Toe Sensory Issue....Regression in my Progress

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Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 7th, 2013, 5:07 pm

Hey Guys,

Looks like I'm blowing up the Forum right now with a lot of activity, and I apologize. ...I haven't been in this panicked of a state in a long long time -- which, really shows how far I've come, because this is a horrible feeling, a feeling of impending DOOM.


So, this is my first real symptom to an extremity....and, because of the implications of toes and fingers and how *** is more inclined to start there, I'm FREAKING :(

I'm trying to remember my lessons here, sensory vs. otherwise.....twitches and tingles vs. weakness, etc. But, YIKES. This is just so unusual and I don't know how I'm going to handle it.

Started the other day, I'd feel like something like tape or plastic was stuck to my left middle toe, I'd look down to take it off, NOTHING THERE. Then, as I would step, I'd feel tingles, shocks, jolts in the exact spot.

Today, nearly every step I take, I feel the same thing. I've never had this. I don't know if it is in the ballpark of BFS or if it is in that sinister one.......

WHAT IS GOING ON!? Should I go to a Neuro!? Has anyone ever experienced this?!

-RYAN :cry:
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Re: Toe Sensory Issue....Regression in my Progress

Postby mwagner on March 7th, 2013, 5:55 pm

I don't think you have anything to worry about and don't go see a neuro. So many people have sensory issues in their fingers/toes. You are probably just a little numb. Sure you don't have Raynaud's or something that would just cause your toe to numb up and the then the tingling would start with the circulation going back to your toe?

Mitra
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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 7th, 2013, 9:46 pm

Thank You MITRA,

So this could be nothing more than a sensory issue related to BFS? That would be GREAT! Ahhhhh, this state of anxiety I'm in, it is horrible. A horrible way to live.

I'm scared because I have never had this feeling before, especially in an extremity.

It isn't numbness, it is a very weird sensation.....And I don't have Raynaud's.


:(
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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 7th, 2013, 10:33 pm

I just did some research on this forum.....could it be the start of DROP FOOT!? :( :(
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Re: Toe Sensory Issue....Regression in my Progress

Postby Floydian on March 8th, 2013, 3:52 am

Try to calm down... looks nothing sinister to me.
A few weeks after my symptoms set in I was connecting some computer cables, suddenly I had the feeling someone stepped on my foot, i asked my wife why she did that :D , but ofcourse she didn't do that. It scared the hell out of me, my feet was completely numb. I had/have those sensory stuff mainly in my arms but sometimes in my legs/feet too. So i think it's very common with bfs.
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Re: Toe Sensory Issue....Regression in my Progress

Postby TwitchyDoc on March 8th, 2013, 7:50 am

How can be a sensory finger issue linked to the foot drop (which has nothing to do with fingers) is a mystery to me..
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Re: Toe Sensory Issue....Regression in my Progress

Postby mwagner on March 8th, 2013, 11:03 am

It's totally the weird sensory stuff we get... Honestly, this should assure you instead of scaring you. Sensory issues do not go hand in hand with <you know what>.

I have seriously had the feeling that bugs are crawling in my hair before. Or a bug crawling up my leg. Or cold water poured on my leg. Numb toes happen frequently. I don't what causes it, but I honestly think that many of us BFSers just have weird sensory stuff going on with our bodies.

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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 8th, 2013, 4:27 pm

Thank you Mitra,

It's totally the weird sensory stuff we get... Honestly, this should assure you instead of scaring you. Sensory issues do not go hand in hand with <you know what>.
I only get scared when the stuff is new.....because, it is unknown to me, then I fear it is the start...you know!

And TwitchyDoc,

How can be a sensory finger issue linked to the foot drop (which has nothing to do with fingers) is a mystery to me..
Because it is my SENSORY TOE.....Left middle toe...

Also thank you Floydian, seems as if we all get these very weird "sensory symptoms."

