Lyme Desease

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

Moderators: JohnV, Arron, garym

Evidence please

Postby John_JR on March 28th, 2005, 4:01 pm

I've done some basic Googling, and can't find much on the topic. I did find some chatter back in 1999 that the state of NY questioned one of IgeneX's PCR tests for babeosis. Which might explain why a few of IgeneX's tests (mainly PCR type) are marked as "not available in NY". I don't see any other state in the union with an issue. It's now 2005, can someone please provide some hard links or references regarding this IgeneX investigation, how the investigation took place, what were the issues? Is there a study posted? Were any findings made public? Were any motions filed? Press releases? Is IgeneX non-accredited? Does the CDC have any information either for or against IgeneX?

I'm just a factual person, and I like to see some reliable sources regardless of pro or con.
John R.
User avatar
John_JR
Senior Member
Senior Member
 
Posts: 66
Joined: April 28th, 2003, 8:27 pm
Location: Florida

Lost in the chatter

Postby Davey on March 28th, 2005, 6:49 pm

Lost in all the incessant chatter here is the fact that Slavin's Lyme Disease specialist told him that he doesn't have it. Eric's reply was:

YOUR DOCTOR IS 100 PERCENT WRONG!! HE IS NOT AN EXPERT


So, should Slavin trust Eric's word instead of the word of a trained medical professional who specializes in Lyme Disease? I think not.

quod erat demonstrandum
Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
User avatar
Davey
Selfless giver of time
Selfless giver of time
 
Posts: 246
Joined: August 29th, 2002, 5:14 pm
Location: West Lafayette, IN

trusting word of doctors

Postby eric on March 28th, 2005, 9:15 pm

dave if you trust your doctor so much then why are you on this forum?

I take back what I said before, you really are......
eric
Hero
Hero
 
Posts: 353
Joined: June 3rd, 2003, 7:52 pm
Location: long island

Postby dave y on March 29th, 2005, 1:39 am

Isn't this the masochistic lyme dissenter's forum?

Eric... still waiting for the science from you. So far it's all been frothing at the mouth.
dave y
Hero
Hero
 
Posts: 380
Joined: December 8th, 2004, 12:50 pm
Location: Italy

Postby dwl on March 29th, 2005, 3:04 am

hee hee!
User avatar
dwl
Hero
Hero
 
Posts: 312
Joined: September 22nd, 2002, 4:50 am
Location: UK

!!!!

Postby KERI 29 on March 29th, 2005, 6:29 am

Eric,
I admire somone like you, I mean all of your problems are answered and you know you have lyme. I am sure it is a difficult challenge fighting it but atleast you know what your fighting.

The point is you could go on with your life, and you are here trying to help others who could be in the same situation you were in.

I just think you should not come on so strong, make suggestions if people want to take them fine. I just don't think that you should insult people who are of the opionion that BFS and lyme are not linked. It is like with ALS, not all ALS cases are lyme, but some cases are. I believe the same goes with Fibromyalgia, CFS and BFS, some of these cases may actually be lyme and some are not.


CHILL 8)

Kerri
KERI 29
Member
Member
 
Posts: 27
Joined: January 24th, 2005, 8:32 am

kerri

Postby eric on March 29th, 2005, 7:38 am

you are right, but when i try to explain to dave that you must go to a lyme literate dr and not a regular neuro or dr...if you dont you wont get diagnosed or treated,they simply dont know, but they wont let you know that...lyme is a clinical diagnosis and test are only supportive, lyme doctors in ny have 7000 patients, that is just one doctor I know of, the others have so many patients it is hard to get an appointment, these doctors are going out on a limb trying to help people who have lyme, some are bieng prosecuted for caring for patients, in ny dr burrasccano sat before congress and told them lyme disease was not easily detected and was not easy to cure. For this dr burrasccano was investigated and dragged into court, he won his battle because of the marches by his patients in the street, there is a witch hunt for dr's who treat lyme disease, they are trying to take the license of the dr who gives to many antibiotics. so when you go to a dr as a bfs patient that is bieng caused by lyme they ridicule you and laugh so they wont have to treat you, they are scared they will lose there pratice, this witch hunt goes on every day across the us,now this is why i get so angry kerri, I dont want what happened to me to happen to you or anyone else, this witch hunt is bieng done to control antibiotics and the profits that the companys make. my doctors told me that if you have lyme they know it but will not do anyting about because they dont want to lose there license. that is the truth....

ps my shift key does not work....
eric
Hero
Hero
 
Posts: 353
Joined: June 3rd, 2003, 7:52 pm
Location: long island

kerri

Sponsor

Sponsor
 

Previous

Return to Experiences with BFS

Who is online

Users browsing this forum: No registered users and 4 guests