMangler on October 6th, 2014, 11:17 am

Well one alternative is you could listen to him and try the physical therapy.
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: Bfs with back issues and denervation

Postby MarioMangler on October 6th, 2014, 11:19 am

LKP1231 wrote: My twitches are crazy now all over getting worse by the hour



Also, that sentence right there pretty much proves that the biggest problem you are facing is anxiety. When you are stressed out and panicky and your twitches suddenly get a hundred times worse, that is about as classic a symptom of "I am the one who is causing these twitches" as there is. Right there that should be a more convincing sign than even your EMG was.
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 6th, 2014, 11:39 am

I'm annoyed that he pretty much discounted anxiety as causing the twitches. I have scheduled PT for Wednesday. I'm supposed to go to the other neuro next Tuesday but I don't know whether to do it yet or not. If I could wait I would bc suddenly not knowing sounds better. I've already been told it's not *** so why push?
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 6th, 2014, 11:44 am

He also didn't tell me to see a specialist, I had mentioned getting my records for a second opinion as a possibility and he said that was a fine idea and gave me a name of one he recommends. He also told me I didn't need another emg in the future unless I wanted it. He really must believe it's not that. He said he can see where it's all coming from. I'm confused
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Re: Bfs with back issues and denervation

Postby MarioMangler on October 6th, 2014, 11:56 am

LKP1231 wrote:He also didn't tell me to see a specialist, I had mentioned getting my records for a second opinion as a possibility and he said that was a fine idea and gave me a name of one he recommends.




This is generally doctor code for "I already told you what the problem is, please go away and leave me alone."
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 6th, 2014, 12:09 pm

Lol thanks
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Re: Bfs with back issues and denervation

Postby Xina535 on October 7th, 2014, 3:56 am

LKP1231 wrote:No explanation of twitches and I've got really no other symptoms except muscle soreness. He have me the name of a specialist and I made an appt. I thought this was over I wish I hadn't pushed for info. My twitches are crazy now all over getting worse by the hour



BFS does not have any explanation for twitches. If we get reasons, we are lucky. Though your neuro said it was due to disc problems.....and lots of twitching can cause muscles soreness, and so does anxiety....and anxiety fuels twiching. It's proven (at least for me) when I get stressed or more anxious (like flying in a plane), my twitches explode, and stay high for weeks later before they die down to the normal level (which is still constant).

Are you on anything for your anxiety, or have methods to treat it (like meditation, hypnosis, yoga, progressive muscle relaxation)?

PS - Agree 100% with what Mario said up there.
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 7th, 2014, 5:50 am

I'm going to the dr to see about anxiety med Thursday. Seeing a therapist but not sure about that helping. PT starts tomorrow and I'll look into some type of meditation. Thanks for encouragement
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Re: Bfs with back issues and denervation

Postby Xina535 on October 7th, 2014, 7:02 am

Hopefully some medication and physical therapy will help you in the long run.

I know many of us have benefitted from this:

http://en.wikipedia.org/wiki/Progressiv ... relaxation

I have a CD in German which guides me through tensing/relaxing each muscle. Here is one free audio clip from a doctor in the US (English):

http://www.johnmccauleyphd.com/Progress ... ation.html

Just in case you want to try. There are many CDs and versions to PMR. I think also on youtube. I can count on it to bring me at least one level down.
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 7th, 2014, 7:29 am

Thank you :) I'll check it out
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Re: Bfs with back issues and denervation

Postby leaflea on October 7th, 2014, 10:34 pm

Linda, Keep an open mind about the therapy. There is some kind of OCD component to this. I say this without any judgement, I totally understand how you feel. Find a very good therapist and tell them honestly how you worry and obsess. Many of us have been or are there, or are in the process of learning about this and recovering. It does seem that this is something many of us do to ourselves. In your case, there may also be an element of PTSD, trauma for what you witnessed your husband go through, and the trauma it was on yourself. This bfs is a cruel mind trick indeed it is, and it seems to be a complex mind-body thing. Best.
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 8th, 2014, 5:37 am

I'm just so worried about the denervation in 4 limbs. No one wants to hear this. He said he sees where it begins in nerve roots not spinal cord. But he said sensory and motor. I thought motor was spinal cord. The how is he supporting diagnosis?
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Re: Bfs with back issues and denervation

Postby German2 on October 9th, 2014, 7:13 pm

Dear LKP,

as yours, also mine EMG was not clear. But I was mainly testet one limb. I went yesterday to a neuro and asked her about the results. She was telling me a few things which set me into panic mode. But in the end she said that I do definitely not have MND.Now I m sitting here and don't think about the latter sentence but what she said about anterior horn sells and referring deseases. What I wanted to say is, asking too much questions can be harmful (I knew this before but I did nevertheless). Every time the bad sentences stay closer to your ear than the positive ones.
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Re: Bfs with back issues and denervation

Postby LKP1231 on October 9th, 2014, 7:46 pm

You are soooo right German.
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