Fingers -- buzzing/tingling

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Re: Fingers -- buzzing/tingling

Postby revan on February 27th, 2012, 7:18 pm

Back from doctor. My blood tests apparently showed very high muscle enzymes (creatine kinase), 679, normal is usually 200 or below. The doctor wants me to get an appointment with a neuromuscular specialist in the next couple weeks for a muscle biopsy. This may be what is causing my symptoms but it isn't clear.
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Re: Fingers -- buzzing/tingling

Postby nik00 on January 16th, 2014, 6:04 pm

Another update. Things were pretty stable. Tingling here and there. Twitching now and then. Got some tingling in the trunk, which was new. Trigeminal neuralgia -- not more often than usual. Got new pain in the right ear -- also probable neuralgia -- lasted 2 weeks.
I also lost about 40 lbs during last 18 months without doing anything. That is from 215 to 175 (I am 6'1"). This whole thing is weird. I went to GP with the weight loss and he didn't find anything after a lab workup and a basic chest X-ray.
Then in early October I got up one morning and discovered I can't turn my head due to upper-back/neck pain. Not a big deal, I had this before. Well, it didn't clear up as usual, not even after three months. Went back to my neuro and did another MRI of T-Spine. No change from 2 years ago. Then, suddenly, one day mid December my right hand started going partly numb with pins and needles all over my thumb and index fingers and above up the wrist. After a few weeks that feeling extended all the way up my right hand and now it goes up as high as my shoulder. Told my neuro about it. He decided to begin with wearing wrist splint for a week to rule out local damage and then look at the neck again. The thing is -- those pins-and-needles last only for a minute or two at a time, about ten times a day. I also can cause this by assuming certain body positions, not sure exactly which body part is involved here, but hand/arm position doesn't seem to be important. It is more of the body (spine?) positioning.
I, naturally, fear MS again, but also, due to the weight loss, I fear cancer.
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Re: Fingers -- buzzing/tingling

Postby shell67 on January 17th, 2014, 8:02 am

I wish I had an answer for you. Like you, I went through all the tests back in May/June of last year because I had numbness/tingling in left arm and leg. The numb sensation still remains in the left arm, and that's the arm that twitches like mad. No evidence of nerve compression in neck, no MS, nothing pathological going on. It definitely doesn't feel "normal," but I've learned that nothing about BFS feels "normal"!

Can I ask about your trigeminal neuralgia? I've woven with an aching jaw and tingling face, and wondered if I might have that. But my GP tells me the pain is so severe with TN that there's no mistaking it. What are your specific symptoms associated with that?

Thanks,

Michele
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Re: Fingers -- buzzing/tingling

Postby nik00 on January 17th, 2014, 5:13 pm

Trigeminal neuralgia doesn't have to be severe. They say that it usually progresses to become stronger with time (I don't like that part). In my case, my right eyebrow is my trigger spot. Touching it, even very lightly, sets it off. It is very unpleasant feeling. The reason one knows that it is neurological and not something else is that, after I trigger it two-three times, it needs to "recharge" for 30 seconds or so. In these 30-second-window-of-calm the eyebrow is only very mildly sensitive, almost normal. This condition goes on for months and then disappears for months and comes back. When the trigger point is sensitive I cannot smile, because that triggers it. An interesting thing is also that touching the trigger point with force is much less unpleasant.
When I am nervous and even when I think that I am not, I also often have very itchy face and jaw pain, but that seems to be completely different - "more normal". Trigeminal neuralgia for me is something that feels like nothing I even felt before. I wish the feelings that come from those damaged nerves were interpreted by our brain as pleasant, instead of painful. Maybe the cure to those sensory unpleasantries is to retrain our brain. I wish I knew how to do that... :)
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Re: Fingers -- buzzing/tingling

Postby nik00 on January 22nd, 2014, 6:32 pm

A few days ago I actually figured out how to make those symptoms (with the right hand and arm numbness) happen. Conversely, I also know now how to make them go away. If I bend my neck backward -- I get the numbness. And if I bend the neck forward, with the numbness already happening or just starting, it goes away. Takes about 10 seconds for either to take effect. So, I figured, I have something going on with my C6 vertebra. I am going to talk to my neuro today and see if I can get an MRI. I had one two years ago and it showed degenerative changes, which, from what I understand, are not that abnormal for my age. Want to see if there is anything to be concerned about. Combined with my weight loss and occasional night sweats -- I am concerned.
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Re: Fingers -- buzzing/tingling

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