Rate your BFS!

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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Re: Rate your BFS!

Postby Kamila on November 13th, 2012, 1:57 pm

Wonder also how long people have fasciculations. 1 year, 10 years. And what medicines help a little. I am now few day on Baclofen and Klonopin. Not help. In Thursday will go to hospital for few days they will make tests checkings so appreciate for all crossed fingers for luck or praying. Wish health to all of You!!!!
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Re: Rate your BFS!

Postby raindog on November 13th, 2012, 6:29 pm

D5 , Tongue maybe a handful every day which is a luxury compared to my lower legs with zillions every day. :lol:
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Re: Rate your BFS!

Postby bobajojo on November 14th, 2012, 8:23 am

Keep em comin!

Results so far (27 replies):

Legs only - 8%
All over (no tongue issues)- 50%
All over (incl. tongue)- 42%

Just twitching- 19%
Twitching + Sensory- 62%
Twitching + cramping- 8%
Twitching, cramping, and sensory- 12%
Over 10 billion twitches since May 2011.
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Re: Rate your BFS!

Postby Shanny63 on November 14th, 2012, 2:28 pm

A5 all the way...great post Matt... :D
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Re: Rate your BFS!

Postby Shanny63 on November 14th, 2012, 2:29 pm

Oops I'm a bit B5 too though cos I do get sensory as well
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Re: Rate your BFS!

Postby allmylove16 on November 14th, 2012, 4:05 pm

B/C 4. My symptoms really wax and wane. I have only had a fluttering of my tongue under extreme stress. I can count this happening a handful of times in over 2yrs.
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Re: Rate your BFS!

Postby mwagner on November 15th, 2012, 12:30 pm

So, this is really hard for me to answer:

80% of the time, I'm a B2

The rest I'm between a B4 and a B5.

My calves twitch every day, but the rest of my body doesn't always twitch, it's much more random. My tongue seems to twitch once or twice, maybe once a week, so I struggle putting myself in the B5 category. Of course, there have been times where it's twitched much more than that, but it's rare. And, I notice it's usually related to how hard I'm clenching my teeth/jaw (TMJ).

Not sure if this helps, Matt. Go ahead and put me in B5, if it means that you've twitched there - ever.

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Re: Rate your BFS!

Postby bobajojo on November 15th, 2012, 12:56 pm

Thanks Mitra!

I'm gonna put you in as a B2 since the criteria I used for sensory and cramping was more than one day a week. I'll do the same for the tongue.

Hope you're doing well!

-Matt
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Re: Rate your BFS!

Postby bobajojo on November 15th, 2012, 12:56 pm

Thanks Mitra!

I'm gonna put you in as a B2 since the criteria I used for sensory and cramping was more than one day a week. I'll do the same for the tongue.

Hope you're doing well!

-Matt
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Re: Rate your BFS!

Postby Jonny32 on November 15th, 2012, 1:00 pm

B4.
Worst thing for me: the psychological aspect. Believing that it is benigne.
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Re: Rate your BFS!

Postby christo on November 15th, 2012, 1:01 pm

I would say A4, but :

- I am really too scared to look at my tongue so...
- I had pins and needle for so long I just can't remember but I am twitching for only 2 month so I dont think it's linked to my BFS
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Re: Rate your BFS!

Postby cincila on November 15th, 2012, 1:57 pm

Hi,

I am B5 too.

However, there are days when I almsot dont twitch at all and days I twitch like crazy. Now is 2 years since the first day of twitching.
But, if u maybe find it interesting - before twitches started, I was 3 years affraid that I will start twitching :oops: . Cuz I read about twitching ... so I was thinking that cant happen to me... but it happened. Therefore, I think its somehow connected with our mind.
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Re: Rate your BFS!

Postby bailyloves on November 15th, 2012, 9:38 pm

i am A5.Great effort matt.thanx for same.
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Re: Rate your BFS!

Postby jerseygirl on November 15th, 2012, 10:58 pm

Also a B4. . . great idea Matt!
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Re: Rate your BFS!

Postby pdodge715 on November 17th, 2012, 9:51 am

Great idea! I'd say I'm a D5 all the way. Tongue (along with rest of facial muscles) is noticeable 10-15x/day for about 2.5 months, wheras the legs have been CONSTANT since it all started 5 months ago. Cramping occurs in hands/legs/feet usually only 10x/week or less. Sensory issues are the biggest trip... Pins and needles here and there - last night I was actually woken up for the first time from BFS - buzzing sensation from mid-thigh all the way to feet on both legs.
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