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bobajojo wrote:edado69,
I'll jump in on this because I'm nearly 3 years into this madness and having the worst flare-up since the start. Both my biceps have been fluttering for 5+weeks. They have not stopped for a second. I can just look at them bouncing in several areas of the muscle. Little twitches, big twitches, machine gunners, all going at once. Its very distressing. In addition to that, both my shoulder girdles have been acting up as well but those seem to be related to my body position. So, when I turn over in bed for example, one of my shoulder girdles will twitch for 30 seconds or so. If I turn to the other side, the other one will twitch. My tongue, chin, both eyelids, thighs, abdomen, legs, have all been firing away randomly. But the weirdest one for me is my testicle. Its actually twitching and has been nonstop since mid-November! So frustrating. So... I understand your frustration. Hang in there. -Matt
bobajojo wrote:edado69,
I'll jump in on this because I'm nearly 3 years into this madness and having the worst flare-up since the start. Both my biceps have been fluttering for 5+weeks. They have not stopped for a second. I can just look at them bouncing in several areas of the muscle. Little twitches, big twitches, machine gunners, all going at once. Its very distressing. In addition to that, both my shoulder girdles have been acting up as well but those seem to be related to my body position. So, when I turn over in bed for example, one of my shoulder girdles will twitch for 30 seconds or so. If I turn to the other side, the other one will twitch. My tongue, chin, both eyelids, thighs, abdomen, legs, have all been firing away randomly. But the weirdest one for me is my testicle. Its actually twitching and has been nonstop since mid-November! So frustrating. So... I understand your frustration. Hang in there. -Matt
bobajojo wrote:edado69,
I'll jump in on this because I'm nearly 3 years into this madness and having the worst flare-up since the start. Both my biceps have been fluttering for 5+weeks. They have not stopped for a second. I can just look at them bouncing in several areas of the muscle. Little twitches, big twitches, machine gunners, all going at once. Its very distressing. In addition to that, both my shoulder girdles have been acting up as well but those seem to be related to my body position. So, when I turn over in bed for example, one of my shoulder girdles will twitch for 30 seconds or so. If I turn to the other side, the other one will twitch. My tongue, chin, both eyelids, thighs, abdomen, legs, have all been firing away randomly. But the weirdest one for me is my testicle. Its actually twitching and has been nonstop since mid-November! So frustrating. So... I understand your frustration. Hang in there. -Matt
bobajojo wrote:edado69,
I'll jump in on this because I'm nearly 3 years into this madness and having the worst flare-up since the start. Both my biceps have been fluttering for 5+weeks. They have not stopped for a second. I can just look at them bouncing in several areas of the muscle. Little twitches, big twitches, machine gunners, all going at once. Its very distressing. In addition to that, both my shoulder girdles have been acting up as well but those seem to be related to my body position. So, when I turn over in bed for example, one of my shoulder girdles will twitch for 30 seconds or so. If I turn to the other side, the other one will twitch. My tongue, chin, both eyelids, thighs, abdomen, legs, have all been firing away randomly. But the weirdest one for me is my testicle. Its actually twitching and has been nonstop since mid-November! So frustrating. So... I understand your frustration. Hang in there. -Matt
bobajojo wrote:edado,
Yeah, laying down in bed is the worst. I think I twitch the same all throughout the day but I'm just so aware of them all when I'm still. My twitches, especially the hotspots, continue during sleep. I've actually dreamed about my tongue twitching, or my shoulder twitching and instantly woken up to them actually twitching so I'm sure they were happening as I slept. For me, I'm usually so tired by the time I go to bed that I can just let the twitching go and fall to sleep. My biggest problem is that my wife gets up at 5AM and her alarm clock wakes me up. Then I become a human popcorn machine and can't fall back asleep. So I lay in bed from 5-7AM just twitching away.
-Matt
nrwtwitcher wrote:Dear edado. It is impossible for me to sleep because I have also extreme twitches during the whole night. I am twitching since 6 month now. The last 3 weeks my twitches becomes more worse than ever....
nrwtwitcher wrote:You can see my twitchers under my clothes too. They are so extreme. And I am cramping every night... I cannot believe that this should be benign... in my case of course... really bad days and nights
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