My 1 Year Update - Here to Encourage You!!!

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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My 1 Year Update - Here to Encourage You!!!

Postby UFGatorGuy20 on September 12th, 2014, 9:28 pm

This is a long story, but I truly hope this helps many people. It's a story documenting a RIDICULOUS roller coaster of concurrent symptoms and events that just made my stress EXPLODE… ultimately starting and feeding the BFS / fibro / hyper-excited nerves… whatever it is the doctors keep calling benign. Going through the REALLY tough times and overcoming them proved to me that I'm within the "benign" category. I hope detailing the worst, but showing I’m still here with no inability will give others hope.

I started with a vision problem in my left eye back in June 2013 - a condition called central serous retinothapy, or CSR. It’s fluid discharge behind the retina that causes darkened distorted vision. I had no idea what it was when it started. I hopped on Google and self-diagnosed myself with macular degeneration. I couldn’t get in to see an eye doctor for 5 days. So, I was panic stricken and confined to Google’s / med help’s results. I finally got in to a retina specialist and was told it “should” go away on it’s own, but over a period of 2-6 MONTHS! The condition was absolutely detrimental to my work. I couldn’t look at a computer screen. I couldn’t drive. During the first two weeks it kept getting worse. More fluid kept pouring in and I didn’t feel like it was getting better. I thought they would have to result to surgery or that I had some sort of chronic issue. Eventually, after 6-8 weeks, the fluid started to recess and my vision returned to a usable level. While all this was going on, I was extrapolating the situation to a doomsday event… I thought I was going to go blind. I thought that I would no longer be able to work. I actually envisioned joining the disabled Olympics… Seriously… Bottom line… I couldn’t control the stress. I was sleeping in the bathroom on the floor loaded up on Xanax. It’s the only way I could calm my nerves. I had absolutely flawless vision until then.

Fast forward a few months when the vision started to improve – August 2013. I remember sitting at my desk at work and half of my right pinky just went numb. I was also having strange chest pains at the time. I started running to reduce stress from the eye issue. But, the combination of chest pain and numbness threw me into a panic. I thought I was having a heart attack. I didn’t have any trouble breathing, but I didn’t like the symptom combination. I called my GP and she told me to come in right away. I did and she diagnosed me with costochondritis (rib cartilage inflammation from running – diaphragm expansion and contraction, etc.). She said it would go away, but wanted to slap an EKG on me just to be sure. Well, guess what… I spit out an abnormal EKG. She wasn’t legally allowed to interpret it, but was only able to tell me I had a phasing / polarity issue and had to refer me to a cardiologist. Awesome… so, my dad had a massive heart attack in 1996 at age 44. Thankfully he's still alive. Here comes the stress. I remember proving to myself that I didn’t have a heart problem by running 3 miles in 27 minutes. Still, I followed up with the heart doctors and did a stress test and echocardiogram. They had to kick me off the stress test machine because I literally just kept going. The echocardiogram had perfect results. So, I just have a benign heart phasing problem… likely since birth. Thanks for the ride doctors…

I didn’t really focus on the finger numbness at the time because it was pretty transient. But, after I got the clean reports about my heart, I noticed that my hands and elbows kept getting worse. It quickly turned into bilateral ulnar nerve irritation, pinky & ring finger numbness in both hands, then left shin numbness on and off for a day or two. I also had a long bout of upper back pain… just fierce burning between the shoulder blades and aching while driving that was very uncomfortable. Really the most persistent nervous system issue has been the ulnar nerve irritation, pinky / ring finger numbness, carpal tunnel like symptoms. I use the word numbness very broad here... I could definitely feel it if I poked my skin with something, but the skin just felt thick or different in those areas. It was also very transient. One hour my hands would feel pretty good, then a few hours later they just felt more numb and achy. I finally got in to see an orthopedic doctor in September. I remember standing in his office watching my right pinky and ring finger start twitching pretty violently while waiting to be examined. Of course it only lasted about a minute and I couldn't demonstrate it for him. Anyways, the exam was fine, no loss of strength... sent me home with some arm splints to help keep my elbows straight at night. I remember holding my elbows many times on the couch feeling my muscles twitch. This was very localized... I knew nothing about BFS, &LS... and the fears people had with muscle twitching. I felt since the nerves were irritated and I felt pain it was natural that the muscles would spaz out. Thank God I didn’t hop online to research anything EXCEPT for ulnar nerve / cubital tunnel / carpal tunnel syndrome. Otherwise if I came across anything about localized twitching I would’ve self destructed.

