Terrified of ALS

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Re: Terrified of ALS

Postby enzoli99 on September 11th, 2014, 6:21 am

Yuliasir .....your words and information are very healing. Im a 42 year old male and my father got diagnosed with Parkinsin since he was 51 ( 23 years ago). Ever since then, I have becaome a crazy hypochondriac.
I dont want to go off topic but as I said in my post, 3 weeks ago I woke up with the worst pain in my left knee. I didnt iy use the knee for 2 weeks and have been walking with a cane for the last week. I noticed that the left leg has atrphied quiet a bit. the muscle over my knee has become smaller and week. Is this not a symptom of ***? Or ir is it simply because I havent used it for a couple of weeks?
Once again, I thank you all for listening and advising. I find it comforting.
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Re: Terrified of ALS

Postby Yuliasir on September 11th, 2014, 6:47 am

In no case it is a symptom of ALS! look, I have a friend who had his leg broken and unfortunately it did not healed so he had to wear a cast for 3 or 4 months.
he had such an atrophy that in fact he could not walk.

2 weeks of decreased usage may make your leg really a bit weak. it is normal. As for the difference, I doubt it is so big becasue usually people in BFS have significantly increased attention to the body difference.

As for the pain itself, it may bo worth to see a surgeon. Tendon cyst, deep vein problems, minor inflammation or dislocation - everything is possible generally. People in BFS for some reasons often demonstrate increased flexibility in joints (hypermobility), so certain dislocation of the knee part is quite possible and believe me it is bloody painful thing...
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Re: Terrified of ALS

Postby enzoli99 on September 11th, 2014, 7:28 am

. < In no case it is a symptom of ALS!.....I love to hear those words. Im going to try to stop worrying so much. Last night I had to take an ativan to help me sleep.
Hopefully, i can start some physio therapy so that my left leg can get stronger and gain some muscle back. Thanks once again for your words of reassurance.
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Re: Terrified of ALS

Postby Yuliasir on September 11th, 2014, 7:33 am

physio is very good nd I hope yur leg would be Ok.

on my experience, people with GAD/OCD are easily getting into BFS or maybe BFS also causes GAD/OCD or promotes it in people who never had compalined for mood disorders before so when people here ask my advice about the cure I usually try to focus their attention of the fact that anxiety or obsessive toughts are our enemy number 1, not twitches or pains. fortunately there are a lot of techniques and meds to cure mood disrders or at leat get them controlled well, so prognosis is usally good :)))

we just need a right doctor, and in most cases it is not neuro :) but psychologist/psychiatrist.
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Re: Terrified of ALS

Postby enzoli99 on September 12th, 2014, 6:41 am

Wow, what a horrible night I had. Aches in my shoulders, calves, hand, arms...Non stop twitching all night. Of course, I get up in full anxiety and start testing my strenght. I walk down the stairs, walk on my toes, walk on my heel. I walk and im losing balance. I really hope this is all in my head. I cant continue like this. Im losing it ! Im going to the doctor today and I will ask for a refferal to a neuro. It takes forever to get an appointment . I hope i could hang in there. I woke up exhausted and pains everywhere. Not feeling good :-(
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Re: Terrified of ALS

Postby Yuliasir on September 12th, 2014, 6:48 am

We had many people suffering like you here - with pains and even inability to walk (read SuzyQ history, it is really amazing - she was nearly disabled and got 100 % cure). If neuro would clear you from any significant disorder, then your next step must be a specialist to treat your fears.
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Re: Terrified of ALS

Postby enzoli99 on September 12th, 2014, 6:51 am

Yuliasir wrote:We had many people suffering like you here - with pains and even inability to walk (read SuzyQ history, it is really amazing - she was nearly disabled and got 100 % cure). If neuro would clear you from any significant disorder, then your next step must be a specialist to treat your fears.


Thats exactly the plan. I know I suffer from hypochondria and want to get help for that. I need to start with seeing a neuro. The only prob is that it could take months to see one. I need to hang in there.
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Re: Terrified of ALS

Postby Yuliasir on September 12th, 2014, 7:18 am

Is there any other way - like private consultation or neurological emergency to make clinical exam? practically clean clinical is enough to clear out significant neurological disorders and you may start with the next step.
in treating fears time my be essential in order to decrease the burden.
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Re: Terrified of ALS

Postby enzoli99 on September 12th, 2014, 7:35 am

Yuliasir wrote:Is there any other way - like private consultation or neurological emergency to make clinical exam? practically clean clinical is enough to clear out significant neurological disorders and you may start with the next step.
in treating fears time my be essential in order to decrease the burden.


Unfortunately. no. The hospitals are so backed up and private in unaffordable. I will see how I can go about this.
Seriously, it is so nice of you to take he time and respond to me. Just knowing that there is someone out there who knows what I am going through makes me feel not alone so....thank you :-)
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Re: Terrified of ALS

Postby misterjuanperalta on September 12th, 2014, 7:09 pm

My sympathies for you. Yuli is awesome. Regards.
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Re: Terrified of ALS

Postby RGB on September 12th, 2014, 9:14 pm

Nothing about your history is suggestive of ALS.

You need to see a neuro so that an expert can tell you that it isn't ALS, then you have to believe them.

I hope you get your health issues sorted. 'Reading between the lines' I think you are probably aware that a large part (but I'm not suggesting all) of the problem is going to be overcoming the hypochondria and anxiety.

RGB.
My history....Jan '13: Widespread Twitches. May 13': Unremarkable Neuro Exam. Jul '13: Clean EMG. Oct '13: BFS Diagnosis Today's Date: Twitching and Healthy!
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Re: Terrified of ALS

Postby enzoli99 on September 13th, 2014, 3:33 pm

RGB wrote:Nothing about your history is suggestive of ALS.

You need to see a neuro so that an expert can tell you that it isn't ALS, then you have to believe them.

I hope you get your health issues sorted. 'Reading between the lines' I think you are probably aware that a large part (but I'm not suggesting all) of the problem is going to be overcoming the hypochondria and anxiety.

RGB.


I do admit to having extreme anxiety and hypochondria.
But this time, my symptoms are so real. I actually have a hard time walking from the weakness and pain. I noticed today that when I tighten up my left leg, I see that my leg muscles twitch like a ripple effect. When I de contract the muscle, i dont see that ripple effect anymore. Im so scared to google it, so I have not. I also feel constant explosions and "electricity" going on under my skin. Ooooff, i wish I could go to sleep for 3 days straight and wake up brand new.
Thanks for listening in
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Re: Terrified of ALS

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