Tongue Twitching

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Tongue Twitching

Postby bfshopeful on December 6th, 2011, 11:02 am

On Thursday my tongue twitched on the left side in one spot for like 4 hours, dissapeared and now this morning it is back again in the same spot. I really don't know what to think of this. All the research Iv'e done says it can be bfs and anxiety, but my doctor doesn't beleive in benign tongue twitching. I really don't know where to go on this one.
"It's mind over matter. If you don't mind, it don't matter."
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Re: Tongue Twitching

Postby Ghayes420 on December 6th, 2011, 11:46 am

Hi BFShopeful. I am sorry to hear about your new symptom. I personally do not get the tounge ones yet, but I am still only 15 weeks in. I know a couple people on this forum who also get them and are concerned. Tounge twitching is a hotly debated topic it seems. however I have seen numerous people on this forum that complain about them. Are you having an increase in general twitching as well? If not, then I would lean heavy towards it meaning nothing. if so, then I would report the symptom to your neuro and see if he wants to see you again for reassurance after he does another clean neuro exam.
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Re: Tongue Twitching

Postby Jujulia on December 6th, 2011, 11:52 am

I've talked to my neuro about it and he didn't even react... what did your doctor tell you exactly?
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 1:06 pm

That I do not seem to have any type of weakness, but it is a "strange symptom for sure".
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Re: Tongue Twitching

Postby bobajojo on December 6th, 2011, 1:07 pm

I've had tongue twitching since August. If your doctor doesn't believe in benign tongue twitching, tell him to come onto this board and read all the stories of people who have tongue twitching and a benign diagnosis.
-Matt
P.S. My tongue twitches everyday, from flutters on the sides, to zaps in the middle, flickers, big ones way back, zaps on the very tip... you name it, I get it everyday.
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 1:42 pm

I have had them before, but this one seems to just want to stick around. Little shyt lol
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 1:45 pm

My doctor is kind of old school I think, relying on the literature he learned in school. He is the specialist of choice in Florida though. People even fly in from europe to see him. I don't know, if he could just say it is bfs or anxiety related I would put it to bed.
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Re: Tongue Twitching

Postby chrissi on December 6th, 2011, 2:55 pm

You should really know better......tongue twitching is sooooooooooooo common in BFS, and none of the tongue twitchers here got bulbar or anything. I don't care what his reportation is and how many people fly there.....hundrets of neuros told people that everything that is a muscle can twitch in BFS , and so the tongue. Why should a person be "allowed" to twitch in all other face parts affected by bulbar muscles without concern and only the tongue has to be spared out? This makes absolutely no sense. Sorry, your neuro seems to be uninformed here. An I actually would not care what he "believes in"...this is no question of believe. it is a question of facts. This is not religion studies.
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 3:49 pm

Your right and I do appreciate the tough love. Sometimes it is hard to handle. I have personal issues with ALS and I think it effects me more then the average. Thanks.
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Re: Tongue Twitching

Postby johnnythejet on December 6th, 2011, 5:49 pm

Yeah, just like everyone else said...your doctor isn't up on the latest if he doesn't believe tongue twitches can be benign. We let our anxiety force us to focus on individual symptoms incorrectly believing them to be sinister, all the while forgetting the truth about our condition. You already know that you have BFS and had it for a while. Tongue twitching among BFSers is all over the place. We know for a fact that BFS absolutely cannot "turn in" to ALS or anything like that. So do the math....
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 5:54 pm

Thanks John...I do listen to what you say. You have been living with this far longer then I have. I know you mention that you have a lot of facial twitching, have you also had the tongue twitching that I describe in the past?
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Re: Tongue Twitching

Postby johnnythejet on December 6th, 2011, 6:05 pm

bfshopeful wrote:Thanks John...I do listen to what you say. You have been living with this far longer then I have. I know you mention that you have a lot of facial twitching, have you also had the tongue twitching that I describe in the past?

I have lots of facial twitching but I"ve never had a tongue twitch, That being said, I've read SO many others that HAVE had tongue twitches that I almost feel left out and I fully expect my tongue to twitch eventually.
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Re: Tongue Twitching

Postby Jujulia on December 6th, 2011, 8:02 pm

Here's a bunch of tongue twitchers: viewtopic.php?f=3&t=10625#p123812

:)
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Re: Tongue Twitching

Postby bfshopeful on December 6th, 2011, 8:36 pm

Julia, thank you very much. I really appreciate it.
"It's mind over matter. If you don't mind, it don't matter."
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Re: Tongue Twitching

Postby bobajojo on December 6th, 2011, 11:15 pm

My boss told me today that as she was flying out to Chicago last week to lay someone off, she was extremely nervous and her tongue started twitching. She doesn't have BFS.
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Re: Tongue Twitching

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