Over the next few months, other external factors were adding more and more anxiety on top of these new health issues. My wife and I decided to stop delaying starting a family, also had massive job stress at NASA, also trying to buy our second house. WHAM... consistent twitches Dec 2nd 2013 started in my calves. I remember laying on my bed just wondering why all the health issues... I was specifically focused on a question on med help with someone that has bilateral ulnar nerve issues asking if it was MS. I panicked and didn’t read the responses. I laid on my bed trying to regroup. Then, I just felt my calves start to bubble and twitch on me while laying down. I stood up and tried to “walk it off.” But, as soon as I would lay down or rest, they would start back up again. My stress BLEW through the roof and the twitching went body wide within 2 weeks or so. I remember walking became different. My gait changed a bit. My legs felt fatigued and like spaghetti. I got lightheaded. I developed hip pain. I developed pressure in my sinuses. I started getting sharp eye pains. I remember going to a mall with a bookstore and for the first time in my life I had to sit down and take a break from walking, just because I felt like I was walking in water. Because I started with some sensory issues and now had loads of fatigue, I was convinced I had MS. I started a journal to document all my feelings for my family… in case I never had the chance to be myself again in front of my wife and daughter. I bought a small library of books on MS. I remember the cashier asked if I wanted a gift receipt and I said “no… unfortunately they are for me.” I made my first neuro appointment in December 2013 and walked in telling them I thought I had MS. I went back for my first evaluation, passed the clinical tests and was sent for an MRI to be fully comprehensive. The time between the tests and results was torture. We had our gender reveal party for our baby and I was completely zoned out. Just flat out uninterested in others and so overwhelmed about my health. My wife and I went to see Cirque du Soleil and I remember hardly being able to walk from our car to the show… perhaps 100 yards. We kept sitting down so I could rest. On the way home my wife just cried because I kept telling her I had MS and that I was in so much fear. I remember going back for my results on Christmas eve expecting horrible news I’d have to hide from my family during the holidays. But, the MRI summary was “remarkable overall.” Showed one or two white matter lesions... non-specific... likely attributed to my bad migraine history. Neuro chalked all my symptoms up to stress. STRESS.

I was persistent seeing the same neuro and also my general practitioner because I’ve always been so healthy. I never had to deal with an uncontrollable body. I tried to emphasize the importance of all the twitching, all the various symptoms that started appearing… fatigue, tiredness in the morning, my hands getting tighter and tighter by the day. I was still researching MS non-stop because wait... the MRI was without contrast and I didn’t have a lumbar puncture or spine MRI.

Not sure when I came across aboutBFS. But, when I did, that’s when my &LS fears kicked in. I saw all the other concerned people, and I bought a ticket onto the same boat. I took my concerns to my neuro and she told me right off the bat that she knew I didn’t have &LS even without looking at me. I still pressed her for an EMG and nerve conductivity test because hey… that’s what this community is all about. Clean EMG and you are good right? So, the next day, she probed and shocked me all over my upper extremities. She stopped about half way through poking me and said she didn’t want to go any further because it was pointless. The only thing that showed up was slight carpal tunnel from the nerve conductivity test… and in my left hand which wasn’t even bothering me at the time.

After that, I went off on my merry way of having clean tests. But, the anxiety still kept coming. With each new twitch and hot spot, I worried. The most fear started to kick in around 3-4 months into the body wide twitching (so ~ February / March 2014 timeframe) when it started to feel difficult to stand up from my chair or to bend my arms up at the elbow. It just felt like my quads had just finished 3 sets of squats, but all I had done was sit in my chair at work for a few hours. Or it felt like I had done 3 sets of curls and my forearms and biceps felt really weak. It was a transient situation again though. It would be a sensation for a few hours and then clear up at night. Also… I would go to the gym regularly and lift weights with no change in the amount I could push or pull around… just to again prove to myself no true weakness.

Along with the transient perceived weakness, the pains started to creep in. Nerve pain in multiple areas… TMJ, finger pain, tight aching legs, pain in my forearms, pain in my shoulders. Pain all over really. On a scale from 1-10, I’d say a 3-4, sometimes a 5 or 6 for a few seconds with a sharp sting in the fingers or toes. I feel I have a high pain tolerance, so none of the pain has ever been enough to take an anti-inflammatory or pain pill.

