Hello all,
Im am a new voice, but have been visiting this site off and on for almost a year. I have yet to be diagnosed and am frustrated.
I began having symptoms last february. It started suddenly at work one evening. I had tingling and vibrations in my hands and feet. I also began having leg and ankle "jerks", like "jolts" I saw my pcp, and was tested for b12 deficiency which came back on the lower end of normal. He began treating me with injections but felt strongly that this was not causing my symptoms. The symptoms where still there and strong a week later and I got myself so worked up I ended up getting my pcp to order and MRI. My MRI of the brain was normal. I was to follow up with neurology. I saw the neurologist approx 3 weeks later, and my symptoms were still there but almost gone at that point. His impression after my exam was possible a very mild form of gillian berre syndrome, considering I had a UTI and finished a course of cipro about one week prior to my symptoms starting. He did a blood workup, MRI c spine and an emg. Everything came back normal except for my ANA was elevated at 1:160. My PCP referred me to a rheumotologist. At this point my symptoms were gone, but approx 3 weeks later they were back. My main symptoms again were tingling and strange sensations and a twitch here and there. ANd this went on from march to may off and on, but in "exacerbations" meaning, it would come in waves. Good weeks and bad weeks. It was never a day to day thing. My Rheumotologist did blood work and a chest x ray. All the testing he ordered came back normal, except my ANA which was still elavated but closer to normal at 1:80. He believed it wasn't rheumotologic and my ANA was "post viral". I also began at this point having muscle like pain in my hands feet and calves. But I never felt weakness, in fact I was running and exercise felt good, although I did feel more sore a day or two after a hard work out than I used to prior to the start of all this. All summer I felt great, I did not have symptoms and I started zoloft which helped my anxiety. In late august, symptoms came back, full force, this time more pain and more twitching. I began noticing the twitching constantly in the arches of my feet, calves, thighs, back muscles, lips and eyes. And its been off and on again to this point. The pain definitely feels muscular. I had a six month follow up with blood work with the rheum., and all came back normal except ANA which is still 1:80. I went back to my PCP and he said that zoloft can make me twitch so he wanted to wean me down from 75 to 50 to see if that makes a difference, which I currently doing. He also ordered me an emg again. I had the test last week, and again it came back normal. The tech said he could see the twitching, but they are benign. I cannot see the neurologist until January. Im just confused and frustrated. I am a worrier and feel my symptoms are worse with stress, and they also seem worse when I have a cold. Im really not sure what to think?!