New Worried Twitcher

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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Re: New Worried Twitcher

Postby Scboy on January 24th, 2014, 2:20 pm

Thanks. I'm in Greenville sc. I have an appointment at Emory in Atlanta with a neuro muscle specialist on Mar 4th. (Too long) This leg pain is freaking me out cause the neurologist I saw said he didn't think it was part of BFS. I think it is though, but what do I know I'm not a Dr. Just when I think I have a grip something else comes up. I just want to know if this pain is normal with BFS.
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Re: New Worried Twitcher

Postby leaflea on January 24th, 2014, 4:38 pm

Sounds like exercise intolerance, or maybe totally unrelated like a pulled muscle.
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: New Worried Twitcher

Postby Scboy on January 24th, 2014, 5:45 pm

It feels like pins and needles on both legs. My guess would be exercise intolerance but I don't know. I mentioned this to the dr, but he didn't seem to know much about it. That's the frustrating part. ALS is pretty much off the radar screen as far as I'm concerned, but I'm still wondering what else it could be and if this is typical of BFS.
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Re: New Worried Twitcher

Postby ShawnW on January 26th, 2014, 12:09 pm

Normal clinical+normal EMG=you don't have ***. Many astute neurologists won't do an EMG if the clinical is normal.

I would take the examination of the highly trained neurologist over your untrained examination. A neurologist isn't going to miss spasticity, clonus, +babinski, clinical weakness unless he is asleep, drunk or high. These are basics of any neurological exam.

Pain, and hypersensitivity have nothing to do with ***.

Isolated fasciculations have little clinical relevance.

Odds are you won't be able to take any reassurance, because you have an anxiety disorder. And when we fill anxious its much like water. It doesn't take form until you pour it into a vessel. The vessel you have chosen just happens to be your health.

Instead of searching endlessly on the internet for causes of your symptoms which are likely somatization from anxiety...work on ways to control your anxiety. Until the anxiety is addressed...you will move from symptom to symptom searching out medical causes of mental, physical and spiritual pain.

If I actually take my own advice above...I do pretty well. When I don't...I suffer. When the pain is great enough we begin to do things...and think about things differently and that is where the healing begins.
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Re: New Worried Twitcher

Postby Scboy on February 4th, 2014, 10:57 am

New symptom of burning legs at night. Does anybody else get that? Is it typical of BFS?
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Re: New Worried Twitcher

Postby Scandinavian girl on February 10th, 2014, 7:23 am

I have burning all over my body, included my scalp..worst in legs..but was intense in scalp for many mounths..feels like burning attacks, like someone spills very hot water on me and then it fades away in about 10 sec and it comes again and again..I have taken a Thermo test and skin biopsy and it turned out I have small fiber neuropathy..
(Also have a lot of other symptomps, included fasciculations all over..)
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Re: New Worried Twitcher

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