So quick recap to this point in the timeline:

1) Left eye issue June 2013
2) Sensory issues and localized twitching begin in arms ~ August 2013
3) Body wide twitches, fatigue, dizziness, balance issues ~ December 2013
4) Clean MRI December 2013
5) Perceived weakness ~ February 2013
6) Clean EMG and Nerve Conductivity Test ~ February 2013
7) Nerve pain ~ March 2013

I decided that work was too stressful for me at NASA and decided to make a career switch. I got a job through a family member at a large software firm in April 2014. What I thought was a good move has turned out to be a more stressful situation in many respects. The job is certainly a money maker, but the stress can be really bad. I just don’t have the same level of confidence in a new industry. So guess what… more twitching, more pain, more perceived weakness, more crazy symptoms... buzzing legs. Electrical shock sensations. Myoclonic jerks. Tingling. I can remember typing furiously on my laptop one day during training in April… then all of a sudden my fingers got slow. Like it took full concentration to make them move where I wanted them to. I’m a fast typer… ~ 120 words per minute. I crept along at probably half that for a day. But, guess what… the next day I was fine.

We had a 5k event at the new job as well in April. I love running / jogging. It was a big hobby of mine to help reduce stress from the CSR event noted above. I ended up running the 5k in 30 minutes flat. When I was done, I literally couldn’t walk. My legs were pure jello. I could hardly control their movement and they really felt numb. But, throughout the entire 5k I was just humming along. I was so sore for 2 weeks afterward though. Sorest I’ve ever been in my life. But, I RAN A 5K IN 30 MINUTES! I’ve kept all this health stuff secret from friends, but I actually made a post in glee on Facebook when I completed the 5k, just saying how I felt I would’ve struggled running 5 blocks… let alone a 5k. I try to jog at least once a week. I at least get on an exercise bike to keep the legs moving.

May 2014 comes along – our baby girl is brought into the world. What an incredible experience. But, wow what a stressful one! I did find strength to help with everything I could. I refinished furniture for her nursery. Put up a chandelier. Painted her room. Each time we had to wake up during the night for a feeding was a complete challenge though. Some nights I just couldn’t get up to help. I felt completely exhausted every time I would wake up… no matter how much I slept.

As time has progressed since May, the overall theme seems to be more localized hot spots, more localized perceived weakness, and more aches and pains. I still twitch in every place imaginable, but I get longer hot spots. Early in the process, I would get a hot spot for a few hours, now I get them for a day or two. Also seems like the hot spots are more frequent. I used to get them maybe once a week… now it seems more like every other day.

About a month ago I started to experience some wicked sharp pain in my head. Like for a second I would get a zap of pain just to the left of my right temple that would almost go to the back of my head. Freaked me out. First time it happened it woke me up in the middle of the night. It was on and off maybe once or twice a day for about 2 weeks. I saw my GP and she called them ice pick headaches. She checked my balance and other things as I was concerned I had a tumor. Well, she said she had never seen anyone in her 30+ years develop something like that after coming in with these headaches. The headaches also went away for a good 3 weeks, but they do creep up on me every now and then. She also said it could be nerve irritation.

I guess I’ll leave with this final example that really helped me overcome my &LS fears. Up until this point, each new hot spot and perceived weakness feeling got me thinking the worst. Would I really overcome it or was it the start of the downhill trend? Well, 4 weeks ago, I helped my brother move into a new house. I was terrified just because I know how sensitive my nerves are and that I would be in pain afterwards. Well, I helped lift some heavy bulky furniture up and down stairs and boy was I right. My entire right arm was a mess for well over a week. So bad that the &LS fears really crept up on me because I honestly had weakness issues. My entire arm was so sore, tired, and weak… not hey I had a good workout sore, but like I put it in a meat grinder sore along with nerve pain. The twitching was all very localized. A lot in my hands for days. It was difficult to pick things up. Turning the wheel on my car felt different. Buttoning my pants was difficult. I struggled to hold our baby for more than a few minutes. It was really bad… each day felt worse and worse. I kept doing strength tests pinching my fingers together just to make sure I could. Friday, August 29th one of my fingers stopped bending the same way. I remember coming in to work and trying to extend it straight… my right ring finger. It just wouldn’t. I showed my coworker and he was like, “huh… that’s messed up!” It would lock on the first knuckle and prevent the next knuckle from straightening. I thought that was it… I did something and my body has gone off the deep end and now I have “inability.” I popped half a Klonopin for the first time in 5 months and drove straight home. During my drive home my finger straightened itself out. Over the next week, my arm improved and I actually just completed moving my wife and I into a new house. Today I just helped my brother and dad move kitchen appliances between two homes… refrigerator, oven, and washing machine. No loss of strength. No dropping things. No locking cramps. Nothing… I’M OK DAMNIT!

