A Diagnosis!

General Topics

Moderators: JohnV, Arron, garym

A Diagnosis!

Postby RecentTwitcher** on July 10th, 2014, 1:10 pm

I posted a little over a week ago about whether or not to get a second opinion on my (now 10 weeks of) twitching. My first neuro was fairly confident that the bad stuff could be ruled out, but was also hesitant to give a BFS diagnosis. This left me a little uneasy, and my twitching continued to evolve. Well, I ended up going for the second opinion this morning with the Head of the ALS Clinic at a local hospital, and was given a BFS diagnosis! I was little concerned because my reflexes were quite brisk (in both arms and legs), and seemed far more brisk than at my initial neuro appt at the beginning of May (my legs really shot out!). However, my doctor today was not concerned and explained that a) brisk reflexes are common for folks with anxiety and b) the brisk reflexes were symmetric and therefore not worrisome. I know some posters have asked about brisk reflexes and BFS, so this is another good corroboration that it is normal. Happy to join the BFS community!

RT
RecentTwitcher**
New Member
New Member
 
Posts: 4
Joined: June 24th, 2014, 4:06 pm

Re: A Diagnosis!

Postby Josmo on July 10th, 2014, 10:28 pm

Congratulations !! Even thougt bfs is very annoying it's the best option !!;)
Best wishes,
Joanna
User avatar
Josmo
Senior Member
Senior Member
 
Posts: 62
Joined: July 7th, 2013, 9:42 am
Location: USA

Re: A Diagnosis!

Postby Red Raider on July 10th, 2014, 10:37 pm

Congrats!!!

Even though they are very annoying you will get used to them some it takes longer and some shorter but believe in your doctors or else you will find yourself back at square one take care.

Houston
User avatar
Red Raider
Senior Member
Senior Member
 
Posts: 92
Joined: April 1st, 2014, 1:03 pm

Re: A Diagnosis!

Postby RecentTwitcher** on July 18th, 2014, 2:18 pm

Thanks for the replies. It is indeed annoying (very!), and still hard for me to completely ignore. Even as I write this, the inside of my right calf looks and feels like someone is trying to push their way through the skin, and the outside of the calf looks like rain on a pond. The ALS specialist said "You will live with this for the rest of your life. Some days will be worse than others, and it will move around from muscle to muscle", and then she added- and this is the part I play in my head again and again- "but it won't kill you and you do not have ALS". Just trying to embrace the twitching at this point, and let it be a part of me.

Thanks again.

RT
RecentTwitcher**
New Member
New Member
 
Posts: 4
Joined: June 24th, 2014, 4:06 pm

Re: A Diagnosis!

Sponsor

Sponsor
 


Return to General Topics

Who is online

Users browsing this forum: Google [Bot] and 8 guests