by leaflea on December 7th, 2013, 11:50 am
Is it just me? or has anyone else noticed from reading (compulsively in recent weeks) this site as well as alsforums.com and other blogs written by folks with ALS ~~ that those of us with...assumed BFS or normal EMGS or diagnosed BFS...seem to have much much much much much higher levels of anxiety about ALS than those unfortunate folks who actually HAVE an ALS diagnosis?...and we seem to have it higher than they did even while they were in the process of being diagnosed? To me, this makes BFS and ALS even more distinct diseases with some shared symptoms. It seems to me that BFS is more of an anxiety based disorder, with the physical basis of it yet unknown (similar to depression with somewhat known chemical pinnings). I mean, people who have ALS and are...wheelchairbound or bedridden or unable to speak...generally seem to cope better with their symptoms, diagnosis, and life better than those of us with a very hopeful prognosis. They sleep better and function at higher levels than some of us paralyzed not by ALS, but by fear. Just an observation and something to think about. Carry on and have a wonderful weekend everyone.
Matthew 6:27 Who of you by worrying can add a single hour to his life?