So here’s how my symptoms work against me:

1) For me, twitching is a source of anxiety and disruption. It distracts me and gets my mind wandering. But, at the end of the day when I realize this is benign, the twitches are just annoying. Hot spots just pump up the anxiety and get me wondering what if…
2) The symptoms that are most difficult to deal with are the pains, aches, perceived weakness, and fatigue. The pain is no joke. My hands are always tight… especially when I first wake up. My legs and ankles are very tight when I get out of bed. Many times throughout the day I’ll get jolts of hard stinging pain in my fingers or toes. My legs and upper back seem to ache just non-stop. My hips and lower abdomen ache while I drive. It’ll just be a dull bone type ache in my muscles.
3) I can lift weights. I can work out hard. It’s painful at times. But, my muscles get sore, I do develop and maintain strength. I also move up in weights at the gym. But, sometimes it just feels uncomfortable to lift weights… I just feel nerve pain as opposed to muscle pump / stress relief.

Here are my conclusions:

1) I honestly believe I have fibromyalgia more than anything else. The first nerve issues were transient sensory changes, with twitching and pain in those areas. You can see my overall symptom list below and it falls in line well with that condition. I think BFS was an add-on due to stress. Who knows... maybe it's all just part of the same category.
2) &LS just doesn’t make sense. As bad as it wants to creep into my head, just reading my story here makes me shake my head and say no way. How does bilateral ulnar / carpal tunnel issues turn into &LS? It just doesn’t. Pins and needles, cold shivers, electrical shocks, tremors, etc aren’t part of the symptom picture. Better yet… maintaining my strength this whole time certainly is not part of the picture.
3) I don’t believe I have MS, although that thought still pops into my head. Even if that did enter the picture, I have a ton of literature to follow and many examples to read about people living active lives for 40+ years with it.

Here are my recommendations:

1) When you get your clinical review OK’d by your neuro… STOP… for the love of God or whomever / whatever you believe to be Holy… STOP researching &LS. Stop going on the &LS forums. Stop Googling the symptoms. Stop looking at Youtube videos. Go stupid on the subject. Get off this website if you have to. Become ambivalent per se. You know why? There’s so much information out there and very few of us are doctors / experts.
2) Understand that this BFS / Firbro / CFS / Neuromyotonia menagerie has many flavors and things have the potential to get more challenging day by day. But, don’t let it scare you. Face the challenge. Understand you may start to ache. Understand you may experience fatigue. Understand that your twitches will go into all sorts of weird places and that the twitches or the fatigue they cause may impact your ability to do certain things. You may really feel weak. I'll say it again. You may really feel weak. Some days I feel like I have a lisp or slight slur. Some days my typing is crap. Some days my balance is just way off. Some days my left leg just doesn’t feel right. Our nerves are hypersensitive and our body responds differently to things we were accustomed to doing. We take longer to recover.
3) STOP doing the strength tests. STAHHHHHPPPP. If an area feels weak. Check it once, then leave it alone. I can’t tell you how many times I put myself in a downward spiral because I would walk on my heels and tip-toes every 15 minutes and it got a little more difficult each time I would do it. Or I would pinch my fingers together over and over and over because it was more and more difficult to do. CUT IT OUT.
4) Find a new hobby. Distract yourself. Get your mind off your symptoms. Do it any way you have to, without alcohol or drugs. I’m not opposed to benzos short term if it does the trick. Just don’t get dependent on them… it’s very easy. Happened to me with Klonopin ~ January – March.
5) If you have the discipline to adjust your diet, do so. I tried my best. I do believe I have the strength. But, I’ve noticed my symptoms are better when I’m full. If I eat like a rabbit or completely try to eliminate bread, processed foods, the stress from being unsatisfied or craving some type of food just makes all my symptoms feel worse. I’m probably not doing the right thing for the long term, so I’m still working on adjusting this.
6) We need to stop using the term “weakness” and start using the term “inability” in my opinion. I’ve felt weak many times in all this. I’ve never LOST strength for good. I’ve never LOST the ABILITY to pick something up or push as much weight around in the gym. I've seen my arms and legs tremble just walking up steps or picking up a bag. But, I know right now that wouldn't happen because I feel all my strength is back.

