Ibuprofen or Steroids?

[BFSBurger]

Do anti-inflammatories or those drugs which calm systemic inflammaiton help with BFS twitching at all? Such as steroids, or Ibuprofen?

Seems so strange that these things wouldn't do anything to help.

[Seepi27]

Do anti-inflammatories or those drugs which calm systemic inflammaiton help with BFS twitching at all? Such as steroids, or Ibuprofen?

Seems so strange that these things wouldn't do anything to help.

Sadly neither seems to help. In fact, I doubt that there are any meds which will obliterate the twitching: it's just something that, hopefully, has to ride its course.

[BFSBurger]

Thank you for the reply. Maybe im naive, but everyone here seems to be here under 2 years. There are a handful of exceptions, but I really wonder if the folks who have disappeared also "resolved" ...

[Missi]

I carry ibuprofen in my purse & take it when my leg aches worse.. That's all it helps with is the aching part. However, I no longer twitch in the morning... I used to wake up to twitching calves but they haven't for a few weeks. My twitches are much less but that for some reason bothers me on a whole other level!! Anyways I went off subject, lol. It doesn't work for twitching. I used to think my muscles were irritated for some reason.

[chicagobfs]

Said it before, but steroids seems to help a lot!! No twitching no pains, but then I only took it once so not sure 100% ibuprophen doesn't work on twitching in my case but obviously work on some pain, just don't over do it.

[mwagner]

People disappear after 2 years, often on here, not because they have worsened, but I'm guessing because they are so used to their condition (or it has gone away) that they don't need the board anymore. Some vets will come on here to help newbies, but that's about it.

Just about everyone's stories on here are the same and newbies turn into new vets (like myself) who help people, and then they're not needed anymore, etc.

Mira

[MarioMangler]

Most people disappear because they have learned the lesson that every BFS veteran learns over time. They learn that the only way to truly get over a condition like BFS is to not obsess over it. And the first step in that is leaving this board.

Like Mitra said, some people will come back from time to time to help. But no veteran will come back and stay here permanently. It is just a bad idea to get wrapped up in all this again once you are over it.

[BFSBurger]

Said it before, but steroids seems to help a lot!! No twitching no pains

Has anyone actually tried prednisone or whatever that low dose mild steroid pill is? I would almost be willing to bet money that it eliminates symptoms. But I heard you can't stay on those things long term.

Also - interferon is prescribed to MS patients with similar symptoms. That is a steroid correct? But a much more powerful one?

Has anyone actually seen results from prednisone / etc ?

[plainslady]

Hey, I actually just came off a 14 day course of Depo Medrol a week ago and while it did wonders for my intense nerve pain (not BFS related), my twitching has remained at the same level. Active for a couple days, a few days of relative quiet. Honestly, the only medication I know calms my twitching is my pain medication. And of course, I do not recommend taking opiates to relieve twitching. However, I would be interested to know WHY they quiet the twitches, although the doctors can't seem to give me a solid answer on that one.

Frances

[Yuliasir]

nope, interferone is not a steroid. it is a protein antiviral factor released in the cells if they are contacted to virus. Interferones seem to be strong switchers for our immune system, and this is supposed to help the body in healing inflammatory leisons in case of MS.
Steroids act vice versa, they suppress immune system in order to stop autoinflammation. of course they are proteins too, but of another kind

[BFSBurger]

Gabapentin and Lyrica were recommended by my doctor if things got really bad .... but of course there are side effects associated.