Soreness

Information about how to manage or reduce the severity of BFS symptoms

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Soreness

Postby Issi on June 22nd, 2012, 1:44 am

Hi twitchers :-)
I struggle with alsmost constant pain in neck (very tensed) shoulders (mostly right one) and arms. Tried warmth treatment which seems to help a bit but I have the impression it increases trembling. Did anybody struggle with such symptoms and perhaps have some recommendations regarding treatment ?
Of course, computer work does not make it any better ;-)

Wish u a nice and sunny weekend.

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Re: Soreness

Postby Yuliasir on June 22nd, 2012, 2:37 am

I use massage. Must admit that after long break it is very painful but then I feel much better and every next massage sessionis much nd much relaxing.
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Re: Soreness

Postby johnnythejet on June 22nd, 2012, 5:00 am

I have stiffness in my shoulders and upper back that I think is due to computer work. I don't treat it though except with ocassional pain medication.
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Re: Soreness

Postby ImOK on June 23rd, 2012, 9:40 am

It is hard to keep tension out of your neck when you spend a lot of time in front of the computer - we joke at work about 'mouse arm' as if it was an affliction. It helps to set up ergonomically & fine-tuning it for yourself so that it is possible to relax while using the keyboard, mouse and screen. Raising the screen a little so you are not looking down or bending forward, getting a better adjustable chair so your wrists are not bent, a cordless mouse, etc. Also you have to train yourself to relax your shoulders - it helps to consciously pull your shoulder blades together and down your back for a while. I don't know how old you are but I've noticed that people that grew up using computers from an early age have less of a problem with this - prob because it feels more 'natural' and they are not trying to adjust an old environment (desk, typewriter, etc.) to a new one. It may help to watch someone who is relaxed at this work and mimic them making adjustments for body type. One thing though, is that more and more younger people are developing back problems from sitting so much so I guess it goes both ways. It basically boils down to awareness - when you are tensing, relax, get up and stretch, adjust, instead of just pushing through it. IMO that is the best treatment.
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Re: Soreness

Postby Issi on June 23rd, 2012, 10:38 am

Thanks for your replies to all of you ;-)
OK, u are right sitting in front of the computer all day long is not the best u can do. By the way I am 44, didn`t grow up with computers but have been working with it for more than 20 years.
Since this BFS thing started in late December last year, I have been suffering from that neck and shoulder pain. Sometimes I had the feeling my head is too heavy for my neck. But u know my therapist used to say anxiety can make ur neck and shoulders hurt. That`s probably a reason as well and I have to learn to relax more and not to freak out about each new symptom.
Anyway, I will keep your suggestions in mind :-)

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Re: Soreness

Postby Yuliasir on June 23rd, 2012, 11:01 am

Ines, we are close in age and excessive work on PC and I have also pains and tension in shoulders and neck and what i really can tell you that massage really helps. I started massage beginning of this year and holy crap, I was really almosr crying and all was covered with bruises after first session because all my muscles were in knots. next sessions (once a week) were really a blessing. Hope in October my massage therapist would be able to resume working (she delivered a baby girl in April) so I would be again in good order ;)))
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Re: Soreness

Postby Issi on June 23rd, 2012, 12:41 pm

Thanks for your post Yuliasir (what`s your right name btw ?), it seems that our symptoms are really very similar. However I guess u have more experience with BFS than I have after 6 months. What I can say right now is, I don`t find any pattern in that stuff meaning I sometimes have pain and can`t attribute it to something, it comes out of nowhere and I haven`t found any cure for it right now. Regarding the neck / shoulder thing I have to mention that I have had neck issues like tension when I was sitting for hours in front of the PC before BFS but now I suffer from real shoulder pain (right side) and my neck is constantly tensed and hurts. My symptoms so far:

Pain in shoulders and neck (almost constant)
Muscles get easily tired esp. after excercise (sometimes it feels like getting the flu)
Tensed muscles in jaw and throught (esp. after cycling)
Speech issues, meaning it is hard to speak cause my jaw and throat feels so stiff sometimes
Pain in arms and wrist/ankle joints, fingers and hips on and off
Vibration in whole body
Trembling and shaking in hands and legs as well as ratcheting (esp. when bending down)
Legs shaking after excercise (esp. right one)
Stabbing pain in thighs and other places on and off
Esophageal spasms (did get much better) due to GERD
Buzzing in my left thigh
Twitching all over (has improved)
Hands falling asleep (has improved)
Veins stick out like a snake (along my throat as well, which I hate)
Stiffness in legs on and off
Fatigue
Involuntary movments of limbs, head (like jerks)
Sometimes I have the feeling as if somebody squeezes my ribs
so that breathing is harder

That`s it for the moment, I guess LOL
Last edited by Issi on June 23rd, 2012, 4:09 pm, edited 4 times in total.
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Re: Soreness

Postby Yuliasir on June 23rd, 2012, 2:25 pm

Cycling actually usually puts a lot of tension on upper part of the body so there is nothing strange you feel your jaw and neck stiif after cycling. I think there might be a way to relax here - I am not an expert, but that might be an issue of bicycle type, seat height adjustment, span before the seat and front wheel etc. All the rest is very very similar to mine picture.

actually tension related pain might comes from 'nowhere' just because we are used to keep awkward position and tolerate it for hours (I noted that on myself). Stabbing pains in tighs, eyes, other part of the body are either sensory issues related to BFS (however I can remember such pains seldom before BFS - with BFS they became only more frequent) or again, it's from muscle tiredness...