Finally, I thought I would present an overall symptom list in as chronological an order as I can. As you can see it’s just an absurd list that could go on and on… note just about everything comes and goes except the hand issues. My hands just about always feel tight… almost like the muscles are a little short. But, I have full use of all my fingers. Full strength. Full range of motion.

- Left eye CSR
- Bilateral ulnar nerve irritation
- Bilateral elbow pains and aches
- Bilateral pinky and ring finger numbness, thick skin feeling, tightness
- Bilateral median nerve irritation
- Bilateral thumb and index finger numbness, thick skin feeling, tightness
- Bilateral elbow twitching
- Left leg shin numbness / hallow feeling
- Body wide muscle twitches (seriously all muscles… even the rarer areas like the tongue, ear drum, private areas, throat, etc.). If I listed every area it would go on and on and on. My twitches generally just pop a few times in a random area then move on. Some a big thumpers that you can see through my clothes. Others are hard to notice. I do get hot spots of localized twitching for a day or two at a time. I assume the random pops are about 1-2 every 5 seconds. So that’s ~17,000 to 30,000+ twitches every 24 hours. Some days are worse, but I think I’m generally at the low end of that. Feels like when I twitch less I hurt more and vice versa.
- Right eye CSR
- Sharp eye pain
- Dry eyes
- Sinus pressure (feels like dry sinuses)
- GERD / lump in the throat
- Fine Tremors (hands, arms, lips)
- Perceived weakness (biceps, shoulders, quadriceps, front of shin)
- TMJ
- Restless legs
- Skull shivers?
- Muscle aches and pains. Started in my upper back, then my elbows, then my fingers, then my forearms, then my shoulders, then my quads, calves, hamstrings. Sometimes my midsection will just ache on me. Feels like bad growing pains if you ever had those.
- Slight lisp / slur every now and then when my tongue gets tired from talking a lot or eating. I ask my wife if I sound different all the time. She says no, but I certainly feel like it's hard to get the right words out sometimes.
- Hypersensitive private areas sometimes? I’m a sure thing basically.
- Ice pick headaches.
- Migraines – when I was younger the migraines would last one night. Some I’ve gotten now have lasted more than a day or two. They go away if I drop some Excedrin, but I try to avoid OTC pills like that.
- Drifting thoughts, foggy head... difficult concentrating...
- Nausea – This started hitting me out of the blue around the same time as the ice pick headaches. No fun, but it just comes on strong then clears up.
- The skin on my palms sometimes feels like an ice cube is on it after I touch it
- Top of my hands and forearms burn sometimes

I'll stop there. I'm not trying to make it a competition. It just goes to show how this can progress...

Finally, feel free to PM me. I love helping others and if I can help you, then my time on this board will certainly be that much more valuable.
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Re: My 1 Year Update - Here to Encourage You!!!

Postby Yuliasir on September 13th, 2014, 12:43 am

hey seems like you really had a trial!

I may tell you that at least thos sharp pains in the muscles and eyes is what I share with you :) As for the muscles I have no idea about their origin, and as for the eyes my ophtalmologist just told me they are vessel spasms. The pains are really stabbing sharp, quite bad feeling - but they even did not affect my sight, thanks God. I was also told I have poor retinal circulation (due to high blood viscosity caused by hormonal pills I used for years).

As for muscle pains, I have them since my teenage years , especially hard when I am stressed.

your story demonstrates how stress becomes a snowball, growing mnore and more and ruining everything it can capture - job, family, the whole life. And it is hard to understand for us that there is a limit reached over and we would not be the same never ever.

but you seem to be a winner. Hold on, keep your win.
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Re: My 1 Year Update - Here to Encourage You!!!

Postby Yuliasir on September 13th, 2014, 12:46 am

Feels like when I twitch less I hurt more and vice versa.


this was also reported here by some other fellows, so another one plus to BFS clinical picture in your case. Also having pops and twitches increased when you lay down and try to relax. I remember my neuro asking me specifically if I have more twitching in the bed, and I said yes and she seemed to be relieved with this reply :)
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Re: My 1 Year Update - Here to Encourage You!!!

