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pdodge715 wrote:I am about 6 weeks in with a normal EMG at the 3 week mark, but a less-than-sympathetic neurologist who has left me with some residual fear (explained in more detail in my most recent post).
Kamila wrote:Hello Julia!
I am appreciate for answer. About my clonus is hard for me to explain in english how its looks but neurologist said for sure its clonus.Its looks like this http://www.youtube.com/watch?v=8GC8F2UMYbQ -example in sit possition when put food on fingers-all leg start shakeing. Or when neurologist put 2 of my fingers together (example thumb and ring finger) and he try with his finger -open this two, my finger was shaeking in clonus again.Soory my english is not good.
And makes me scared that i read in BFS clonus not appear. I dont know how about myclonus- but You said its part of BFS.I thought in BFS appear only fasciculations. So maybe i am wrong? I hope it.
About muscle which not stop after massage i also hope then that its just hot spot.
Now want ask about this sentence "And I am not sure that ALS could be presented at the same time in leg and hand. Usually it eats one limb, then goes to other - quickly but not simultaneously"
Because in my story: it was start in left leg, then after maybe 5 days its goes also to right leg, and then affter some time its goes to hands and all body.So its not start simultaeously in all body. Just now its simultaneously. So in ALS when it already eat one limb and go to other will its stop fasciculate in this first limb?
Soory if my message not clear- just language problem.
Again thanks and and wish You good day and health.
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