Facebook Group for BFS Sufferers

[angusglover]

[twin2]

I have always given my husband props for being the world's best lover. But lately something is missing. Oh yeah--twitches!!

Twitchers are sexy!

[highpriority4]

[monr905]

[twin2]

Hey Anthony. I hope you will stick around the board and the Facebook website. You never know if your contribution to the site may be just the help someone needs.

[ed73]

Anthony,

My most sincere apologies if my reply was harsh or disrespectful, it wasnt my intention but I honestly stand for what I said.

The first thing you want to change about BFS is the way you react to your symptoms. Thats the whole key about it. Let me ask you ¿ How many times do you breath per day? I guess you dont have a clue about it, why? simply because you arent focus all day on your breathing. This same concept you can use it with BFS, the mental approach means everything with BFS.

Soon enough youll find yourself absolutely detached from the self-inflicted suffering implied in thinking over and over again the same absurd thoughts; for instance Anthony, let me give you some examples of how unhealthy my thinking patterns were a couple of months ago :

They were a grueling obssession like this :

- Death, death, death.
- Who is going to look up for my kids?
- Im desperate, my body has developed an uncurable pseudo-neurological/mental condition !!!!!!!!
- Nobody knows anything for sure about this BFS crap, not even trained neurologists, Im doomed for life!!!!!
- OMG, its getting worse and worse!!!!!!!!!

But then, I had an epiphany ! I was slave of my own mind, that was it!, so the only way out was simply tricking my mind into other type of thinking patterns, it was a matter a having a mental habit the other way, slowly I replaced my thoughts with new ones :

- Yes, I twitch, tingle, buzz, so what?
- Does BFS prevent me from doing anything I like? No, so I better be enjoying everthing I love to do instead of whinning and complaining about something that I cant change.
- Im alive and healthy , period, I assume this as an absolute truth!
- It feels so good to be able to let go so much pain and suffering!!!
and so on.....

You mentioned anxiety, let me share with you some things that helped me a lot:

- CBT therapy.
- Medication. There a plenty of options for short or long term management of anxiety, talk to your GP or you can even think about getting help from a psych.
- Relaxation techniques, a basic tool for managing anxiety.
- A healthy diet.

And always remember Anthony, BFS always get better with time, just check the 7+ years of archives of the board. You wont be the exception, be positive about that.

Finally about the bong joke, why on earth you didnt mentioned that you were a police officer!!!! me and my big mouth!!!


Relax, Laugh and live!!!!!!!!!!



The best wishes for you and your loved ones,


Eduardo

[monr905]

[lindahcohen]

Ed -

What is CBT?

Anthony-

If you're a police officer you most likely love it when things are by the book - you like total control. Which will be a major contributor to BFS freaking you out. That's my major issue. I don't like it when things aren't organized. When one thing is out of place or not perfect I go out of my mind trying to fix it. If you're the same, spending that much energy on your BFS will disable you, just like spending that much energy on anything would.

Learning what your new "normal" is just takes time. Read the posts, share on facebook, and become involved in things that take your mind off the disabling aspects of this ... and sooner rather than later you'll find that it's not consuming your life.

Unless you start partying too hard with some of the folks here, in which case all bets are off!

[Giaynee]

I thought this forum is for BFS not for this trash!

[twin2]

Yikes! Try not to judge. We all deal with stress in different ways. This board is a safe place to blow off steam.

[paulhp]

[beausoleil1]

CBT is Cognitive Behavioral Therapy.

[jerry2]

My BFS is disability. If I can not function cognitively without thinking about it and being disturbed by it without my own will, I would say it is disability.

I can not run or ski because of foot pain, I hardly dance and have hard time in any not super extra wide shoes. This is not disability?

I can not lift any heavy stuff because my hands hurts. I can not sleep because of the twitches and pain sometimes.

I would say unfortunately that I am disabled in many ways by this.

[RachelLee]

Yeah, I don't think I would call it a disability, I mean...that's like calling depression and anxiety a disability. It's more of a disorder. I'm 20 years old, former ballet dancer, and it never hindered my dancing. I still work out and dance when I can. I go on long bike rides, I swim in the summer, I hike. In other words, I'm extremely active and the picture of health...it's just I twitch all over my body. Sometimes a lot, sometimes not. It comes and it goes. It's random and weird, and I've had moments of extreme anxiety and fear because everyone around me says that only RARELY happens to them. I'll notice my muscles twitch a lot after working out, but sometimes I'll be sitting down or lying down, or trying to sleep and it starts acting up. It's just random. And causes anxiety with me. But that's as much as a disability as it gets. Now, if it were like IBS (irritable bowel syndrome) like my boyfriend has, that would be a completely different story. I can understand why you can refer to that as disabling, because that condition is debilitating when it acts up and can really get in the way of a normal day. :/

[nervous nel]

Do you have tongue twitches racheal? x