Postby UFGatorGuy20 on September 13th, 2014, 8:36 pm

The only vision changes I have to deal with are a result of the CSR... which is completely unrelated to any of the nerve hyper-excitability discussed here. My retina doc told me it's just stress and linked to type A people. :? But, I have some retina scaring in my right eye because it's actually a recurring chronic issue in that eye. My left eye is completely normal again, but my right eye vision is a little darker and slightly far away... so I get ghost imaging. I'm still 20/20 though despite! The eye pains, which were very temporary near the beginning of all this didn't create any vision changes that were permanent. Sometimes I felt my vision would just bounce around a bit, but I really believe that was just stress from all this starting.

Even though I wrote this long success story last night, today was actually a really tough day for me. My hands and feet were really tight getting out of bed. My first few steps were very cautious, but getting into my morning routine clears up 50-75% of the stiffness. But, I had a really bad bought of nausea for about an hour. Just a random wave of nausea compounded with fatigue... but only for like an hour. No idea why. I walked over to the living room, got on the floor, did some stretches and it just cleared up. Went for a walk.

Then... and this is just ridiculous. But, I was taking a close look at my hands because they have been tight today (helped move appliances yesterday for my parents)... and I thought I saw a line of atrophy near my thumb. It sent me into a quick panic. I've never analyzed my hands so close. Obviously if I have no strength changes or movement limitations with my hands, despite the tightness, I don't have atrophy. Still, I put on my running shoes and ran 3 miles. Did some push ups. Checked my strength. I'm ok and I'm almost positive the thin line I found near my thumb is actually from a cut I had earlier in the year.

Just goes to show you the ups and downs of this syndrome and how it really just toys with our minds... :x
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Re: My 1 Year Update - Here to Encourage You!!!

Postby Yuliasir on September 14th, 2014, 12:56 am

nausea is an autonomous system reaction on hyperexcitaility of the GIT so it could be part of our syndrome, especially if you do not have other GIT symptomes like pain or diarroea.

it should be really scary to have such retina issues like yours :(((
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Re: My 1 Year Update - Here to Encourage You!!!

Postby terry in sf on September 17th, 2014, 7:27 pm

Thank you very much for this post. :D I think I am going to print out your recommendations and keep them for ready reference!
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Re: My 1 Year Update - Here to Encourage You!!!

Postby UFGatorGuy20 on September 18th, 2014, 10:45 am

Yuliasir wrote:nausea is an autonomous system reaction on hyperexcitaility of the GIT so it could be part of our syndrome, especially if you do not have other GIT symptomes like pain or diarroea.

it should be really scary to have such retina issues like yours :(((


The retina issue was my first symptom (again I believe completely unrelated to BFS), but it's what put me into the worst stress in my life up to that point. Even though I was told it was a benign condition and would clear on its own (which it has in my left eye). I was completely fixated on it because I could see it all the time... when my eyes were open the vision was bubbled, when my eyes were closed I could see a large highlighted edema. No fun. My right eye has cleared mostly, but it is a small chronic issue. Every other morning, I wake up and I can see a small halo / edema when I close that eye. It's very small so I just don't worry about it. All the BFS has completely surpassed that issue. I'm always focused on the twitches, pain, and rushes of weakness that come and go. :|
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Re: My 1 Year Update - Here to Encourage You!!!

Postby UFGatorGuy20 on September 18th, 2014, 10:50 am

terry in sf wrote:Thank you very much for this post. :D I think I am going to print out your recommendations and keep them for ready reference!


Honestly... I need to print it out for myself! Just about every day poses a significant challenge now and I need to remind myself it will get better at some point during the day. Some examples:

Yesterday, I decided to hang some mirrors in our dining room. After standing still and stretching my legs for a long period of time to measure dimensions and where to place nail holes, my legs felt completely stiff and weak. It was like I was walking in water. Took a break, sat down to do some work on my computer. Still wasn't feeling back to "normal" ... or as normal as normal can be for me now. So, I went outside and did some yardwork. Got my mind off it and it cleared up.

Today, my right hand again has been stiff on and off. When it gets stiff, I start doing the strength tests clinching my fists and pinching my fingers together. Obviously, that puts some sort of temporary trauma on the hand and it gets more and more difficult and they start twitching. If I leave it alone, get focused on my day, it really seems to clear up quite a bit.
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Re: My 1 Year Update - Here to Encourage You!!!

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