Cramp-Fasciculatiion Syndrome

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Cramp-Fasciculatiion Syndrome

Postby osbormd on August 20th, 2003, 12:03 pm

For those of you that notice cramps associated with your twitches, could you post whether you have had confirmed dx (Nerve Conduction Velocity/stimulation), or have tried any drugs with a noticable benefit?

I had NCV/stimulation test and it did not show positive for me, but I understand this test just helps further conclude dx of BCFS.

I've tried Klonopin with some minor benefit.

Mike
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Cramp Fasciculation Syndrome

Postby toddwstew on September 1st, 2004, 10:55 pm

I have been dx'd with Cramp Fasciculation Syndrome following exams, bloodwork, EMG/NCV ,etc.

I have been given Klonopin to see if it helps with my symptoms. LIke Mike I've had some minor benefit taking the drug mainly with helping me sleep.

Any others with a similar dx and anything to offer?

Todd.
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No good response

Postby Davey on October 8th, 2004, 1:46 pm

I've had Cramp-Fasciculation since June 2001. My dx consisted of simple neurological exams, blood work, and an NCV/EMG in Sept. 2001. I have taken supplements (Ca, Mg, Zn) but found no real benefit. I took Neurontin, but that was for Restless Leg Syndrome, which has subsided so I no longer take it. I also no longer take SSRIs to deal with anxiety.

I have not taken benzodiazepines or carbamazepines (ie. Klonopin, Tegretol). I was drinking tonic water in hope that the small amount of quinine would prevent cramping, but it didn't help. I am going to a neuro next month to get his input on how to deal with the cramping and twitching. I'll let you know what he says.
Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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Postby SusanSid on October 8th, 2004, 11:46 pm

I've had BFS for almost 3 years. The first year I had terrible cramping, especially in the feet. It was a bit less in the calves. I twitched non stop for months. I've tried the SSRI's (antidepressant), and it helped reduce the worry along with Xanax. I am no longer on either. I even was on Klonopin for a year. It helped me sleep, but had a mild affect on the cramping and twitching. I now make sure I stetch, exercise on a regular basis, take Ca, Mg, Bvits and multivit. Stress makes a huge difference in how bad the twitches are.
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