-Ryan
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Re: Toe Sensory Issue....Regression in my Progress

Postby TwitchyDoc on March 9th, 2013, 5:49 am

InvisibleTwitches, finger issues have nothing to do with a foot drop. What you most likely have is an issue with subcutaneous nerve branches in that finger or slight compression at the ankle level..90% of these issues are related to shoes and walking...
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Re: Toe Sensory Issue....Regression in my Progress

Postby jorge on March 9th, 2013, 5:36 pm

This is a paresthesia, do not worry. Sometimes I have a strange felling in the tip of my toe; it feels like it is touching a wet cube of ice. This wet/cold sensation comes and goes and just don’t care about it anymore.
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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 9th, 2013, 7:24 pm

I guess I should rest assured that SENSORY ISSUES aren't an early symptom of ***

And, being 2 years into BFS, I should just accept this? It seems.....

Still, scaring when my MIDDLE LEFT TOE HAS BEEN TINGLING/WEIRD SENSATIONS/ETC. FOR THE PAST 5 DAYS

:(

but again, TWITCHES, TINGLES, SENSORY STUFF, only comes after WEAKNESS IN ***


I think I'm ok
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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 9th, 2013, 10:31 pm

And, lastly, sorry guys, but my ANXIETY IS BACK TO AN ALL TIME HIGH

now my entire left leg, is tingling, up and down. I also found, to the left of the TOE where all the sensation is taking place, the toe closest to my pinky toe, it has a much deeper indentation on the top as opposed to the same toe on the right foot! :< And, whenver I step, it is like the MIDDLE LEFT TOE IS DOING PUSH-UPS....THAT IS THE SENSATION. I'M FREAKING OUT
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Re: Toe Sensory Issue....Regression in my Progress

Postby february1878 on March 10th, 2013, 8:37 am

Hi InvisibleTwitches-

Just wanted to throw in my ten cents here- I have had pretty much exactly what you describe for about a year- it started as a shooting pain in my right second toe which came whenever I flexed my foot (so when I'd step on the ball of my foot), the only way I can describe it is that it felt like the nerve had shortened and was snapping sharply when I walked and stretched it, causing an electrical shock type of feeling.

I've had some problems with that ankle (weakness, snapping tendon when I walk) for quite some time and the doctor seemed to think it was connected. Strangely, my big toe on that foot now also splays slightly when I walk barefoot, I think this is a result of changing my gait to accommodate the electric-feeling toe and ease the pain, and thus putting pressure on the instep of my foot. I haven't had any subsequent problems from it, aside from it being a little annoying. I try and stretch my feet and ankles a lot, and wear comfortable footwear- I also have intermittent bouts of numbness and tingling in toes that vary from day to day, even hour to hour. Annoying, but nothing more than that.

It seems that in BFS, these strange little idiosyncrasies (odd bouts of tingles, twitches, numbness and any other intermittent paraesthesias) are incredibly common and seem to be part and parcel of an overstimulated nervous system, coming and going as they please. Of course it's not as simple as that, but try to not focus too much on all the small symptoms that come and go- it's easy to magnify them into big problems that way

Take care

R
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Re: Toe Sensory Issue....Regression in my Progress

Postby InvisibleTwitches on March 10th, 2013, 10:45 pm

R, Thank You for your Post!

the only way I can describe it is that it felt like the nerve had shortened and was snapping sharply when I walked and stretched it, causing an electrical shock type of feeling
This sounds pretty close to my sensation....However, whenever I step, or wake up, or just at various random times throughout the day, my LEFT MIDDLE TOE, the MEAT OF THE TOE, like, the head of the TOE, WILL have this sensation as if it is "DOING A PUSH-UP, and the meat of the TOE seems to be getting FATTER." Does that make sense?! It freaks me out

It is nice to know that people on here have had similar experiences, but, since no one has exactly the same thing, it WORRIES ME/Has me questioning if this is indeed just BFS.

Thanks Guys,
Ryan
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Re: Toe Sensory Issue....Regression in my Progress

Postby Aingealag on March 15th, 2013, 9:21 am

Don't worry, I get the toe thing as well. Feels like the middle toe on my left foot is cut off by a rubber band... And sometimes an annoying pain in the nerve that leads to that area.
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Re: Toe Sensory Issue....Regression in my Progress

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