Hi guys,
Looking for some advice/support/reassurance and really just to write this down to get it all out.
I've been lurking on this site for a few months and have only recently got up the courage to post.
I'm 28, female, a health professional. You'd think that would help, but if anything I think it makes it worse. I have a stressful job and am generally anxious/easily stressed.
Around 6 mths ago I had a strange 'bubbling' sensation in both of my lower legs, it lasted 1-2 days. There was no numbness or tingling. It felt as if someone had poured 'fizzy' juice into my legs. If I moved my legs, it stopped, but started immediately when my legs were at rest. This disappeared.
Then I started getting LOTS of twitching in both calves. NON STOP. Then I started to get twitches in buttocks, thighs, arms etc. Occasional 'buzzing' twitches in feet and scalp. This has been going on for months. It's settled down, but I have almost constant twitching in the right calf (and left arm). It'll go away for a few hours at a time, then returns. I can see it under the skin.
My only other symptom is occasional and subtle 'sensitivity' of the skin. This occurs only now and then, changes from hour to hour and comes & goes.
Funnily enough, I did not automatically jump to thinking ALS/MND. Mainly because I have no weakness/muscle atrophy, and because it's so rare in my age group. Also, I have seen ALS/MND patients, and they hardly ever notice their twitching, and their fasciculations are quite obviously not what mine look like.
No, my fear has been MS. I have no other symptoms, but it doesn't stop me worrying. Some days I get on with my life, and some days I am so terrified I want to hide under a blanket and cry. I am TERRIFIED of MS. I'm heartbroken about it.
I'm embarrassed, because lots of people have it and live with it and I'm ashamed of being so upset about it.
I am not going to go and see a doctor about it, for lots of reasons. I am afraid tests might show up something positive, and I couldn't cope with that right now. Also, apart from the twitching, nothing else has happened. I have a glimmer of hope that this might just be BFS, and if so, I don't want to have gone through all those tests for nothing.
I know none of you have any answers, there are no answers, but some days I really really struggle with this. I don't want to burden my family/partner with more tears.
Thanks guys.
D