by Lefty Canuck on December 1st, 2010, 12:16 am
H All:
I'm 3.5 years into this now and it been quite a trip, very rough to get used to in the beginning as you panic and search out every bad angle you can think of and then gradually you settle down. I still twitch but I make sure that I don't have the extra twitching that anxiety or caffiene (my opinion) or fatigiue or booze or anything else can bring on. For the most part I feel pretty good, I did have a relapse for a month this past summer but found my good place again and just knowing that will help me the next time.
I think you can look forward to not connecting your symptoms to nmd, I don't, it would have shown its ugly head by now. My theory and it's as good as anyones, because I have read them all and nobody really knows here, is that I picked up a virus and it did its damage and now its gone. Hopefully in the long term things will keep getting slightly better as they seem to be and eventually I won't even think of it ever again.This is a disorder that you have to measure recovery in terms of years, not weeks or months.
I also think that a lot of bfs'rs stop coming here because the site gets really repetitive, people come and get help then become helpers themselves and stay a while then move on, i think its really healthy to move on, you can really get some weird ideas from this site, but most people are trying their best to help.
Three things you must do,1. you must rule out nmd, by going to your doctor and a nuerologist and getting and believing them what ever they say.2. You must get some treatment for the anxiety that has come into your life, its almost like a post traumatic stress that we cause ourselves.3. You have to leave this site and move on with life, accepting you will have twitching forever and its no big deal.
Wow, words of wisdom, from me, I really have tried it all, you name it I tried it and I think moving on is the best medicine, ativan is pretty good too but you can get addicted to that stuff. My hope for you is a to not give up, get yourself busy, sick people can't do the things i've done in the last 3 years, and I do hope you recover.
Later, Lefty