I may have a clue....

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I may have a clue....

Postby angusglover on October 29th, 2012, 2:26 pm

Guys

Not been on here in a while, so figured I would give an update.

I went for an MRI recently and they found a 1cm syrinx in my neck. Basically it means I have Syringomyelia. This would explain a massive load of my symptoms.

WIll be going to a neuro surgeon soon.....

Stay Well....
"If you can read this, thank a teacher....and since it's in English, thank a soldier"
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Re: I may have a clue....

Postby Yuliasir on October 30th, 2012, 4:07 am

Hi,
hope there is a kind of cure for that... Thanks for sharing this info, so our fellows might consider another issue to look for.
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Re: I may have a clue....

Postby TwitchyDoc on October 30th, 2012, 5:10 am

So you have had no facial/bulbar twitching I guess. I thought about the same (I had very small finding in the neck spine too) but as my tongue twitch, it cannot be that.
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Re: I may have a clue....

Postby BFSBurger on October 30th, 2012, 9:43 am

There is *always* a cause. Even with "benign" conditions. Glad to see you may have identified yours.
How I resolved my BFS within 1 year of onset:

viewtopic.php?f=3&t=19128
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Re: I may have a clue....

Postby Jujulia on October 30th, 2012, 10:45 am

I'm curious... was that your first (neck/spine) MRI?
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Re: I may have a clue....

Postby angusglover on October 30th, 2012, 12:01 pm

Hi

I had an MRI of head and neck back in 2006 and this was not picked up so I can only assume it was not there. I did have facial twitching, basically I have had twitching everywhere.

The only "cure" for this is an operation but that in itself has risk and scares me. It does explain the weakness in arms, pain in arms and torso, neck stiffness and also to an extent the breathing issues.

Will find out soon what they intend to do.

Stay Well guys.
"If you can read this, thank a teacher....and since it's in English, thank a soldier"
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Re: I may have a clue....

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