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chrissi wrote:Haha, that was REALLY funny, a good answer to a lot of BFS worries
chrissi wrote:I love abbreviations:) BTW, I know you had the same *beep* of symptoms as robynn and me. As you maybe know, I got a good hold of my BFS but I still have my flare ups. Did you ever get to a point when it was completely gone for U? (not so much the twitching , but pain and tremors)
plainslady wrote:I love this! I tell myself this all the time. "STOP IT!" Goes along perfectly with what I've been working on, retraining myself to handle my worries and fears in a healthy way. I used to be fond of saying "I can't help it, this is just the way I am." Over the past 6 months I have learned that is IS quite a bit I can help, and it is worth the effort to gain more control over my thoughts and the way I respond to anxiety. Thanks for the laugh!
Frances
Issi wrote:Hello SuzieQ,
I just need to say that I red several of your posts. These and many, many of the other posts helped me during the worst time of my life. I have been in this stuff for nearly 6 months now and I have experienced such a lot of symptoms, twitching (not so much as many others), numbness, stiffness, tingling, sore muscles, trembling/vibraton all over, spasms in my esophagus, mouth issues esp. some speaking problems which I freaked out over.
The first months I really thought I have to die and I couldn`t believe the doctors and neuros – the clean EMGs. Then I found this page which was a life-saver. I noticed there are lots of people full of fear and messed-up and everybody thinks the same, “I am the exceptionâ€. Nobody is the exception it`s just really hard work to accept that this BFS doesn`t hurt u it`s annoying and the symptoms are very impressive. As said, now I have almost been 6 months in, taking Celexa which really helps to control anxiety. I still have dark days and fire questions to Leanne, Chrissie and others but slowly it is getting better.
For those people who just come around, please believe the veterans, they are right !
Thanks a lot to u all.
Ines
Issi wrote:Hello Suzie,
Thank you so much for your post which really helped me to obtain a broader perspective of this BFS thing.
I think there are so many things between heaven and earth which cannot be explained or even described. But now I know for sure that our mind influences our body more than we are able to imagine. Right now, it`s really a constant struggle with myself with good or very good days and still moments of fear as well as a body which sometimes feels very worn out. I think time is the best healer for that curious BFS thing.
Managing this ever changing symptoms is a real challenge for me and it seems that I`ve almost started up like mommy and Chrissi. This trembling thing for example is very bad, I also drop things and sometimes tip over cause I feel so uncertain on my legs. I feel sore after excercise etc. etc. I have always been a very sportive person so this thing hit me quite hard. But nevertheless it`s a challenge I have to accept and make the best out of it.
I am just wondering Suzie how u have dealt with it, is there any concept which might help to ease the symptoms or is it just a matter of "wait and see" ?
I am from Germany and this BFS thing is hardly known here, so after medical exam and EMG, doctors send u home saying your twitches are benign but as you know the best, it is so much more than this. To be honest I don`t mind the twitches at all but the remaining stuff is hard to accept esp. when it gives u a feeling of weekness.
Again, thank u so much for your post which I think really describes what it is...you are a star
Ines
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