My name is Yulia (Julia), you can use either variant, "sir" is for the first letters of surname :))))
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Re: Soreness

Postby Issi on June 23rd, 2012, 3:00 pm

Hi Julia,

well for me it seems like BFS pulled me out of my old body and put me into a new one. My "body feeling" has completely changed. I mean I have also had issues before, like every normal human being but I have never experienced trembling, finger pain etc. the intensity of that feelings is so great and overwhelming sometimes that I hardly can concentrate on something else. I just try to put it away while at work but it accompanies me the whole day.
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Re: Soreness

Postby Yuliasir on June 24th, 2012, 12:15 am

Sad to hear, Ines, that you suffer so much... I know some fellow twitchers use NSAIDs like ibuprophene for pain releif, so maybe that could be a case. Chrissi said she was using so called kinesio tape applicator which, as far as I understood, causes local disctraction and makes blood circulation beter, which also helps a lot.
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Re: Soreness

Postby Issi on June 24th, 2012, 4:20 am

Hi Julia,

well I have some good days as well but right now I have the feeling that my whole body aches. However I am going to do excercise cause I think the muscles have to be trained anyway. I just thought it might be good to set up a list with all of my symptoms so that new twitchers may have a chance to compair and/or see that there are many people suffering the same.
What are the symptoms u have to deal with, I bet when u reflect on what has happened over the time the list will get longer and longer :-)
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Re: Soreness

Postby TwitchingDuck on June 24th, 2012, 6:23 am

I have the same issues with neck, upper back, and shoulder pain. It all started a couple months after I got bfs. Not sure if it's related to bfs or not. I've been doing acupuncture and it seems to be helping.
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Re: Soreness

Postby Jujulia on June 24th, 2012, 2:14 pm

I have the same problem: upper back pain, shoulder pain, neck tension. The back issue started with bfs, never had this type of soreness before, never ever. Right now I also have feet soreness (especially under the heel) in the morning or after walking... God knows why. The hands (joints)/arms soreness waxes and wanes. Only the upper back pain is constant, even if some days are betters than others. All of that started with bfs. I recently bought an infrared sauna because of the upper back/neck pain, and yes it does help, but honestly, a good hot shower does the same... but I can't really tell since I haven't used it a lot yet. Also, massages are definitely the best.

Have you had an MRI?
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Re: Soreness

Postby Issi on June 24th, 2012, 2:27 pm

Hi Julia,

Yes, I had an MRI of my neck which was normal.
It just turned out that I have cervical ripps which might cause a problem with the nerves going down the arms.
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Re: Soreness

Postby ImOK on June 24th, 2012, 3:38 pm

Don't think the soreness is that uncommon; I had a lot of it when I was in the worse parts of bcfs. I remember asking about it both here and at the neuro's; here others had it and the neuro sent me to a rheumatoid specialist. He gave me an Rx that was easier on the stomach than the 800mg ibupropen that my GP gave me, umm I think it was Meloxicam. It did help some but I really wanted to find my way out by myself as I had already tried drugs that the neuro gave me - each had it's own problems. Basically the neuro felt it was from my constant muscle tension (cramps, and a lot of weird fasics, etc). Many days I would wake up and be sick to my stomach due to the soreness and pain - took very long to get going on those days.

Just want you to know it does get better with time. I rarely have the problem now and if I do it is to a very diminished degree. I have some soreness associated with working out that lingers but eventually goes away. I have a bit of my old self back.

Try not to push yourself too hard, but at the same time keep up physical activity - IMO laying off entirely just made me less fit and did't really help anything. There were a few docs who said I should just totally lay off & I did for a while with an injury but I was worse for it both mentally and physically... most people who do physical therapy or sports medicine would have recognized the folly in it so you could try a PT if a specific area is plaguing you. I think I tried everything for my 'condition' - found a few things that worked - and was sent to many specialists. It doesn't hurt to try new stuff and if you find something that gives you a bit of respite from pain/soreness then go with it. You need to give yourself some slack both mentally and physically so whatever it takes - meditation worked for me but it's not something you can often use in the middle of a work day. It's really important to have some downtime as it is in healing from anything.
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Re: Soreness

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