I wish we could sticky this post from Chrissi. Seriously Chrissi you are like the Oracle of Wisdom on this web site. Everything you say makes total sense to me for some reason, and I get all worked up (in a good way) at how perfectly you put things. This post might be wordsmith'd and stickied into a post somewhere ... i wish i wish. Maybe I'll make a blog site and include it.
chrissi wrote:And as usually, I agree with SAM. I believe that most of us will find relief if they change their attitude towards and a bit of their lifestyle.
So so so true.
The ones that just got over the anxiety about ALS and feel OK now. Not healed from BFS, but their twitching became some kind of background noise to them.They feel OK if they live with this forever. They like their lifestyle and because they know that BFS won't kill them and they are OK with it, there's no reason for them to change anything. Those are the ones that will give the advice: stop obsessing with ALS and everything will be OK. I think this can be a good solution for many people on the board. People like Johnnythejet for example or many other oldtimers.They just don't give a *beep* about their BFS anymore and will live happily with this for the rest of their lives. Which will be just as long and joyful as those of any other person in the world.
So well put. Do you think these people could join us in Group 2 though, if they took some steps? Or is it possible that the longer you have it, the harder that becomes? I have a theory that the longer you let any health condition flourish, the harder it is to correct it. Of course I would wish the former, not the latter for all the above people. But I've noticed that they not only think nothing works, but they also have no desire to try and see. Maybe the two go hand in hand.
2. the ones that canot accept when anything is "not right" with their bodies. Those are often people that feel a deep influence on their lives by BFS, usually by the pain that comes along. Those people are getting much happier once they loose their anxiety about ALS. But not really happy. They wonder what else it can be now they know that they are not dying. So they will search for cures of any kind. Usually their BFS will get much better once they try something that consists of a moderate exercise programme, a relatively healthy lifestyle and a change in attitude. Some meditation.Slowing down their hyper nerve system. Slowing down their life. Getting control over anxiety and obsessive thinking.
Me!
Those are the ones that even take some benefit from BFS because it leads them to a healthier lifestyle. So just like others mentioned above, they will live happily and maybe generally healthy and fit for the rest of their lives. People like SAM, SuzyQ, myself and others.
So well put. Seriously ...
Once the body gets into a state of hyperexciteability, it can never ever ever ever calm down as long as the brain does not let it. I mean this as I say it. Noone on this board, be it in group one or 2, will ever get rid or feel OK with BFS as long as this person does not get rid of the tendency to obsess with deadly diseases.
Favorite post of the year. (even though its only February)