Well you will probably still suffer in some form or another for the rest of your life. But again, a lot of that is up to you. When it comes to BFS, how much you suffer is generally dependent on how much you let yourself suffer. The minute you realize you have control over all this, and you can affect it based on the choices you make throughout the day, that is the minute when BFS will just fade away into being an annoyance. It won't happen right away, but it will happen eventually. And sometimes it will come and go based on how well you are doing with your focus and your mental discipline. I mean, even for me I will have relapses from time to time where I get lazy and I don't get enough sleep and I get overwhelmed because of the stress at work. It sucks, but it happens. And when that happens you just have to go right back to what you were doing before, you have to double down on your discipline and find a way to get your mojo back. Because that is really all that BFS is. You have a hair trigger nervous system now that is susceptible to all sorts of nonsense and noise and other B.S. you used to be able to ignore. Why did it happen? Who knows. Let somebody else spend hundreds of thousands of dollars and let somebody else waste years of their life going to eight hundred different doctors just to figure it out. But that is all you have. Any attempt to complicate BFS and make it anything more than "you have an overloaded nervous system" is just overcomplicating things and adding to your new obsession problem.
But yes, the key when it comes to BFS is you constantly have to find a way to get your mojo back. You have to learn to be strong. Don't let little things even bother you anymore. Once you are able to start doing that, the symptoms fade into the background and it all just becomes a delicate balancing game.
In terms of easing anxieties, I really wish that more veterans posted here. I wish we all did. But you have to realize that in the delicate balancing games, we are BFS sufferers too. I mean, it might not bother most of us anymore for the most part, but that is only because the secret of BFS is not thinking about it or worrying about it anymore. And one of the keys to that is to stay away from this board. That is the great curse when it comes to BFS. The more you learn about it, the more you realize that you can't be hanging around other BFS people all the time. You just can't make that your world, because it would be counterproductive to everything you are trying to do. So you have to leave the board, and then you just start obsessing about BFS less and less and less, and things start to get better.
Which means, of course, that as more people recover from BFS and get better, there are less veterans around here to help out the newbies. And that is the great problem with a condition like this. The newbies need to hear good news and they need to hear ways that they can deal with this new condition of theirs, but there is no one around because the veterans are all wisely staying away because that is how they became veterans in the first place. And then of course the board will just go through phases where there are -no- veterans hanging around here at all, and at times like that it is like the inmates come in and take over the asylum, and every post on the board will be panicky and scary and then everyone will work themselves up into a tizzy because it is all newbies. When I see that happening I try to come back and step in because anyone who has been around here when the board is like that knows how out of control it can get. And lord knows if you hang around this board long enough you will realize how cyclical this place can be. As the veterans of aboutbfs like to say, the arguments around here never change, only the names do.

There is never anything being posted on this board that hasn't been written or said or "discovered" at least a dozen other times before. Hang around here long enough and you will see how predictable this place can be. You will also see that nobody here actually has anything seriously wrong with them. No one is actually dying here. We just live like we are.
In any case, anything anyone ever needs to know about BFS can be found in Arron Johnson's "BFS in a Nutshell", which has been stickied here for ten years and is very easy to find. Any attempts to make BFS into something bigger than that, or something more complicated than that, is just a person deliberately interfering with their own recovery. It is adding drama to one's life just for the sake of adding drama. Once people realize that they are doing that, and they accept it, and most importantly they make changes not to do that anymore, BFS really isn't all that difficult to deal with anymore once you get the hang of it.
Also, everyone who is new at this should read my signature line below. Although I really should just amend it to say this: #1 no you don't have bulbar. #2 no your symptoms aren't unique. #3 why no, I don't think you are a special little snowflake who is different than everyone else. It's blunt but it's pretty accurate of how you need to start approaching this stuff.
Good luck to all of you. Before you know it, soon you guys will be veterans too. Then we can all stay away from this place together to facilitate our recovery.
